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Stage 4 A Prostate cancer
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
SherryKahn
in
Advanced Prostate Cancer
2 months ago
Genetic diagnosis
Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a couple of years ago and they have found that I have two anomalies on gene SPG7. This means that my disability is more spastic based than ataxia.
Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a couple of years ago and they have found that I have two anomalies on gene SPG7. This means that my disability is more spastic based than ataxia.
ww-wibblywobbly
in
Ataxia UK
3 months ago
5 failed ET from first cycle. recurrent implantation failure.
I had 5 embryos as part of my first cycle, transferred 1 fresh and 2 single transfers and the last one a double transfer. All failed. My doctor has me on manufactured cycle for the last 3 and on steroid,antibiotics and low dose aspirin and did hcg fusion on the last 2. I am going to do another cycle
I had 5 embryos as part of my first cycle, transferred 1 fresh and 2 single transfers and the last one a double transfer. All failed. My doctor has me on manufactured cycle for the last 3 and on steroid,antibiotics and low dose aspirin and did hcg fusion on the last 2. I am going to do another cycle
Harvey123456
in
Fertility Network UK
3 months ago
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anyone else had genetic testing?
Hi well I’m back after a long break after previously having 2 BFN when we tried donor eggs with icsi. We’ve saved up again and decided to give it one last shot and this time the consultant recommended we try genetic screening before having any embryos implanted. Just wondered if there is anyone else
Hi well I’m back after a long break after previously having 2 BFN when we tried donor eggs with icsi. We’ve saved up again and decided to give it one last shot and this time the consultant recommended we try genetic screening before having any embryos implanted. Just wondered if there is anyone else
Miaow1975
in
Fertility Network UK
3 months ago
Does Immunotherapy cause Vasculitis?
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
luggsey
in
Vasculitis UK
3 months ago
BRCA genetic testing providers
I have signed up to take part in the NHS Jewish-BRCA screening programme https://nhsjewishbrcaprogramme.org.uk/ but I will not get the test or the results before the first round of my IVF starts next month. I only have 1 Jewish grandparent so my risks are low but not as low as non-Jewish person. My grandparent
I have signed up to take part in the NHS Jewish-BRCA screening programme https://nhsjewishbrcaprogramme.org.uk/ but I will not get the test or the results before the first round of my IVF starts next month. I only have 1 Jewish grandparent so my risks are low but not as low as non-Jewish person. My grandparent
Rachiebabe
in
Fertility Network UK
3 months ago
PGTA testing embryos made from donor eggs
Hello I appreciate there will be differing views and experiences with this. Has anyone PGTA tested their egg donation embryos? I have had 2 miscarriages and TFMR at 15 weeks (all own eggs) due to chromosomal issue that we didn't know about until we went for our NHS scan at 12 weeks. I will never forget
Hello I appreciate there will be differing views and experiences with this. Has anyone PGTA tested their egg donation embryos? I have had 2 miscarriages and TFMR at 15 weeks (all own eggs) due to chromosomal issue that we didn't know about until we went for our NHS scan at 12 weeks. I will never forget
Skittles11
in
Fertility Network UK
3 months ago
Please join the INHERIT study -
Join the
INHERIT Study
to help us better understand the genetic (or inherited) risk for lung cancer,
and what can be done for prevention and treatment of lung cancer.
Our goals are to learn more about:
-Inherited or genetic risk for developing lung cancer in certain people or families
Join the
INHERIT Study
to help us better understand the genetic (or inherited) risk for lung cancer,
and what can be done for prevention and treatment of lung cancer.
Our goals are to learn more about:
-Inherited or genetic risk for developing lung cancer in certain people or families
AmyKamp
Partner
in
Small Cell Lung Cancer Support
3 months ago
Please join INHERIT Study
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Miranda_GO2
Partner
in
Lung Cancer Support
3 months ago
When is genetic testing done?
Hello, I think my husband would like to do genetic testing and I am curious at what stage this is done? He is in the process of deciding on treatment and hopes to have a decision made within the next 2 weeks. We have talked to the surgeon oncologist already. We are waiting on a PSMA scan on Apr 24 and
Hello, I think my husband would like to do genetic testing and I am curious at what stage this is done? He is in the process of deciding on treatment and hopes to have a decision made within the next 2 weeks. We have talked to the surgeon oncologist already. We are waiting on a PSMA scan on Apr 24 and
EvFC
in
Advanced Prostate Cancer
3 months ago
Treatment resistance
I have had genetic testing done. I have tried almost 75% of meds listed that are supposed to help but they wear off after a few months. I am feeling hopeless. Anyone have a suggestion for treatment. I am in a coping skills class.
I have had genetic testing done. I have tried almost 75% of meds listed that are supposed to help but they wear off after a few months. I am feeling hopeless. Anyone have a suggestion for treatment. I am in a coping skills class.
April2024
in
Major Depressive Disorder (MDD) Support
3 months ago
Confused about folate
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
GW1000
in
Thyroid UK
3 months ago
Private genetic testing
Hi - please, does anyone know where I can go privately to be checked for familial hypercholesterolemia?
Hi - please, does anyone know where I can go privately to be checked for familial hypercholesterolemia?
Caringgirl1
in
Cholesterol Support
4 months ago
Link for the Nutritional Therapist/ Functional MP/ Genetics Webinar
Thyroid UK "Having Foresight Through Genetic Testing Webinar 2024" Melissa Cohen https://youtu.be/9ENkSMiqb-0
Thyroid UK "Having Foresight Through Genetic Testing Webinar 2024" Melissa Cohen https://youtu.be/9ENkSMiqb-0
TiggerMe
in
Thyroid UK
4 months ago
Tumors Shrinking!
Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four months, have an oncologist I just love (she's so thorough with everything and very kind and caring), and my treatment is working! I am on Ibrance and letrozole and in only 2 months majority of the tumors have shrunk in half
Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four months, have an oncologist I just love (she's so thorough with everything and very kind and caring), and my treatment is working! I am on Ibrance and letrozole and in only 2 months majority of the tumors have shrunk in half
monkeygirl62
in
SHARE Metastatic Breast Cancer
5 months ago
Multiple conditions leading to burnout
Hi everyone, Any constructive advice welcome. To give context, I have PCOS, endo, degenerative discs, lymphocytic colitis and my gynae now thinks I have adenomyosis too. I also suffer with frequent migraines. My consultant has recently advised I am likely to need a hysterectomy and has discussed injections
Hi everyone, Any constructive advice welcome. To give context, I have PCOS, endo, degenerative discs, lymphocytic colitis and my gynae now thinks I have adenomyosis too. I also suffer with frequent migraines. My consultant has recently advised I am likely to need a hysterectomy and has discussed injections
Devils_Advocate
in
Endometriosis UK
5 months ago
Just some new Information about AI
Came across this article a couple days ago. https://www.news-medical.net/news/20210924/Researchers-identify-two-subtypes-of-metastatic-prostate-cancer.aspx#:~:text=Building%20off%20of%20earlier%20studies%20that%20discovered%20clinically,into%20two%20types%20known%20as%20luminal%20and%20basal AI has
Came across this article a couple days ago. https://www.news-medical.net/news/20210924/Researchers-identify-two-subtypes-of-metastatic-prostate-cancer.aspx#:~:text=Building%20off%20of%20earlier%20studies%20that%20discovered%20clinically,into%20two%20types%20known%20as%20luminal%20and%20basal AI has
chefjlu
in
Advanced Prostate Cancer
5 months ago
Thyroid UK Webinar - Having foresight through genetic testing
Melissa Cohen, registered Nutritional Therapist BSc (Hons) and Functional Medicine Practitioner, will be talking about how to piece together parts of a jigsaw to understand what makes you thrive through genetic testing. If you can't make the webinar, don't worry, it will be recorded and you will be
Melissa Cohen, registered Nutritional Therapist BSc (Hons) and Functional Medicine Practitioner, will be talking about how to piece together parts of a jigsaw to understand what makes you thrive through genetic testing. If you can't make the webinar, don't worry, it will be recorded and you will be
lynmynott
Thyroid UK
in
Thyroid UK
5 months ago
Do you or someone you know have a diagnosis of Autosomal Recessive Spinocerebellar Ataxia Type-17?
If you or someone you know has a genetically confirmed diagnosis of Autosomal Recessive Spinocerebellar Ataxia Type-17 (SCAR17), you could take part in a new survey about starting a family. The charity Genetic Alliance UK, of which Ataxia UK is a member, are currently sharing a consultation survey
If you or someone you know has a genetically confirmed diagnosis of Autosomal Recessive Spinocerebellar Ataxia Type-17 (SCAR17), you could take part in a new survey about starting a family. The charity Genetic Alliance UK, of which Ataxia UK is a member, are currently sharing a consultation survey
Irmmy
in
Ataxia UK
5 months ago
Failed Pluvicto
Hello warriors, especially Tall Allen. I'm going on 6 years since Gleason 9 advanced metastatic diagnosis. Had a good run on Zytiga and all the usual other treatments, but just failed last ditch treatment of Pluvicto (after treatment 3). Did genetic testing and no significant mutations. My PSA is
Hello warriors, especially Tall Allen. I'm going on 6 years since Gleason 9 advanced metastatic diagnosis. Had a good run on Zytiga and all the usual other treatments, but just failed last ditch treatment of Pluvicto (after treatment 3). Did genetic testing and no significant mutations. My PSA is
jersy
in
Advanced Prostate Cancer
5 months ago
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