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Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
2 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
2 months ago
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Interesting new targeted therapy trial
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
Best521
in
SHARE Metastatic Breast Cancer
2 months ago
new and looking for resources Stage 4 metastatic. Gleason 9
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
Sunnysailor
in
Advanced Prostate Cancer
5 months ago
Capivasertib, fulvestrant
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Hidden
in
SHARE Metastatic Breast Cancer
2 months ago
Trodelvy after one year update
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
2 months ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
2 months ago
Xpo1 significance
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
NewCll
in
CLL Support
2 months ago
Advice with Graves Disease
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
CharlieUK
in
Thyroid UK
5 months ago
Primary Peritoneal Cancer
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
Hockeymom52
in
My Ovacome
2 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
2 months ago
Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
7 months ago
high liver enzymes
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Dna4christ
in
Liver4Life
5 months ago
Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
4 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Intraductal Prostate Carcinoma
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
bdrakes
in
Advanced Prostate Cancer
2 months ago
InkMune clinical trial goes on: second cohort is being treated
In phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy In its announcement on Monday, INmune said it successfully completed nine INKmune administrations in the outpatient setting within the first cohort in the trial. None of the patients who have received INKmune so far have
In phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy In its announcement on Monday, INmune said it successfully completed nine INKmune administrations in the outpatient setting within the first cohort in the trial. None of the patients who have received INKmune so far have
Maxone73
in
Advanced Prostate Cancer
2 months ago
fatique
diagnosed Dec 2022 with stage IV advanced metastatic prostate cancer spread to most bones primarily spine and pelvis - pelvis area continues to be an issue for me. had 10 quick radiation sessions on some spinal drop tumours the Decatoxel x 10 rounds of chemo, ended May 2023 plus Firmagon (Degarelix
diagnosed Dec 2022 with stage IV advanced metastatic prostate cancer spread to most bones primarily spine and pelvis - pelvis area continues to be an issue for me. had 10 quick radiation sessions on some spinal drop tumours the Decatoxel x 10 rounds of chemo, ended May 2023 plus Firmagon (Degarelix
Nyon
in
Advanced Prostate Cancer
2 months ago
About ATR Inhibitors… I Have a Tier 1 ATM Frameshift Mutation is response better than Keytruda perhaps?
Started Chemotherapy yesterday with Cabazitoxel And Carboplatin For Liver Mets & Lung Nodules I have to have pathology on tissue done for second opinion as I’m not sure if they did a complete staining histology It Thankfully came back as pca Adenocarcinoma Still believe it seeded the liver
Started Chemotherapy yesterday with Cabazitoxel And Carboplatin For Liver Mets & Lung Nodules I have to have pathology on tissue done for second opinion as I’m not sure if they did a complete staining histology It Thankfully came back as pca Adenocarcinoma Still believe it seeded the liver
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
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