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Christopher
Hi there. Thank you for letting me join the group. 6 years ago I was diagnosed with stage 5 kidney disease and am on regular dialysis. I have since developed restless leg syndrome which has got steadily worse. Pramipexole was prescribed but honestly doesn't help much. As soon as I sit down to relax it
Hi there. Thank you for letting me join the group. 6 years ago I was diagnosed with stage 5 kidney disease and am on regular dialysis. I have since developed restless leg syndrome which has got steadily worse. Pramipexole was prescribed but honestly doesn't help much. As soon as I sit down to relax it
Migennes
in
Restless Legs Syndrome
6 months ago
Bfp at home many times, but extreme low beta hcg blood test and was worried much doubt from dr but then boom! 6 to 2000's
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
Flutterbby
in
Fertility Network UK
9 months ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
1 month ago
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What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
1 month ago
Side effects of Buprenorphine
Several persons on this site have already helped me but I want to ask the general following about the use of Buprenorphine for treatment of RLS. and its augmentation After testing in vain, pregabalin, oxycodone several other less well advertised RLS treatments I got agreement from my GP to try Buprenorphine
Several persons on this site have already helped me but I want to ask the general following about the use of Buprenorphine for treatment of RLS. and its augmentation After testing in vain, pregabalin, oxycodone several other less well advertised RLS treatments I got agreement from my GP to try Buprenorphine
davchar23
in
Restless Legs Syndrome
6 months ago
Opioids
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
RLSdaily
in
Restless Legs Syndrome
6 months ago
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Transitioning to Gabapentin Enacarbil
I need some advice when it comes to starting Horizant while moving away from Pramipexole. I've been on Pram for about 12 years and although it still works generally, it's getting less an less effective. So it's time to move on. Gabapentin Enacarbil (Horizant) is what I'm moving to. My question
I need some advice when it comes to starting Horizant while moving away from Pramipexole. I've been on Pram for about 12 years and although it still works generally, it's getting less an less effective. So it's time to move on. Gabapentin Enacarbil (Horizant) is what I'm moving to. My question
grizzly99
in
Restless Legs Syndrome
6 months ago
Waking from sleep with upper abdominal pain for hours at a time
Does anyone have experience of this? Any advice very welcome. I wake from sleep with a slight discomfort, it builds and builds until I have to stand up very straight just to get a tiny bit of relief. Crouching and slow shuffling around also helps very slightly but sitting or lying down is excruciating
Does anyone have experience of this? Any advice very welcome. I wake from sleep with a slight discomfort, it builds and builds until I have to stand up very straight just to get a tiny bit of relief. Crouching and slow shuffling around also helps very slightly but sitting or lying down is excruciating
Jeromekjerome
in
Acid Reflux Support
1 year ago
My hcg bloods are extremely low (6.34)
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Flutterbby
in
Fertility Network UK
9 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
2 months ago
Horizant
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
DocCookie
in
Restless Legs Syndrome
2 months ago
Low platelets
Hello and thanks to contributors for the all the past useful information and support. Very much appreciated. My GP has now asked me to give Pramipexole a try as both Gabapentin and Pregabalin seem to have caused an unacceptable reduction in platelets. The negative correlation is fairly conclusive.
Hello and thanks to contributors for the all the past useful information and support. Very much appreciated. My GP has now asked me to give Pramipexole a try as both Gabapentin and Pregabalin seem to have caused an unacceptable reduction in platelets. The negative correlation is fairly conclusive.
Johan10
in
Restless Legs Syndrome
6 months ago
Methadone
Hello, 3 days ago I started methadone. Started with 2.5 mg on the first night. It didn’t help my rls completely, so the next night I took a whole pill, 5 mg. From an rls perspective, working great. I am not getting breakthrough rls, which is awesome! But I am not sleeping well. I have many short
Hello, 3 days ago I started methadone. Started with 2.5 mg on the first night. It didn’t help my rls completely, so the next night I took a whole pill, 5 mg. From an rls perspective, working great. I am not getting breakthrough rls, which is awesome! But I am not sleeping well. I have many short
Lespenney
in
Restless Legs Syndrome
6 months ago
Does anyone have any direct experience of Targinact?
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Claire_lc
in
Restless Legs Syndrome
6 months ago
Ropinerol withdrawal.... what now?
So after 15 years I'm off Requip. I'm now 4 days in with zero meds for RLS. A few contradictions of how long it takes to fully leave your system, however, I was hoping that my RLS would magically disappear along with my meds. Unfortunately, thats not been the case. Cannabis didn't help, it just left
So after 15 years I'm off Requip. I'm now 4 days in with zero meds for RLS. A few contradictions of how long it takes to fully leave your system, however, I was hoping that my RLS would magically disappear along with my meds. Unfortunately, thats not been the case. Cannabis didn't help, it just left
Boofoo71
in
Restless Legs Syndrome
6 months ago
Oxycodone - the way forward or a dead end?
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
etchea33
in
Restless Legs Syndrome
6 months ago
Ropinirole vs Buprenorphine!
I had a phone call from 1 Dr. who told me that Ropinirole would cure my RLS and was annoyed that I wouldn't take them. He decided to get the head of the Surgery to phone me to try to put pressure on me ! I did say that the 10 mcg had helped me a little bit but I would like a stronger patch . A few day's
I had a phone call from 1 Dr. who told me that Ropinirole would cure my RLS and was annoyed that I wouldn't take them. He decided to get the head of the Surgery to phone me to try to put pressure on me ! I did say that the 10 mcg had helped me a little bit but I would like a stronger patch . A few day's
Danni54
in
Restless Legs Syndrome
6 months ago
medication timing???
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
Cookiebum24
in
Restless Legs Syndrome
2 months ago
RESTLESS LEGS SYN
hello everyone I first experienced RLS 40 years ago most GPs had no idea and prescribed sedatives which were totally wrong for this condition I have managed it through other things ie walking on cold floor massage and been successful 5O % of the time until recently and the symptoms have worsened …a
hello everyone I first experienced RLS 40 years ago most GPs had no idea and prescribed sedatives which were totally wrong for this condition I have managed it through other things ie walking on cold floor massage and been successful 5O % of the time until recently and the symptoms have worsened …a
2024legs
in
Restless Legs Syndrome
6 months ago
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