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Low Dose Naltrexone (LDN)
Hi, this is my first starter post although I have replied to a few questions from others. After being run over by a car 40 years ago and suffering multiple skeletal fractures I have undergone 14 operations so far. Around 2019 I was further diagnosed with Fybromyagia. Multiple medicines later and serious
Hi, this is my first starter post although I have replied to a few questions from others. After being run over by a car 40 years ago and suffering multiple skeletal fractures I have undergone 14 operations so far. Around 2019 I was further diagnosed with Fybromyagia. Multiple medicines later and serious
Onceabiker
in
Fibromyalgia Action UK
4 months ago
Some hope!
LONG POST! One of the things to bear in mind with Tinnitus posts, threads and forums, as many have mentioned, is that they turn into an echo chamber of devastation. People searching for answers in desperation on what to some can be the worst time of their life. We search and search for answers to help
LONG POST! One of the things to bear in mind with Tinnitus posts, threads and forums, as many have mentioned, is that they turn into an echo chamber of devastation. People searching for answers in desperation on what to some can be the worst time of their life. We search and search for answers to help
Hopesforthefuture
in
Tinnitus UK
4 months ago
My Stem Cell Journey so far.
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Billarina
in
CLL Support
9 months ago
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Has any one used Carbocisteine Capsules?
Hello, has anyone used Carbocisteine Capsules to help with coughing and mucus problems with PSP? I searched in Health Unlocked and could see it used with Lung conditions and Heart problems but I don’t recall it being used on this site. Any comments on their use? Thank you
Hello, has anyone used Carbocisteine Capsules to help with coughing and mucus problems with PSP? I searched in Health Unlocked and could see it used with Lung conditions and Heart problems but I don’t recall it being used on this site. Any comments on their use? Thank you
Rose1sunflower
in
PSP Association
9 months ago
I just found out the cause of my autoimmune chronic pancreatitis and it’s not good. I have Sjögren’s syndrome.
it’s effecting my other organs too. I have osteoporosis, not from prednisone but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s
it’s effecting my other organs too. I have osteoporosis, not from prednisone but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s
Joanhappy21
in
Chronic Pancreatitis Support
5 months ago
lucrin injections v firmagon
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Brianne07
in
Advanced Prostate Cancer
9 months ago
Ginkgo Trial (winter update)
The story so far. Taking 3 x 30mg Ginkgo during the lighter months one day a week resulted in a relief of my mild, variable T the following day. For 5 or so hours in the afternoon. I have now established that the same happens during the darker days but it takes 2 days for the effect to happen. I put
The story so far. Taking 3 x 30mg Ginkgo during the lighter months one day a week resulted in a relief of my mild, variable T the following day. For 5 or so hours in the afternoon. I have now established that the same happens during the darker days but it takes 2 days for the effect to happen. I put
Ray200
in
Tinnitus UK
5 months ago
anyone used myovvii device ?
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
Virginia10
in
Endometriosis UK
5 months ago
weird prickling
hi everyone. Hope you all had a good Christmas. My doctor has been trying me on different medication to help with anxiety. It’s mainly in the mornings Im anxious. I’ve tried sertraline, which kept me awake and made me feel worse. Then they tried Mirtazapine, which seemed to help with sleep and the anxiety
hi everyone. Hope you all had a good Christmas. My doctor has been trying me on different medication to help with anxiety. It’s mainly in the mornings Im anxious. I’ve tried sertraline, which kept me awake and made me feel worse. Then they tried Mirtazapine, which seemed to help with sleep and the anxiety
Lakeshiker
in
Tinnitus UK
5 months ago
Dead down below. Asexual?
I am feeling a deep sense of loss, although maybe, or at least at one time, and maybe now, it may be what I want or perhaps need. For the last 30 years, I have had a very high libido, and while my partnered life has been vanilla, I had been curious about and interested in just about everything. Since
I am feeling a deep sense of loss, although maybe, or at least at one time, and maybe now, it may be what I want or perhaps need. For the last 30 years, I have had a very high libido, and while my partnered life has been vanilla, I had been curious about and interested in just about everything. Since
Hidden
in
Anxiety and Depression Support
5 months ago
Pain diminishing
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
MalloryMoss
in
PMRGCAuk
5 months ago
Tamoxifen v Acid Reflux
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Calamintha
in
My Breast Cancer Community
5 months ago
My 6 Month Lupron cost
No comment!!! 08/07/2023 Leuprolide Acetate injection Total charge $33,685.45 Discount $31,927.45 Plan rate $1,758.00 Other insurance $0.00 KP paid $0.00 Not covered $0.00 Deductible $0.00 Copay / Coinsurance $351.60 Your share $351.60
No comment!!! 08/07/2023 Leuprolide Acetate injection Total charge $33,685.45 Discount $31,927.45 Plan rate $1,758.00 Other insurance $0.00 KP paid $0.00 Not covered $0.00 Deductible $0.00 Copay / Coinsurance $351.60 Your share $351.60
Hidden
in
Advanced Prostate Cancer
10 months ago
Cancer Network interview of pharmacy expert re shortages of carboplatin and cisplatin; mitigation strategies
https://www.cancernetwork.com/view/pharmacy-expert-discusses-chemo-shortage-challenges-mitigation-strategies?utm_source=sfmc&utm_medium=email&utm_campaign=08092023_CN_JAN-23-ONV0207_eNL_%20#3%20Training%20Academy%20(2-2)&eKey=Z2FyeWpwOUBhb2wuY29t
https://www.cancernetwork.com/view/pharmacy-expert-discusses-chemo-shortage-challenges-mitigation-strategies?utm_source=sfmc&utm_medium=email&utm_campaign=08092023_CN_JAN-23-ONV0207_eNL_%20#3%20Training%20Academy%20(2-2)&eKey=Z2FyeWpwOUBhb2wuY29t
garyjp9
in
Advanced Prostate Cancer
10 months ago
Firmagon vs Lupron vs Orgovyxx
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
SilverSeppi
in
Advanced Prostate Cancer
10 months ago
Ant-inflammatory
I have chronic pancreatitis treated with Creon but I just discovered why and that I had additional issues. I has an MRI/MRCP, which disclosed I have 4 cysts on my pancreas and I have autoimmune cirrhosis. The cysts are just under a cc so nothing can be done but wait and watch. I wanted him to treat cirrhosis
I have chronic pancreatitis treated with Creon but I just discovered why and that I had additional issues. I has an MRI/MRCP, which disclosed I have 4 cysts on my pancreas and I have autoimmune cirrhosis. The cysts are just under a cc so nothing can be done but wait and watch. I wanted him to treat cirrhosis
Joanhappy21
in
Chronic Pancreatitis Support
6 months ago
how soon after stopping prog/estro did you get period?
Found out today that our first fet failed. I already took my progesterone shot and morning estrace today but will not take it tomorrow. Wondering, if you've had a fet that didn't work, when did you get your period after stopping progesterone and estrogen?
Found out today that our first fet failed. I already took my progesterone shot and morning estrace today but will not take it tomorrow. Wondering, if you've had a fet that didn't work, when did you get your period after stopping progesterone and estrogen?
Rjfguitfg
in
Fertility Network UK
4 months ago
Ginkgo trials - something different
I don't know if anyone is following my posts on Ginkgo, but if there be... Once a week I take 3 x 30mg the day before I would like a guaranteed (?) break from tinnitus for a few hours the afternoon of the following day. It didn't happen yesterday. Instead, it happened today. T in the morning (as usual
I don't know if anyone is following my posts on Ginkgo, but if there be... Once a week I take 3 x 30mg the day before I would like a guaranteed (?) break from tinnitus for a few hours the afternoon of the following day. It didn't happen yesterday. Instead, it happened today. T in the morning (as usual
Ray200
in
Tinnitus UK
6 months ago
Extreme fatigue. Any solution?
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
jeeves19
in
Cure Parkinson's
1 month ago
helvella - Thyroid Blog
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
helvella
Thyroid UK
in
Thyroid UK
1 month ago
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