Greetings. Diagnosed in March 2016 with S4 PSA 658. Since diagnosis, have been through quarterly Lupron and Zometa treatments, 6 rounds of chemo which ended Halloween 2016 and saw the PSA hit a nadir of 1.59. Since then, it doubled and tripled until it hit 226 in May 2017 - so MO put me on Zytiga/Prednisone combo which started June 28. So far, PSA has hit 155 as of last Monday, and I go back in three weeks. The bone pain was completely gone within a week of starting Zytiga, but is creeping back. Initial scans in April 2016 showed extensive bone skeletal mets, from head to toe and I mean toes, fingers, cranium, etc. Organs were clear of mets, and the few nodes that were affected were shrunk to zilch by the Chemo or reduced to non-readable status with the CT scanner.
Flomax daily for urination, Ambien for sleep, high protein, low fat diet most of time, lots of water and tomato juice...overall feel ok but not great. Nice to meet everyone here, and hope to contribute to the community.