How are u all doing? As the title of my post say am about to start a new treatment on monday called beliumumab or belysta which is a biological treatment. On tuesday i was able to get an explanation of the use of the term chemotherapy in relation with lupus treatment. Good enough my mum was there to listen bcos she has this wierd attraction to the term chemo. I have had lots of treatments life mycophenlat, cyclophosphomide, azotiaprine, rhetoximab, iloprost, flolan, metrothriaxte. I feel uncomfortable with the word chemo . . I tried her to use infusion bcos immunsuppressant is a bit of a touge twister. But no, whenever i go into hospital for treatment the news is i ve gone 4 chemo. It drives me nuts.
The main reason for this post is about the belysta, pls how is it for those that have had it. I have accepted to enroll in an nhs register to monitor the progress and effect of the treatment. Pls any feedback will be appreciated.