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Thoughts?
Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask
Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask
Etymolog
in
British Liver Trust
7 months ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
4 months ago
Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
7 months ago
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Gastro Appointment
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
Sophia1968
in
British Liver Trust
7 months ago
Getting tested after taking any supplements...
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
14 months post Successful Ablation & increasing Arrythmias.
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
kkatz
in
Atrial Fibrillation Support
4 months ago
Flare or Adrenal Crisis
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
Belfastman
in
PMRGCAuk
7 months ago
A return of the dreaded mongrel .......... ????? Part 2
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
BenHall1
in
Atrial Fibrillation Support
4 months ago
Should something be done with a “moderately high” ALP?
Good moring! I had my bloods drawn last week and both ALT and AST went back to normal. My GGT came down but not normal, and ALP stayed the same as three months ago at 177 It was previously 385. (here, the ULN is 122). I have been on Urso for nine months, but only on the optimal dose for four months
Good moring! I had my bloods drawn last week and both ALT and AST went back to normal. My GGT came down but not normal, and ALP stayed the same as three months ago at 177 It was previously 385. (here, the ULN is 122). I have been on Urso for nine months, but only on the optimal dose for four months
Gaspereaux
in
PBC Foundation
1 day ago
A quick update for those that remember my recent posts about the Ablation complications!
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
AmandaLouise77
in
Atrial Fibrillation Support
4 months ago
Tuesday's Tip
[i]
According to Dr. Jones' book sometimes people will stop taking their Urso because their liver function tests have returned to normal. If your liver enzymes have returned to the normal range it just means that the Urso is working. The PBC isn't cured - it is just controlled.
[/i] [i]
We don't
[i]
According to Dr. Jones' book sometimes people will stop taking their Urso because their liver function tests have returned to normal. If your liver enzymes have returned to the normal range it just means that the Urso is working. The PBC isn't cured - it is just controlled.
[/i] [i]
We don't
DonnaBoll
Administrator
in
PBC Foundation
11 days ago
Bob @ 100
Hello group Some time since I posted as I had a flutter ablation 4 years ago and have had no symptoms since. Recently I have started to get a high heart rate about 140 beats which I can control with Verapamil 120 mg taken as pip. which I was given after my flutter procedure, (out of date now but all
Hello group Some time since I posted as I had a flutter ablation 4 years ago and have had no symptoms since. Recently I have started to get a high heart rate about 140 beats which I can control with Verapamil 120 mg taken as pip. which I was given after my flutter procedure, (out of date now but all
bobpitt
in
Atrial Fibrillation Support
4 months ago
Nebivolol and cold toes/fingers?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
kitenski
in
Atrial Fibrillation Support
4 months ago
I am 53 and require an ICD
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
Pottsgene
in
Heart Rhythm Disorders Support
4 months ago
What to do?
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Wibble28
in
Lung Conditions Community Forum
4 months ago
atrial fibrillation then high heart rate
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
Dizzy3
in
Atrial Fibrillation Support
4 months ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
7 months ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
7 months ago
Supplements to help liver
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
Catsaresocute
in
British Liver Trust
7 months ago
Fibroscan
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
kingsnorth
in
PBC Foundation
7 months ago
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