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Starting treatment
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
mfc86
in
CLL Support
2 years ago
Liver pain, elevated liver enzymes and ultrasound
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Iamsarah
in
British Liver Trust
2 years ago
REFERRED
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
lonmallin50
in
British Liver Trust
2 years ago
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For those who have beaten the odds and are surviving hepatocellular carcinoma.
Any pearls or tips from those who are beating the odds and surviving hepatocellular carcinoma? I was diagnosed 3 months ago and am currently on immunotherapy. I've tried not to get buried in the statistics regarding hepatocellular carcinoma. As I realize there are many who are beating the statistics
Any pearls or tips from those who are beating the odds and surviving hepatocellular carcinoma? I was diagnosed 3 months ago and am currently on immunotherapy. I've tried not to get buried in the statistics regarding hepatocellular carcinoma. As I realize there are many who are beating the statistics
RolloMay
Patient
in
Blue Faery Liver Cancer
2 years ago
Decompensated Cirrhosis and follow up consultant appointment for husband
Hi, I’ve been lurking for a while but this is my first post. My husband was in hospital in May 2021 after a variceal bleed, he was having tests done before this as they suspected Cirrhosis, and after admission he admitted he had alcohol problems, and they treated him with banding, and he had previously
Hi, I’ve been lurking for a while but this is my first post. My husband was in hospital in May 2021 after a variceal bleed, he was having tests done before this as they suspected Cirrhosis, and after admission he admitted he had alcohol problems, and they treated him with banding, and he had previously
Squirrel77
in
British Liver Trust
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
Fibroscan - Fibrosis F3
Hello one and all, I have just been diagnosed with F3 liver fibrosis today. I have had major issues in my life and hit the beer had resulting in damage to my liver. I have abstained now for just over 6 months and whilst I am not craving alcohol I do miss the occasional glass of wine when out with the
Hello one and all, I have just been diagnosed with F3 liver fibrosis today. I have had major issues in my life and hit the beer had resulting in damage to my liver. I have abstained now for just over 6 months and whilst I am not craving alcohol I do miss the occasional glass of wine when out with the
MadJackMcMad
in
British Liver Trust
2 years ago
Hi everyone
Hello everyoneMy other half was diagnosed with advanced decompensated liver cirrhosis earlier this month. He's in denial at the moment so I'm trying to learn about what will happen to him, what support there is available. He's not interested in visiting the doctor- he won't leave the house. I'm trying
Hello everyoneMy other half was diagnosed with advanced decompensated liver cirrhosis earlier this month. He's in denial at the moment so I'm trying to learn about what will happen to him, what support there is available. He's not interested in visiting the doctor- he won't leave the house. I'm trying
Stephsmumlou
in
British Liver Trust
2 years ago
Fluid
I have cirrhosis of the Liver I have just had another US Sulliance scan and it has shown fluid around my Liver Should I be worried because I don't see my Dr untill January 23
I have cirrhosis of the Liver I have just had another US Sulliance scan and it has shown fluid around my Liver Should I be worried because I don't see my Dr untill January 23
Williamsbluefamily
in
British Liver Trust
2 years ago
back in hospital
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
lonmallin50
in
British Liver Trust
2 years ago
Rheumatology visit. News to me! Biologics pathway - I'm on the last option!!! 😲😭
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
Moomin8
in
NRAS
2 years ago
After Fibroscan
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
Nip1
in
British Liver Trust
2 years ago
Any positive experiences with TIPSS
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
Crooktele79
in
British Liver Trust
2 years ago
Is gluten free food doing us more harm than good?
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
Moggiedee
in
IBS Network
2 years ago
Blood clot in portal vein
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
ballie52
in
British Liver Trust
2 years ago
being left behind
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hwalt90
in
British Liver Trust
2 years ago
Alcoholic liver disease is a strong predictor of colorectal polyps in liver transplant recipients
In January this year, following a routine blood test by my GP. It highlighted low ferritin levels. After having completed a Fit-Test (faecal haemoglobin test), blood was found in the sample. I later went and had a CT Colonography. This highlighted four polyps in my colon. After a lot of messing around
In January this year, following a routine blood test by my GP. It highlighted low ferritin levels. After having completed a Fit-Test (faecal haemoglobin test), blood was found in the sample. I later went and had a CT Colonography. This highlighted four polyps in my colon. After a lot of messing around
Richard-Allen
in
British Liver Trust
2 years ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
2 years ago
Fibroscan update
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Refs
in
British Liver Trust
2 years ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
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