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Pottasium Levels
I have posted on here before, as I was diagnosed with a B12 deficiency in 2011 - had every symptom under the sun: Brain fog, dizziness, fatigue, sore lips, sore tongue, burning sensation - pins and needles in hands and feet, really dry skin, memory problems, speech problems, hair falling out in shower
I have posted on here before, as I was diagnosed with a B12 deficiency in 2011 - had every symptom under the sun: Brain fog, dizziness, fatigue, sore lips, sore tongue, burning sensation - pins and needles in hands and feet, really dry skin, memory problems, speech problems, hair falling out in shower
Hayley31
in
Pernicious Anaemia Society
6 years ago
Epidural injections
My concern is the addition of these injections in addition to my current use of anti-inflammatory meds - daily prednisone, Celebrex,
Flector
patch, and the recent addition of Cimzia, a biologic for RA.
My concern is the addition of these injections in addition to my current use of anti-inflammatory meds - daily prednisone, Celebrex,
Flector
patch, and the recent addition of Cimzia, a biologic for RA.
CCannon48
in
NRAS
7 years ago
High Homocysteine levels
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Jan87
in
Pernicious Anaemia Society
7 years ago
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Could methotrexate actually be working???
Hi, Let me preface this by saying I am in the US, so I take 1mg of folic acid every day. Every US based website I have reviewed said that patients may begin to see improvements within 4-8 weeks, I know I have read on here somewhere between 8 & 12 weeks. I have taken my 4th week of pills this past Saturday
Hi, Let me preface this by saying I am in the US, so I take 1mg of folic acid every day. Every US based website I have reviewed said that patients may begin to see improvements within 4-8 weeks, I know I have read on here somewhere between 8 & 12 weeks. I have taken my 4th week of pills this past Saturday
Jesscap
in
NRAS
7 years ago
SO annoyed with myself.
I saw my GP this morning to tell him I had increased my Levo dose from 75mcg to 100mcg since the beginning of December as all through November my usual hypo symptoms had returned; fatigue, spaced out, foggy brain etc. During October I’d seen another GP to discuss my intrinsic factor antibodies and asked
I saw my GP this morning to tell him I had increased my Levo dose from 75mcg to 100mcg since the beginning of December as all through November my usual hypo symptoms had returned; fatigue, spaced out, foggy brain etc. During October I’d seen another GP to discuss my intrinsic factor antibodies and asked
Hyposucks
in
Thyroid UK
7 years ago
recommended to come here from pernicious anaemia community
hi I am new, my first post is on the pernicious anaemia community page. I tested positive for intrinsic factor antibodies. I am being treated for hypothyroid diagnosed in 2012 and I take 25mcg levo. a list of my symptoms are below. swelling in neck and in lymph glands difficult swallowing dry skin feeling
hi I am new, my first post is on the pernicious anaemia community page. I tested positive for intrinsic factor antibodies. I am being treated for hypothyroid diagnosed in 2012 and I take 25mcg levo. a list of my symptoms are below. swelling in neck and in lymph glands difficult swallowing dry skin feeling
LVO51
in
Thyroid UK
7 years ago
first post on healthunlocked - some low thyroid symptoms as well?
hi how often does b12 need to be injected if suffering symptoms of b12 deficiency. I tested positive for intrinsic factor antibodies and my haematologist has said b12 injections once every 3 months is enough. my first one was done june 2017 and gp surgery has had difficulty fitting me in for every 3
hi how often does b12 need to be injected if suffering symptoms of b12 deficiency. I tested positive for intrinsic factor antibodies and my haematologist has said b12 injections once every 3 months is enough. my first one was done june 2017 and gp surgery has had difficulty fitting me in for every 3
LVO51
in
Pernicious Anaemia Society
7 years ago
?RA
Hi. Newbie here. I've got a rheumatology appointment on Friday as GP suspects I have some sort of inflammatory arthritis, possibly RA (it runs in the family) My anti ccp is 198, rheumatoid factor positive and my ESR and CRP are four times what they should be. Can I ask how likely you think it'll be
Hi. Newbie here. I've got a rheumatology appointment on Friday as GP suspects I have some sort of inflammatory arthritis, possibly RA (it runs in the family) My anti ccp is 198, rheumatoid factor positive and my ESR and CRP are four times what they should be. Can I ask how likely you think it'll be
Mags22
in
NRAS
7 years ago
Excellent source of information
I have just come across a German website B12-Vitamin.org ( http://www.b12-vitamin.com/ ) It makes interesting reading and appears to be very well researched and referenced. It suggests that for normal maintenance a dose of 500micrograms daily by mouth will allow sufficient passive absorption to meet
I have just come across a German website B12-Vitamin.org ( http://www.b12-vitamin.com/ ) It makes interesting reading and appears to be very well researched and referenced. It suggests that for normal maintenance a dose of 500micrograms daily by mouth will allow sufficient passive absorption to meet
Dewbuc
in
Pernicious Anaemia Society
7 years ago
Help please
Hi I am from the Thyroid UK forum as I have untreated hypothyroidism. Could someone please advise if I need to push for more tests into pernicious anaemia. I have tested negative once for intrinsic factor antibodies but positive before that. A list of my symptoms from the B12 deficiency site are below
Hi I am from the Thyroid UK forum as I have untreated hypothyroidism. Could someone please advise if I need to push for more tests into pernicious anaemia. I have tested negative once for intrinsic factor antibodies but positive before that. A list of my symptoms from the B12 deficiency site are below
Klairey
in
Pernicious Anaemia Society
7 years ago
Pathology Lab refused to do MMA or recent B12 test - a bit of a moan, sorry!
Hi all, I hope you had a lovely Christmas. I had blood taken for an MMA test at the beginning of December, and blood for a B12 test taken on 19th December. I've been chasing both for a few days with the GP surgery, only to be told today that the Pathology lab refused to do both tests as they were considered
Hi all, I hope you had a lovely Christmas. I had blood taken for an MMA test at the beginning of December, and blood for a B12 test taken on 19th December. I've been chasing both for a few days with the GP surgery, only to be told today that the Pathology lab refused to do both tests as they were considered
HappyKatieA
in
Pernicious Anaemia Society
7 years ago
Really need advice on self injecting
Hi, I really need advice as I self inject due to the fact that my GP thinks that one injection every 3 months is enough, and that I don't need it anymore as I didn't test positive for intrinsic factor antibody and my levels are okay. What I do know is that my symptoms recur (badly) when I have not had
Hi, I really need advice as I self inject due to the fact that my GP thinks that one injection every 3 months is enough, and that I don't need it anymore as I didn't test positive for intrinsic factor antibody and my levels are okay. What I do know is that my symptoms recur (badly) when I have not had
Hayley31
in
Pernicious Anaemia Society
7 years ago
I'm new here - and glad I'm probably not crazy afterall
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Tyler3
in
Hughes Syndrome APS Forum
7 years ago
Really don't know what to do about B12
Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test positive for intrinsic factor antibody, they found no cause for my B12 deficiency. I had loading doses (6 injections over 2 weeks) and felt SO much
Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test positive for intrinsic factor antibody, they found no cause for my B12 deficiency. I had loading doses (6 injections over 2 weeks) and felt SO much
Hayley31
in
Pernicious Anaemia Society
7 years ago
GP appointment
Hi so I saw the GP tonight as an emergency appointment. He was appalled to see how low my vitamins and minerals are and that my endo could reduce my levo from 150mcg and 2 quarters of T3 to just 25mcg levo. I have got a blood test booked for Friday morning for thyroid at 8:30am since I have passed the
Hi so I saw the GP tonight as an emergency appointment. He was appalled to see how low my vitamins and minerals are and that my endo could reduce my levo from 150mcg and 2 quarters of T3 to just 25mcg levo. I have got a blood test booked for Friday morning for thyroid at 8:30am since I have passed the
Ally29
in
Thyroid UK
7 years ago
Doctor withdrawing treatment
I have been receiving injections for the last year after finding out i was deficient in b12. I have them every 8 weeks at the advice of a private haematologist because I struggled to function on every 12 weeks. I tested negative for crohns and caeliac disease and tested negative for the intrinsic factor
I have been receiving injections for the last year after finding out i was deficient in b12. I have them every 8 weeks at the advice of a private haematologist because I struggled to function on every 12 weeks. I tested negative for crohns and caeliac disease and tested negative for the intrinsic factor
Katiea100
in
Pernicious Anaemia Society
7 years ago
GP reluctant to give injections
Hi, I have been on regular b12 injections previously but when I moved to a different area of the country these were not continued. In the summer, feeling very tired and listless, I had a blood test in France and the b12 score was 112 so I supplemented with sub lingual b12. When I got back to the UK
Hi, I have been on regular b12 injections previously but when I moved to a different area of the country these were not continued. In the summer, feeling very tired and listless, I had a blood test in France and the b12 score was 112 so I supplemented with sub lingual b12. When I got back to the UK
carolen
in
Pernicious Anaemia Society
7 years ago
Hi everyone I'm new here, from NZ with ET JAK2+ plus low Von Willebrand Factor VIII
I live near Wellington, New Zealand (originally from the UK) and I was diagnosed with ET JAK2+ on 24 Nov 2017 after 3 months of waiting to find out, my GP only referred me in August when my platelets hit 780 and 620 (still 650 2 months ago and don't have latest result yet). Looking back through my blood
I live near Wellington, New Zealand (originally from the UK) and I was diagnosed with ET JAK2+ on 24 Nov 2017 after 3 months of waiting to find out, my GP only referred me in August when my platelets hit 780 and 620 (still 650 2 months ago and don't have latest result yet). Looking back through my blood
Wentry
in
MPN Voice
7 years ago
AIH & LFT's
Hi I'm new to here, so firstly hello to everyone. I recently was tested for Coeliac/B12 & intrinsic factor as I had been feeling very tired all the time and we have a family history of B12 deficiency, coeliac and migraines. All the results were clear however as part of the testing another result came
Hi I'm new to here, so firstly hello to everyone. I recently was tested for Coeliac/B12 & intrinsic factor as I had been feeling very tired all the time and we have a family history of B12 deficiency, coeliac and migraines. All the results were clear however as part of the testing another result came
RogC
in
British Liver Trust
7 years ago
New to RA starting methotrexate, so overwhelmed
Hi, I am 36 years old and was just diagnosed with RA this past Friday. My Rheumatoid Factor test came back high (204) and CRP was quite elevated. The anti-ccp test came back normal, and I have had no erosion. I started with some foot pain about a year ago, my son was about 8 weeks old, I thought nothing
Hi, I am 36 years old and was just diagnosed with RA this past Friday. My Rheumatoid Factor test came back high (204) and CRP was quite elevated. The anti-ccp test came back normal, and I have had no erosion. I started with some foot pain about a year ago, my son was about 8 weeks old, I thought nothing
Jesscap
in
NRAS
7 years ago
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