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My CLL journey with a bone marrow thingie and FCR thrown in.
Thursday morning, as instructed, I had to start my F=
Fludarabine
and C=Cyclophosphamide tablets. 16 pills between them plus an assortment of other tablets. Friday and Saturday same routine.
Thursday morning, as instructed, I had to start my F=
Fludarabine
and C=Cyclophosphamide tablets. 16 pills between them plus an assortment of other tablets. Friday and Saturday same routine.
Bribin
in
CLL Support
10 years ago
A shorter treatment plan???
Hi, I started FCR for cll earlier this year as my WBC was just rising so fast. Im only 45 so it was inevitable that i would need treatment at some point.Because i had lots of little masses my Onc thought it best to start a little early so they didnt become bulky. Also my submalinder glands were getting
Hi, I started FCR for cll earlier this year as my WBC was just rising so fast. Im only 45 so it was inevitable that i would need treatment at some point.Because i had lots of little masses my Onc thought it best to start a little early so they didnt become bulky. Also my submalinder glands were getting
grizzlebear
in
CLL Support
10 years ago
Fingers crossed!
Hi all .... just thought I would add my tuppenceworth and share my experience of CLL treatment. Diagnosed in Oct 2009 at age 47 with 'Watch & Wait' (lymphocyte count 16) ..... however by Jan 2011 my lymphocyte count was around 130 so was offered treatment on a Clinical Trial at Southampton General Hospital
Hi all .... just thought I would add my tuppenceworth and share my experience of CLL treatment. Diagnosed in Oct 2009 at age 47 with 'Watch & Wait' (lymphocyte count 16) ..... however by Jan 2011 my lymphocyte count was around 130 so was offered treatment on a Clinical Trial at Southampton General Hospital
Timobeanie
in
CLL Support
10 years ago
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Complete Remission!
I posted here some months ago when our world fell apart and a number of you lifted us and helped us to get our head around the shocking news. We then had the bombshell that no watch and wait, FCR was starting the following week... Well we are through the other side and on Wednesday we got the fantastic
I posted here some months ago when our world fell apart and a number of you lifted us and helped us to get our head around the shocking news. We then had the bombshell that no watch and wait, FCR was starting the following week... Well we are through the other side and on Wednesday we got the fantastic
Summer5
in
CLL Support
10 years ago
Headaches
Prior to having successful FCR treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the FCR treatment they disappeared. In December last year a CT Scan showed that the lymph nodes under my arms had enlarged and were just over 2 cm. Earlier this month the headaches
Prior to having successful FCR treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the FCR treatment they disappeared. In December last year a CT Scan showed that the lymph nodes under my arms had enlarged and were just over 2 cm. Earlier this month the headaches
Mick491
in
CLL Support
10 years ago
ASH 2013: Dr. Jeff Sharman Discusses FCR versus BR in CLL
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
Update on my status 3 month post chemo (FCR)- doing well - no malignant B cells in my MRD test
Had my 3 month post FCR visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last visit 3 months ago. I feel like I did 5 years ago and am in good health. I am an avid downhill skier and just completed a double black diamond skiing
Had my 3 month post FCR visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last visit 3 months ago. I feel like I did 5 years ago and am in good health. I am an avid downhill skier and just completed a double black diamond skiing
Musicguy
in
CLL Support
10 years ago
Diagnosed Dec 2013 I have been told I need to start FCR treatment; based on blood results and mild night sweats. Otherwise I feel fine.
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
romarin
in
CLL Support
10 years ago
my haematologist has suggested that they may split my treatment, anyone got thoughts/knowledge?
i.e. by giving me
Fludarabine
and Cyclophosphamide to reduce my leucocyte count before putting me on the Rituximab to reduce the possibility of a reaction to the Rituximab. Is this a recent consideration?
i.e. by giving me
Fludarabine
and Cyclophosphamide to reduce my leucocyte count before putting me on the Rituximab to reduce the possibility of a reaction to the Rituximab. Is this a recent consideration?
djgolding
in
CLL Support
11 years ago
1st Rituximab went like a dream
No reaction nor effects on the day. Last month's F&C brought WCC down from ~200 to ~7 so it was looking good and no need for an overnighter in hospital. Sat almost waiting for contraindications and was gratified to have none but an excellent service from the team made the day a semi-pleasurable sojourn
No reaction nor effects on the day. Last month's F&C brought WCC down from ~200 to ~7 so it was looking good and no need for an overnighter in hospital. Sat almost waiting for contraindications and was gratified to have none but an excellent service from the team made the day a semi-pleasurable sojourn
djgolding
in
CLL Support
10 years ago
I'm looking for resources re: when/if to stop FCR, what information should the patient discuss with the medical provider? Thank you!
LAinNYC
in
CLL Support
10 years ago
Cllcanada just posted trial commencing in Mass.USA of Ibrutinib + R v FCR. Can anyone answer the question 'What has happened to the Flair T
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
SimplyauburnUK
in
CLL Support
10 years ago
clinical trial done at MD Anderson on Cll patients giving high doses of Curcumin c3 complex and green tea extract. Input. Anyone?
Going to ask my Oncologist if I can do this on my own while having g fcr treatments.
Going to ask my Oncologist if I can do this on my own while having g fcr treatments.
becks1111
in
CLL Support
11 years ago
iwCLL 2013: Dr. Michael Hallek Discusses Clinical Trials in Germany versus the USA and BR versus FCR
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
bkoffman
CLL CURE Hero
in
CLL Support
11 years ago
Musicguy's finished 6 month's treatment with FCR
Thought I would give an update on my status, Chemo is done!!!! Completed 6 month's of FCR, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling
Thought I would give an update on my status, Chemo is done!!!! Completed 6 month's of FCR, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling
Musicguy
in
CLL Support
11 years ago
FCR versus BR in frontline CLL - Dr Sharman's comments on the upcoming German CLL10 ASH paper
Dr Sharman says in his latest blog "The abstract I have been most eager to review in this years ASH meeting details the results of the German CLL10 study in which FCR (
fludarabine
, cyclophosphamide, rituximab) is compared to BR (bendamustine, rituximab) in the front line management of patients with symptomatic
Dr Sharman says in his latest blog "The abstract I have been most eager to review in this years ASH meeting details the results of the German CLL10 study in which FCR (
fludarabine
, cyclophosphamide, rituximab) is compared to BR (bendamustine, rituximab) in the front line management of patients with symptomatic
AussieNeil
Partner
in
CLL Support
11 years ago
Pneumonia vaccines -- Is there any qualified report to show GPs CLL suffers need it every 5 years?
I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with success. Despite being told all my bloods are within the 'normal' range, 3 out of the last 4 years I have been admitted to hospital and treated with IV antibiotics for pneumonia and temps of 40.5 I originally received the pneumococcal
I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with success. Despite being told all my bloods are within the 'normal' range, 3 out of the last 4 years I have been admitted to hospital and treated with IV antibiotics for pneumonia and temps of 40.5 I originally received the pneumococcal
Mick491
in
CLL Support
11 years ago
Holiday Insurance - my recent finding
Folks, I know this comes up frequently so thought I'd share my experience. Background: CLL and Hypertension for me, treated with FCR second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip
Folks, I know this comes up frequently so thought I'd share my experience. Background: CLL and Hypertension for me, treated with FCR second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip
Oleboyredw-uk
in
CLL Support
11 years ago
I would be interested to hear if anyone else in the community has heard of any link between CLL and Osteopetrosis - "Marble Bone".
'Marble Bone' is usually a congenital problem as far as I am aware. Mine developed soon after CLL was diagnosed and midway through FCR treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment. I had assumed that my increasing
'Marble Bone' is usually a congenital problem as far as I am aware. Mine developed soon after CLL was diagnosed and midway through FCR treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment. I had assumed that my increasing
jiajia
in
CLL Support
11 years ago
Unusual and unpleasant Acyclovir (Zovirax) side effect mainly occurs in people with renal failure
cmpid=NLC|NSNS|2013-1010-GLOBAL&utm_medium=NLC What an unpleasant side effect for a prophylactic commonly recommended for patients receiving
fludarabine
(in FCR) and patients who have a higher risk of infection. Neil Picture: Who's the imposter?
cmpid=NLC|NSNS|2013-1010-GLOBAL&utm_medium=NLC What an unpleasant side effect for a prophylactic commonly recommended for patients receiving
fludarabine
(in FCR) and patients who have a higher risk of infection. Neil Picture: Who's the imposter?
AussieNeil
Partner
in
CLL Support
11 years ago
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