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"Reasonable" time off work
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
grizzlebear
in
CLL Support
8 years ago
Disappointing day...
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
jules_c
in
CLL Support
8 years ago
Just had staging scan after cycle 3 of FCR
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
Grannajan
in
CLL Support
8 years ago
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The end is in sight but I'm a blubbering wreck!
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Bethan49
in
CLL Support
8 years ago
FCR and nausea
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Kenn123
in
CLL Support
8 years ago
Question about needing bone marrow biopsy after treatment
I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help? His point
I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help? His point
brian_in_Seattle
in
CLL Support
8 years ago
FCR round 1
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Kenn123
in
CLL Support
8 years ago
FCR 6th Cycle and side effects ?
I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see him in 3 weeks time he said I will then have another BMB and CT scan to determine if the treatment has been successful. I am 63 years old and have
I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see him in 3 weeks time he said I will then have another BMB and CT scan to determine if the treatment has been successful. I am 63 years old and have
Penkman
in
CLL Support
8 years ago
Anti sickness medication
Hi, Can anyone help me. I've just started first round of FCR. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my husband is now going to pick up a prescription. Don't even know what it is for. Did any medication prove effective for anyone else? Any recommendations
Hi, Can anyone help me. I've just started first round of FCR. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my husband is now going to pick up a prescription. Don't even know what it is for. Did any medication prove effective for anyone else? Any recommendations
Kenn123
in
CLL Support
8 years ago
Length of FCR treatment
Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now. As far as I can remember it was written by an American female Cll
Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now. As far as I can remember it was written by an American female Cll
Kenn123
in
CLL Support
8 years ago
Life after fcr...what can we expect?
Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to do round 6 and me round 5... So at the end of this round what are the best possible outcomes that we can expect. What measures should we be
Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to do round 6 and me round 5... So at the end of this round what are the best possible outcomes that we can expect. What measures should we be
Bethan49
in
CLL Support
8 years ago
FLAIR Trial – Experiences post FCR – Recovery from Red Cell Cytopenia and Neutropenia
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
Ernest2
in
CLL Support
8 years ago
Second treatment looming
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
plett1234
in
CLL Support
8 years ago
About to start FCR
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Kenn123
in
CLL Support
8 years ago
ACP 196
I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
Kenn123
in
CLL Support
8 years ago
FCR for IGHV unmutated
Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment. It's only now I've started serious research into FCR and discovered difference between being mutated
Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment. It's only now I've started serious research into FCR and discovered difference between being mutated
Kenn123
in
CLL Support
8 years ago
About to start FCR
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
Kenn123
in
CLL Support
8 years ago
Shingles with CLL
Hi all Has anyone had shingles post FCR. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Hi all Has anyone had shingles post FCR. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Mick491
in
CLL Support
8 years ago
FCR vs imbruvica first line
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
nkferg
in
CLL Support
8 years ago
Pneumonian prevention
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Mick491
in
CLL Support
8 years ago
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