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Fluid in my lungs and heart slightly enlarged
I have completed two courses of FCR but have been becoming quite breathless and with tightness in the lower neck/upper chest area. My consultant arranged for a chest x-ray which shows I have a little fluid in my lungs and a marginally enlarged heart. Could this have been caused by the FCR drugs or
I have completed two courses of FCR but have been becoming quite breathless and with tightness in the lower neck/upper chest area. My consultant arranged for a chest x-ray which shows I have a little fluid in my lungs and a marginally enlarged heart. Could this have been caused by the FCR drugs or
Haileybury
in
CLL Support
10 years ago
Got a question about test results for Susan Le Clair?
Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on understanding your blood test results. For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-immunoglobulin-complete-blood-counts-platelets-and-more
Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on understanding your blood test results. For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-immunoglobulin-complete-blood-counts-platelets-and-more
AussieNeil
Partner
in
CLL Support
10 years ago
Help, FCR OR BR?
My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now. I am 52 years old now and
My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now. I am 52 years old now and
flutterbye
in
CLL Support
10 years ago
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LATE ONSET NEUTROPENIA MAY BE A COMPLICATION OF FCR (or rituximab, obinutuzumab or other anti-CD20 monoclonal antibody infusions - Admin)
By the way, here are all the EHA abstracts from last week: http://www.ehaweb.org/congress-and-events/19th-congress/congress-program/abstracts-online/ The paper: LATE ONSET NEUTROPENIA IS A COMMON COMPLICATION OF
FLUDARABINE
, CYCLOPHOSPHAMIDE AND RITUXIMAB (FCR) THERAPY AND IS ASSOCIATED WITH SUBSTANTIAL
By the way, here are all the EHA abstracts from last week: http://www.ehaweb.org/congress-and-events/19th-congress/congress-program/abstracts-online/ The paper: LATE ONSET NEUTROPENIA IS A COMMON COMPLICATION OF
FLUDARABINE
, CYCLOPHOSPHAMIDE AND RITUXIMAB (FCR) THERAPY AND IS ASSOCIATED WITH SUBSTANTIAL
zevkalman
in
CLL Support
10 years ago
That's it then FCR here we come
WBC 118 RBC 3.34 HGb 110 (11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should
WBC 118 RBC 3.34 HGb 110 (11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should
Cammie
in
CLL Support
10 years ago
Here's my experience of Day 1 of my 4th FCR Treatment. Think W&W is challenging? Let me tell you the time I spent Waiting.....
CT Scan reveals before your next treatment (July 10). 15:45 I’m paged – Treatment Room 15:50 Pre-treatment – tubed-up - Saline, Pinton and more Saline by IV – 2x Paracetamol. 16:00 Tablet Induction - 9x CYCLOPHOSPHAMIDE (the C in FCR) on days 2, 3 and 4 (empty stomach, plenty of water), 7x
FLUDARABINE
CT Scan reveals before your next treatment (July 10). 15:45 I’m paged – Treatment Room 15:50 Pre-treatment – tubed-up - Saline, Pinton and more Saline by IV – 2x Paracetamol. 16:00 Tablet Induction - 9x CYCLOPHOSPHAMIDE (the C in FCR) on days 2, 3 and 4 (empty stomach, plenty of water), 7x
FLUDARABINE
Bribin
in
CLL Support
10 years ago
Husband's anemia (PRCA) interrupted FCR last fall; cyclosporin worked until it was discontinued. We're looking into next treatment steps...
any suggestions or guidance would be much appreciated!
any suggestions or guidance would be much appreciated!
LAinNYC
in
CLL Support
10 years ago
How do I go about getting a second expert opinion without upsetting my haematologist consultant?
I have previously posted on being concerned about still having lumps in my neck during FCR treatment. I have now had 5 of the 6 cycles of treatment and the last treatment at best only reduced the lumps marginally. Consultant (at Colchester General Hospital in Essex) thinks that I will just go back to
I have previously posted on being concerned about still having lumps in my neck during FCR treatment. I have now had 5 of the 6 cycles of treatment and the last treatment at best only reduced the lumps marginally. Consultant (at Colchester General Hospital in Essex) thinks that I will just go back to
yorkie19
in
CLL Support
10 years ago
ALC I am between 1st and delayed 2nd courses of FCR while waiting for my platelets to recover. I keep reading that ALC is what I should be c
Haileybury
in
CLL Support
10 years ago
Low platelet count. How long before this recovers ?
I started my first course of FC(without R for the first course) six weeks ago. WBC down from 139.3 to 14.4 which seems a good start. However, my platelet count is now 68 and my consultant wants this to recover before my next FCR and has put me on Folic acid tablets. Does anyone know how long this
I started my first course of FC(without R for the first course) six weeks ago. WBC down from 139.3 to 14.4 which seems a good start. However, my platelet count is now 68 and my consultant wants this to recover before my next FCR and has put me on Folic acid tablets. Does anyone know how long this
Haileybury
in
CLL Support
10 years ago
Who's on what anti-sickness drugs?
Hi guys, I have just finished FCR chemo 4 of 6. Every chemo has knocked me sideways on the 5 days i take "c+r" but the sickness has just got worse and worse. It was thought i would only have 4 sessions as treatment has gone so well but they now want me to complete the 6 as its hoped it will make me MRD
Hi guys, I have just finished FCR chemo 4 of 6. Every chemo has knocked me sideways on the 5 days i take "c+r" but the sickness has just got worse and worse. It was thought i would only have 4 sessions as treatment has gone so well but they now want me to complete the 6 as its hoped it will make me MRD
grizzlebear
in
CLL Support
10 years ago
On FCR and mum has shingles
The title says it all ! Im on round 4 and have a little neutropenia after my chemo's. My mum has shingles which she gets a lot. How long should i stay away for? she had it 2 weeks ago and her rash has just gone. I dont want to risk anything as i believe shingles is bad if your on Chemo.
The title says it all ! Im on round 4 and have a little neutropenia after my chemo's. My mum has shingles which she gets a lot. How long should i stay away for? she had it 2 weeks ago and her rash has just gone. I dont want to risk anything as i believe shingles is bad if your on Chemo.
grizzlebear
in
CLL Support
10 years ago
Rehearsing being 'In Remission'
Hello all, I just wanted to say: "I've finished chemo and I'm in remission". It's as if I need to practice saying that to remind me that there was an endpoint to the treatment, and that I can now use the word 'remission' to describe my CLL status. Another new word (and world) to learn to inhabit.
Hello all, I just wanted to say: "I've finished chemo and I'm in remission". It's as if I need to practice saying that to remind me that there was an endpoint to the treatment, and that I can now use the word 'remission' to describe my CLL status. Another new word (and world) to learn to inhabit.
jibs60
in
CLL Support
10 years ago
Anybody out there had 7 cycles of FCR treatment for CLL rather than the usual 6?
I have had 4 treatments but have concerns, shared by my consultant, that I will still have lumps in my neck after the 6th and final treatment. Wondering what other options there might be rather than just going back on watch and wait with lumps in my neck.
I have had 4 treatments but have concerns, shared by my consultant, that I will still have lumps in my neck after the 6th and final treatment. Wondering what other options there might be rather than just going back on watch and wait with lumps in my neck.
yorkie19
in
CLL Support
10 years ago
Is there anything that can be done if lumps in neck remain after 6 cycles of FCR treatment?
Due to have 5th cycle of FCR treatment next week and although lumps in neck are much reduced they are still significant in size : two of them about 2.5cm across, one on each side under the jaw line. Saw consultant yesterday and he agrees it is unlikely that the lumps will disappear even after the 6th
Due to have 5th cycle of FCR treatment next week and although lumps in neck are much reduced they are still significant in size : two of them about 2.5cm across, one on each side under the jaw line. Saw consultant yesterday and he agrees it is unlikely that the lumps will disappear even after the 6th
yorkie19
in
CLL Support
10 years ago
Had my first course of FCR with great blood results. Consultant tells me I have the 11Q variation. What will this mean in the future ? David
Haileybury
in
CLL Support
10 years ago
CLL Results - Blood - Full Blood Count - In order of significance
I have my blood test (taken at 7th May 2014) results. They are the first since my 2nd round of FCR on 17th April 2014. This intrigues me and I trust someone could enlighten me – Given that the consensus of contributors to this site is that the Absolute Lymphs merits exclusive attention, primarily – How
I have my blood test (taken at 7th May 2014) results. They are the first since my 2nd round of FCR on 17th April 2014. This intrigues me and I trust someone could enlighten me – Given that the consensus of contributors to this site is that the Absolute Lymphs merits exclusive attention, primarily – How
Bribin
in
CLL Support
10 years ago
Starting with FCR treatment tomorrow. Can I continue to enjoy a glass of red wine in the evenings .
Haileybury
in
CLL Support
10 years ago
Fertility after FCR
I am aware that most people with CLL are of an age where they are past thinking of having children but I was wondering if anyone with CLL who has had FCR has gone onto to have children naturally or with IVF? I have recently got married and having a baby 'was' our next dream until treatment of FCR was
I am aware that most people with CLL are of an age where they are past thinking of having children but I was wondering if anyone with CLL who has had FCR has gone onto to have children naturally or with IVF? I have recently got married and having a baby 'was' our next dream until treatment of FCR was
Fishface
in
CLL Support
10 years ago
Any CLL patients close to my age of 29?
I was diagnosed with CLL at the age of 27 in 2012 and have just commenced FCR April 2014. I was wondering if there are any CLL patients close to my age of 29 to share experiences as I am repeatedly told that I am very young to be diagnosed with CLL at this age as it is more commonly found in people in
I was diagnosed with CLL at the age of 27 in 2012 and have just commenced FCR April 2014. I was wondering if there are any CLL patients close to my age of 29 to share experiences as I am repeatedly told that I am very young to be diagnosed with CLL at this age as it is more commonly found in people in
Fishface
in
CLL Support
10 years ago
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