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After 4th round of LU-177, Started on Cabazitaxel. Advice please
Did a
genetic
test
, but nothing from that area indicated any other possible genes. Thanks
Did a
genetic
test
, but nothing from that area indicated any other possible genes. Thanks
bellyhappy
in
Advanced Prostate Cancer
2 years ago
Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome
We are meeting with a
Genetic
Councillor who will guide us on the appropriate
GENETIC
TEST
( whole exome sequencing) to confirm if he has indeed been misdiagnosed.
We are meeting with a
Genetic
Councillor who will guide us on the appropriate
GENETIC
TEST
( whole exome sequencing) to confirm if he has indeed been misdiagnosed.
Jen2803
in
Myasthenia Gravis Association
2 years ago
Tezepelumab/Spirometry with Reversibility
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
LottieB36
in
Asthma Community Forum
9 months ago
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Cardiff University School of Medicine are conducting a Study
Cardiff University School of Medicine, UK are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities Would you like you to contribute to valuable research? Do you want
Cardiff University School of Medicine, UK are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities Would you like you to contribute to valuable research? Do you want
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Genetic test result question
Fast forward to today when I received the results back from a COLOR
genetic
test
on a saliva sample. In this test they reported finding a CHEK2 mutation. I did the COLOR test as part of the Promise study. So the question is shouldn’t both genetic marker tests detect this mutation?
Fast forward to today when I received the results back from a COLOR
genetic
test
on a saliva sample. In this test they reported finding a CHEK2 mutation. I did the COLOR test as part of the Promise study. So the question is shouldn’t both genetic marker tests detect this mutation?
Bears_fan
in
Advanced Prostate Cancer
2 years ago
Starting phlebotomies soon but not sure if this is the right approach?
Hi all, I'm 65 and was diagnosed last summer via bone marrow biopsy and genetic testing as having JAK2 positive ET. I started taking hydroxyurea 3 times a week, and my platelets are now down into the 500s. I had an appointment last week with my hematologist/oncologist and brought to her attention that
Hi all, I'm 65 and was diagnosed last summer via bone marrow biopsy and genetic testing as having JAK2 positive ET. I started taking hydroxyurea 3 times a week, and my platelets are now down into the 500s. I had an appointment last week with my hematologist/oncologist and brought to her attention that
Maximo06
in
MPN Voice
1 year ago
Looks like lutetium is next for me (if I can get it)
Finished 6 cycles of chemo with Carboplatin added. Scans show mixed results. mipsma 2. Dr. Kwon is suggesting lutetium to push the cancer off the edge of the cliff. He’s suggesting to have it sooner rather than later. I have low tumor load. And Mets to Lymph nodes in pelvic region and subclavical. My
Finished 6 cycles of chemo with Carboplatin added. Scans show mixed results. mipsma 2. Dr. Kwon is suggesting lutetium to push the cancer off the edge of the cliff. He’s suggesting to have it sooner rather than later. I have low tumor load. And Mets to Lymph nodes in pelvic region and subclavical. My
mysticmini
in
Advanced Prostate Cancer
1 year ago
In despair
I’m 38, almost 39 and about to start my 5th ivf cycle. My husband and I had a huge row tonight about how we’ve waited too long to start our 6th round. July was our last egg collection (with transfers in between) and the next will be end of feb. He’s worried that my eggs will have deteriorated drastically
I’m 38, almost 39 and about to start my 5th ivf cycle. My husband and I had a huge row tonight about how we’ve waited too long to start our 6th round. July was our last egg collection (with transfers in between) and the next will be end of feb. He’s worried that my eggs will have deteriorated drastically
darkbuthappyplace
in
Fertility Network UK
1 year ago
Genetic test results
ugh my
genetic
test
results are in and I have to wait 2 weeks for the results why?? Ugg
ugh my
genetic
test
results are in and I have to wait 2 weeks for the results why?? Ugg
Sfqueen
in
Anxiety Support
2 years ago
Cardiff University School of Medicine are conducting a Study
Cardiff University School of Medicine are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities Would you like you to contribute to valuable research? Do you want to talk
Cardiff University School of Medicine are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities Would you like you to contribute to valuable research? Do you want to talk
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
GROWN MAN CRYING
TEST
TO SEE HOW TO TREAT ME ......ALL THIS MAKE ME FURIOUS I CANT BE THERE FOR MY FAMILY LIKE I SHOULD I FEEL LIKE A FAILURE MORE THAN ANYTHING .....SMH😥😥😢😢😢😭 LORD WHY????????
TEST
TO SEE HOW TO TREAT ME ......ALL THIS MAKE ME FURIOUS I CANT BE THERE FOR MY FAMILY LIKE I SHOULD I FEEL LIKE A FAILURE MORE THAN ANYTHING .....SMH😥😥😢😢😢😭 LORD WHY????????
OB73
in
Anxiety and Depression Support
2 years ago
advice needed
hello everyone i need your advice i just had my first miscarriage after our first ivf and Long story short after 7 years i immediately know that i want icsi because my husband progressive’s motility is low and my amh is 4.2 out of our ivf we had only 16 eggs although i had so many follicles and was
hello everyone i need your advice i just had my first miscarriage after our first ivf and Long story short after 7 years i immediately know that i want icsi because my husband progressive’s motility is low and my amh is 4.2 out of our ivf we had only 16 eggs although i had so many follicles and was
Micha-8
in
Fertility Network UK
1 year ago
How important is genetic testing
Should I get a
genetic
test
done to confirm the type of cancer I have. Thanks
Should I get a
genetic
test
done to confirm the type of cancer I have. Thanks
Islandboy2021
in
Advanced Prostate Cancer
2 years ago
Would you like to assist in a research Study?
Then you may be able to help and consider yourself eligible to take part in a one-to-one interview over the phone or via Zoom, whereby you will be invited to share your experience \ responsibilities upon receiving your
genetic
test
results.
Then you may be able to help and consider yourself eligible to take part in a one-to-one interview over the phone or via Zoom, whereby you will be invited to share your experience \ responsibilities upon receiving your
genetic
test
results.
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Would you like to assist in a research?
Then you may be able to help and consider yourself eligible to take part in a one-to-one interview over the phone or via Zoom, whereby you will be invited to share your experience \ responsibilities upon receiving your
genetic
test
results.
Then you may be able to help and consider yourself eligible to take part in a one-to-one interview over the phone or via Zoom, whereby you will be invited to share your experience \ responsibilities upon receiving your
genetic
test
results.
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 years ago
Genetic counseling & testing
Just completed six rounds of docetaxel+carboplatin last week and will be seeing my doctor at Mayo on March 30 for further scans to gauge progress and evaluate next steps. Meanwhile, my oncologist at MN Oncology has recommended that I do genetic counseling and further genetic and tumor testing. I am 43%
Just completed six rounds of docetaxel+carboplatin last week and will be seeing my doctor at Mayo on March 30 for further scans to gauge progress and evaluate next steps. Meanwhile, my oncologist at MN Oncology has recommended that I do genetic counseling and further genetic and tumor testing. I am 43%
Skifanatic
in
Advanced Prostate Cancer
1 year ago
Started Triplet Therapy this week, new doc, new (better) treatment plan!
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Gl448
in
Advanced Prostate Cancer
1 year ago
PSA rising…..Duke Champ?
In November I posted my concerns that my psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately, ct scans also showed spread in lymph nodes. I am certainly mCRPC now which answers my question from my last post. Also, I had a bladder tumor scraped via scope
In November I posted my concerns that my psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately, ct scans also showed spread in lymph nodes. I am certainly mCRPC now which answers my question from my last post. Also, I had a bladder tumor scraped via scope
SimplyT
in
Advanced Prostate Cancer
1 year ago
vADS presentation vs hEDS, especially on darker skin tones
I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio has confirmed generalised joint hypermobility at our initial meeting, given my medical history we’re having a more extensive examination next
I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio has confirmed generalised joint hypermobility at our initial meeting, given my medical history we’re having a more extensive examination next
Buffstera
in
Ehlers-Danlos Support UK
1 year ago
Acalabrutinib.. neutropenia and ? Once daily vs twice ?
Would love feedback re my pre Acala bad symptoms returning in just 5 days off of med. my FISH
test
showed no
genetic
abnormalities. Also feedback on once a day Acala. Thank you
Would love feedback re my pre Acala bad symptoms returning in just 5 days off of med. my FISH
test
showed no
genetic
abnormalities. Also feedback on once a day Acala. Thank you
Catlove71
in
CLL Support
2 months ago
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