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Marketing authorisation application submitted to the European Medicines Agency for the use of ofatumumab for first line treatment
aid=78034&sid=2 Good to know that an alternative treatment may be available for those where
fludarabine
is inappropriate. Neil
aid=78034&sid=2 Good to know that an alternative treatment may be available for those where
fludarabine
is inappropriate. Neil
AussieNeil
Partner
in
CLL Support
11 years ago
Starting treatment soon. Have opted for Bendamustine (Levact) over Fludarabine + Rituximab. Any observations?
My consultant said she preferred to not recommend
Fludarabine
because of it's high toxicity and resultant long term side effects and particularly because she considered me to be "young" and fit. I am 64. The treatment regime is 2 days per month for 6 months.
My consultant said she preferred to not recommend
Fludarabine
because of it's high toxicity and resultant long term side effects and particularly because she considered me to be "young" and fit. I am 64. The treatment regime is 2 days per month for 6 months.
maureenmckeown
in
CLL Support
11 years ago
Has anyone had experience with cyclosporin A? My husband has pure red cell aplasia along w/cll & fcr is being suspended for cyclosporin.
LAinNYC
in
CLL Support
11 years ago
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FCR Round One Down - 5 to go....
Hello, A few people have kindly messaged or posted to ask how things are going with the FCR, so I thought I'd do a general post in response. Well - I'm on day 7 now, and feeling a bit beaten up due to a debilitating nausea starting on day 3, and only just beginning to wear off. I'm going to see my
Hello, A few people have kindly messaged or posted to ask how things are going with the FCR, so I thought I'd do a general post in response. Well - I'm on day 7 now, and feeling a bit beaten up due to a debilitating nausea starting on day 3, and only just beginning to wear off. I'm going to see my
jibs60
in
CLL Support
11 years ago
Who is Getting the IGHV (formerly known as IgVH) Mutational Status Tests in UK?
Hello all, I recently got my FISH results back and had for some reason assumed that I would also get IGHV mutationial status tested along with that as part of pre-treatment diagnostics. However, my consultant pointed that was not done as routine at my (non CLL specialist centre) hospital. My CD38
Hello all, I recently got my FISH results back and had for some reason assumed that I would also get IGHV mutationial status tested along with that as part of pre-treatment diagnostics. However, my consultant pointed that was not done as routine at my (non CLL specialist centre) hospital. My CD38
jibs60
in
CLL Support
11 years ago
Autoimmune haemolytic anaemia - AIHA
Hello, i am a new member and have found the discussions very helpful. I need some help please. I was diagnosed with CLL a year ago. I was put on steroid therapy as found to have haemolysis. In July I began FCR - the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin
Hello, i am a new member and have found the discussions very helpful. I need some help please. I was diagnosed with CLL a year ago. I was put on steroid therapy as found to have haemolysis. In July I began FCR - the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin
School3
in
CLL Support
11 years ago
Is Long-Term CLL Remission with FCR a Cure?
autoplay=1 "MD Anderson Cancer Center in Houston pioneered the use of
fludarabine
+ cyclophosphamide + rituximab (FCR) for the treatment of chronic lymphocytic leukemia (CLL). Now researchers have been analyzing the data of patients treated as far back as 1999, and the news--for many--is good.
autoplay=1 "MD Anderson Cancer Center in Houston pioneered the use of
fludarabine
+ cyclophosphamide + rituximab (FCR) for the treatment of chronic lymphocytic leukemia (CLL). Now researchers have been analyzing the data of patients treated as far back as 1999, and the news--for many--is good.
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
I am nearly 6 months after FCR. My WBC and ALC are just below specification.
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
keepfit123
in
CLL Support
11 years ago
Making Peace with FCR in the Squeezed Middle: Response to another very hopeful video from Steven Rosen
I've just been watching this, as posted across several CLL sites today, and by Kwenda on this site earlier today http://www.patientpower.info/video/an-expert-s-view-why-i-am-optimistic-about-the-future-of-cll-treatment/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-2013
I've just been watching this, as posted across several CLL sites today, and by Kwenda on this site earlier today http://www.patientpower.info/video/an-expert-s-view-why-i-am-optimistic-about-the-future-of-cll-treatment/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-2013
jibs60
in
CLL Support
11 years ago
Arzerra(R) (Ofatumumab) granted FDA 'Breakthrough Therapy Designation' for Previously Untreated CLL
) announced that the US Food and Drug Administration (FDA) has granted Breakthrough Therapy designation for Arzerra(r) (ofatumumab) in combination with chlorambucil for the treatment of patients with chronic lymphocytic leukemia (CLL) who have not received prior treatment and are inappropriate for
fludarabine
-based
) announced that the US Food and Drug Administration (FDA) has granted Breakthrough Therapy designation for Arzerra(r) (ofatumumab) in combination with chlorambucil for the treatment of patients with chronic lymphocytic leukemia (CLL) who have not received prior treatment and are inappropriate for
fludarabine
-based
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Any alternative Pneumonia vaccines?
Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week. Because of
Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week. Because of
Mick491
in
CLL Support
11 years ago
My husband's 2nd round of fcr was delayed again due to low hemoglobin but other blood values are within range. What could be causing this?
LAinNYC
in
CLL Support
11 years ago
More help / info please SLL
Hi all I am seeking some more advice from you good people regarding my SLL. On my first visit to hospital 3 weeks ago I was diagnosed with SLL following a biopsy on my lymph nodes under my arm. I then had a CT scan , and on my second visit (2weeks after my initial diagnosis), I was told that after assessing
Hi all I am seeking some more advice from you good people regarding my SLL. On my first visit to hospital 3 weeks ago I was diagnosed with SLL following a biopsy on my lymph nodes under my arm. I then had a CT scan , and on my second visit (2weeks after my initial diagnosis), I was told that after assessing
sparkio
in
CLL Support
11 years ago
just diagnosed
Ok, here goes. I have just returned home after my first CT scan revealed that all is not as I had hoped. I was diagnosed with SLL 2 weeks ago, and although that blew me away I now feel even worse. After my original diagnosis I was given an examination and given that I have no other symptoms (i.e. night
Ok, here goes. I have just returned home after my first CT scan revealed that all is not as I had hoped. I was diagnosed with SLL 2 weeks ago, and although that blew me away I now feel even worse. After my original diagnosis I was given an examination and given that I have no other symptoms (i.e. night
sparkio
in
CLL Support
11 years ago
Patient Power are now posting videos taken at this week's IWCLL meeting in Cologne
Andrew Schorr has just posted this message to the CLL ACOR group Greetings CLL friends: I am just back from two days at the International Workshop on CLL in Cologne, Germany. Brian Koffman was there too. Both of us shot interviews with world experts and those are starting to show up for you online.
Andrew Schorr has just posted this message to the CLL ACOR group Greetings CLL friends: I am just back from two days at the International Workshop on CLL in Cologne, Germany. Brian Koffman was there too. Both of us shot interviews with world experts and those are starting to show up for you online.
AussieNeil
Partner
in
CLL Support
11 years ago
For how long after FCR are you supposed to take Aciclovir and Cotrimoxazole tablets on a daily basis ?
keepfit123
in
CLL Support
11 years ago
Life after FCR.
After 3 years W&W I've just been told that I'll need treatment in the next year or so. (So far I have had no symptoms other than lymph node swellings and a rising blood count - no fatigue or night sweats) I know that everyone's experience with FCR is different but one thing that seems clear is that after
After 3 years W&W I've just been told that I'll need treatment in the next year or so. (So far I have had no symptoms other than lymph node swellings and a rising blood count - no fatigue or night sweats) I know that everyone's experience with FCR is different but one thing that seems clear is that after
Markdce
in
CLL Support
11 years ago
Prediction of poor outcome in CLL patients following first-line treatment with FCR
New data from the German CLL8 trial a few years ago looks at factors that make patients at high risk to fail and progress early after treatment with FCR... Full study... http://www.nature.com/leu/journal/v27/n9/pdf/leu2013190a.pdf
New data from the German CLL8 trial a few years ago looks at factors that make patients at high risk to fail and progress early after treatment with FCR... Full study... http://www.nature.com/leu/journal/v27/n9/pdf/leu2013190a.pdf
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
What questions do you want Andrew Schorr of Patient Power to ask CLL world experts at the International Workshop on CLL?
Andrew Schorr recently posted this request on the ACOR CLL list, which I've repeated here for your input. I'll then summarise your responses for Andrew. [i]Greetings fellow CLL'ers: As you know, I have been living in Barcelona for the past 14 months and will continue there for this next school year
Andrew Schorr recently posted this request on the ACOR CLL list, which I've repeated here for your input. I'll then summarise your responses for Andrew. [i]Greetings fellow CLL'ers: As you know, I have been living in Barcelona for the past 14 months and will continue there for this next school year
AussieNeil
Partner
in
CLL Support
11 years ago
If you are trisomy 12 and and then treated with FCR does the Trisomy12 disappear ?
keepfit123
in
CLL Support
11 years ago
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