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Gorlin syndrome
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Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
6 months ago
Lining 5.9mm on day 12.. not feeling very hopeful
Hi all, I had my cycle day 12 lining scan today. My lining on my day 9 scan (on Monday) was 5.3mm. Today on cycle day 12, it was only ay 5.9mm. I was told the lining was triple layer however have been asked to return for a scan on Tuesday 23rd Jan to see if there are any developments. I have been
Hi all, I had my cycle day 12 lining scan today. My lining on my day 9 scan (on Monday) was 5.3mm. Today on cycle day 12, it was only ay 5.9mm. I was told the lining was triple layer however have been asked to return for a scan on Tuesday 23rd Jan to see if there are any developments. I have been
lovetravelling
in
Fertility Network UK
8 months ago
Blood Test for vits (and thyroid)
Hello all. Following advice from SlowDragon, got GP to agree to Vit testing as T3 low and as SlowDragon though they would, they drew blood for Thyroid levels , too! Must say here, too, after GPS lowered my Levo, because I had too many hypo symptoms return, I upped the dose from 175 to 200 as on 200
Hello all. Following advice from SlowDragon, got GP to agree to Vit testing as T3 low and as SlowDragon though they would, they drew blood for Thyroid levels , too! Must say here, too, after GPS lowered my Levo, because I had too many hypo symptoms return, I upped the dose from 175 to 200 as on 200
Lottyplum
in
Thyroid UK
11 months ago
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Help - kindling?
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
Mikatrap
in
Restless Legs Syndrome
6 months ago
My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
6 months ago
Lexapro and RLS
Has anyone with RLS started taking Lexapro for anxiety? If yes, did it have any affects on your RLS? My RLS is pretty well controlled at this time with minimal drugs (100 mg Gabapentin) after finally getting off Pramipexole. I also use Melatonin, Valarian Root, and CBN. But most helpful, I think,
Has anyone with RLS started taking Lexapro for anxiety? If yes, did it have any affects on your RLS? My RLS is pretty well controlled at this time with minimal drugs (100 mg Gabapentin) after finally getting off Pramipexole. I also use Melatonin, Valarian Root, and CBN. But most helpful, I think,
Crazilegs
in
Restless Legs Syndrome
6 months ago
prebiotic collagen protein
Hi, I have searched the site re the above and most concerns relate to cost and getting collagen from diet rather than paying large sums for a packaged preparation. The main reason i want to take it is the hype regarding bloating, gut healing and digestive issues. It contains collagen peptides
Hi, I have searched the site re the above and most concerns relate to cost and getting collagen from diet rather than paying large sums for a packaged preparation. The main reason i want to take it is the hype regarding bloating, gut healing and digestive issues. It contains collagen peptides
paulgf54
in
CLL Support
28 days ago
Nailfold infection
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
Travelling with opioids
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Simkin
in
Restless Legs Syndrome
6 months ago
Dipyridamole working great
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
joemomma
in
Restless Legs Syndrome
6 months ago
Any last advice before I embark on the battle to try Buprenorphine? Should I increase my pregabalin dose?
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
Claire_lc
in
Restless Legs Syndrome
6 months ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
6 months ago
Looking for some guidance please
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Bikerguy1
in
Restless Legs Syndrome
6 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
6 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
6 months ago
Plant Paradox Impact
Hi Guys As you know I am a newbie and have been actively pursuing ways to restore my health. There have been successes and failures but more successes so defo going in the right direction. I thought I would summarise where I am as I feel I have had a break through in the last month. I have had low
Hi Guys As you know I am a newbie and have been actively pursuing ways to restore my health. There have been successes and failures but more successes so defo going in the right direction. I thought I would summarise where I am as I feel I have had a break through in the last month. I have had low
Wwwdot
in
Pernicious Anaemia Society
1 year ago
help: suboxone
Hello, there’s good news and bad news. The good news is that I haven’t had RLS for months. The bad news is since taking Suboxone I’ve developed the most insane muscle pain I can barely function. To get out of bed I barely have the strength to roll my body, and even lifting my leg up, causes an immense
Hello, there’s good news and bad news. The good news is that I haven’t had RLS for months. The bad news is since taking Suboxone I’ve developed the most insane muscle pain I can barely function. To get out of bed I barely have the strength to roll my body, and even lifting my leg up, causes an immense
Marlayna67
in
Restless Legs Syndrome
6 months ago
gabapentin with buprenorphine
I’ve been off Pramipexole and on buprenorphine for 3 1/2 months. I’d like to try gabapentin again to see if I can wean off the buprenorphine (RLS has been good but the side effects are a minor hassle). I see from prior comments that it generally takes 3 weeks for gabapentin to take effect, and the
I’ve been off Pramipexole and on buprenorphine for 3 1/2 months. I’d like to try gabapentin again to see if I can wean off the buprenorphine (RLS has been good but the side effects are a minor hassle). I see from prior comments that it generally takes 3 weeks for gabapentin to take effect, and the
707twitcher
in
Restless Legs Syndrome
6 months ago
Chakra mat
HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?). I've had RLS since childhood, progressively worse through my life, worse with pregnancies, then much worse in my 50s. In desperation I searched the
HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?). I've had RLS since childhood, progressively worse through my life, worse with pregnancies, then much worse in my 50s. In desperation I searched the
Annie1963
in
Restless Legs Syndrome
6 months ago
Opiates
Hi for those who have tried 1st ,& 2nd line therapies and are now on an opiate which do you find is best for you and mention side effects if you have them . Has anyone had success with just Codien and if so what dose was needed. I am in the UK so not sure what they will prescribe here. I have done
Hi for those who have tried 1st ,& 2nd line therapies and are now on an opiate which do you find is best for you and mention side effects if you have them . Has anyone had success with just Codien and if so what dose was needed. I am in the UK so not sure what they will prescribe here. I have done
Mandytel
in
Restless Legs Syndrome
6 months ago
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