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Cardiovascular issues
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
winfong
in
PMRGCAuk
4 months ago
First ever phlebitis diagnosis...a few questions
6 days ago, I had a tenderness to the side of my right calf. This has got better, but I have a different red patch, which is very tender, and you can see a line going round from the patch (which is just above my inner ankle) to the top of my foot. It's very painful to walk. So I got an urgent appt
6 days ago, I had a tenderness to the side of my right calf. This has got better, but I have a different red patch, which is very tender, and you can see a line going round from the patch (which is just above my inner ankle) to the top of my foot. It's very painful to walk. So I got an urgent appt
BFlying
in
Anticoagulation Support
4 months ago
Adalimumab and covid vaccine
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
Amb1xkr
in
NRAS
8 months ago
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Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
6 months ago
advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
8 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
5 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
8 months ago
Decision making
I am having a hard time justifying doing anything about my Afib since I feel really good most of the time. Even in Afib I'm pretty good except for the worrying and checking of my heart rate every little bit. I have recently backed out of an RF ablation and a Cryo ablation for fear of a poor outcome
I am having a hard time justifying doing anything about my Afib since I feel really good most of the time. Even in Afib I'm pretty good except for the worrying and checking of my heart rate every little bit. I have recently backed out of an RF ablation and a Cryo ablation for fear of a poor outcome
joyelane
in
AF Association
5 months ago
Hiccups update.
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
FoieGras
in
Cure Parkinson's
8 months ago
Murpheys LAw
I was diagnosed with Paroxysmal after a year of episodes getting longer and longer . I had a cardio version Sept then a very mild Afib that was controlled with Metoprolol in November. I am overdue now according to my tracking since last Nov (every 4-10 weeks) and I finally got my date for ablation
I was diagnosed with Paroxysmal after a year of episodes getting longer and longer . I had a cardio version Sept then a very mild Afib that was controlled with Metoprolol in November. I am overdue now according to my tracking since last Nov (every 4-10 weeks) and I finally got my date for ablation
Krissy55
in
Atrial Fibrillation Support
5 months ago
increased urination
I’ve been on levothyroxine 75 approx 4 years - suddenly developed symptoms of underactive thyroid and after blood tests GP increased levo to 100 - I now am needing to urinate far more frequently- has anyone else had increased weeing after meds increase please? Be grateful for any advice - many thanks
I’ve been on levothyroxine 75 approx 4 years - suddenly developed symptoms of underactive thyroid and after blood tests GP increased levo to 100 - I now am needing to urinate far more frequently- has anyone else had increased weeing after meds increase please? Be grateful for any advice - many thanks
Purplepuffin
in
Thyroid UK
5 months ago
Peginterferon and nightmares
Just wondering if anyone has experienced nightmares whilst take peginterferon alpha 2a. I have noticed some sleep disturbance and last week, my 8th injection, I was asked to increase dose to 90. My platelets had dropped since starting on 45 from 864 to 706 but still high. After my 2nd 90 dose I am experiencing
Just wondering if anyone has experienced nightmares whilst take peginterferon alpha 2a. I have noticed some sleep disturbance and last week, my 8th injection, I was asked to increase dose to 90. My platelets had dropped since starting on 45 from 864 to 706 but still high. After my 2nd 90 dose I am experiencing
Lyndjs
in
MPN Voice
5 months ago
PSA moving way too fast .
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
Bowmaster
in
Advanced Prostate Cancer
8 months ago
blood test results
many thanks for the replies . Is there a test for pernicious anaemia ?
many thanks for the replies . Is there a test for pernicious anaemia ?
Tattlee
in
Pernicious Anaemia Society
5 months ago
Coming off Amiodarone
After developing Afib (thanks to Covid) I was put on amiodarone, bisoprolol and edoxaban. A terrible two to three weeks followed without a wink of sleep getting the amiodarone into my system. I had a cardioversion a few months later (delayed thanks to doctors and nurses strikes). That worked and I felt
After developing Afib (thanks to Covid) I was put on amiodarone, bisoprolol and edoxaban. A terrible two to three weeks followed without a wink of sleep getting the amiodarone into my system. I had a cardioversion a few months later (delayed thanks to doctors and nurses strikes). That worked and I felt
JoDogBlue
in
Atrial Fibrillation Support
5 months ago
liver biopsy- what does it mean.
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
MouseAddams
in
Advanced Prostate Cancer
8 months ago
Confused about cancer
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
pussycat66
in
British Liver Trust
8 months ago
“Strategies for the Treatment of Parkinson’s Disease: Beyond Dopamine”
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
Gioc
in
Cure Parkinson's
8 months ago
Hyperplasia
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
Helliborous
in
Pernicious Anaemia Society
8 months ago
Had appointment with cardiologist- update
We had appointment today with cardiologist which we booked privately. In my previous post I said I’d update on how it went. The cardiologist has decided that he will put a heart rate monitor on mum for a week, and see what’s going on. I explained the current anxiety symptoms were so frequent now, like
We had appointment today with cardiologist which we booked privately. In my previous post I said I’d update on how it went. The cardiologist has decided that he will put a heart rate monitor on mum for a week, and see what’s going on. I explained the current anxiety symptoms were so frequent now, like
Nickybhf
in
AF Association
5 months ago
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