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Newly diagnosed, but long time sufferer
Dear all ... I hope you can all help to shed some light on the following. I recently had a raft of blood tests after many, many years of avoiding them ( chronic needle phobe, I'm afraid ). Blood tests revealed that both my haemoglobin and B12 levels were low. My B12 was at the bottom of the scale at
Dear all ... I hope you can all help to shed some light on the following. I recently had a raft of blood tests after many, many years of avoiding them ( chronic needle phobe, I'm afraid ). Blood tests revealed that both my haemoglobin and B12 levels were low. My B12 was at the bottom of the scale at
ITM69
in
Pernicious Anaemia Society
6 years ago
Non specific gastritis, I’m not really sure what that means! 😏
Hi everyone, I had a positive Intrinsic factor test 3 yrs ago along with a low b12 serum level, I was then diagnosed with PA (after many years of various symptoms) I had b12 loading doses then monthly injections ever since which eventually helped some of my symptoms. Recently I’ve had oesophageal and
Hi everyone, I had a positive Intrinsic factor test 3 yrs ago along with a low b12 serum level, I was then diagnosed with PA (after many years of various symptoms) I had b12 loading doses then monthly injections ever since which eventually helped some of my symptoms. Recently I’ve had oesophageal and
Sleepyfromwales
in
Pernicious Anaemia Society
6 years ago
Positive for parietal cell antibodies
Hi everyone, I'm 30 years old and have been seeking a reason for feeling incredibly ill with a whole range of symptoms for over a decade. After using Blue Horizon I found a few years ago that I had hashimotos and so commenced a long battle to get treatment. I am now on Levothyroxine but feeling no better
Hi everyone, I'm 30 years old and have been seeking a reason for feeling incredibly ill with a whole range of symptoms for over a decade. After using Blue Horizon I found a few years ago that I had hashimotos and so commenced a long battle to get treatment. I am now on Levothyroxine but feeling no better
Sick-and-Tired
in
Pernicious Anaemia Society
6 years ago
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Is pernicious anaemia likely?
Hi everyone, I'm 20 and I've been experiencing intense B12 deficiency symptoms since December, and have been housebound or bedbound due to muscle weakness and fatigue and inappropriate sinus tachycardia. I suffered extreme weight loss, and have a symptom list as long as my arm, all of which correlate
Hi everyone, I'm 20 and I've been experiencing intense B12 deficiency symptoms since December, and have been housebound or bedbound due to muscle weakness and fatigue and inappropriate sinus tachycardia. I suffered extreme weight loss, and have a symptom list as long as my arm, all of which correlate
rebecca98
in
Pernicious Anaemia Society
6 years ago
Anti VEGF help
Hi there, I wonder if anyone else has had lasting side affects after anti VEGF? During the first injections, I had a feeling of pressure in my right eye but no pain. In my left eye it hurt quite a bit. I was left with blood in the eye for around 5 days, as well as a headache for about a week. The second
Hi there, I wonder if anyone else has had lasting side affects after anti VEGF? During the first injections, I had a feeling of pressure in my right eye but no pain. In my left eye it hurt quite a bit. I was left with blood in the eye for around 5 days, as well as a headache for about a week. The second
bellapod77
in
Macular Society
6 years ago
Advise on MMA,INSTINCT FAGTOR blood test while I am on b12 1000 mcg sulibgual
Hello Members, I need a advise on blood tests. Finally my Gp agreed to do the following tests but I am on b12 methylcobalmin 1000 mcg subligual & 400 folic, is it best to stop b12 & give blood after a week or can I give my blood anytime ? Please advise. serum b12 serum folate Methymalonic acid intrinsic
Hello Members, I need a advise on blood tests. Finally my Gp agreed to do the following tests but I am on b12 methylcobalmin 1000 mcg subligual & 400 folic, is it best to stop b12 & give blood after a week or can I give my blood anytime ? Please advise. serum b12 serum folate Methymalonic acid intrinsic
Cooljay
in
Pernicious Anaemia Society
6 years ago
Unsure if this could be a thyroid issue and I should see an endocrinologist..?
hi all! I'm new here and wanted to get opinions on my test results. I originally was diagnosed with pernicious anemia after experiencing severe fatigue, shortness of breathe, weight gain, along with some other more minor symptoms. I experienced these symptoms for a year until they grew in severity to
hi all! I'm new here and wanted to get opinions on my test results. I originally was diagnosed with pernicious anemia after experiencing severe fatigue, shortness of breathe, weight gain, along with some other more minor symptoms. I experienced these symptoms for a year until they grew in severity to
hummingbird88
in
Thyroid UK
6 years ago
Getting my child diagnosed and treated without doctor
What tests do I need to do for my teenager to rule out pa and can I go ahead and treat her myself as per guidelines . This is my second post today I’m so fed up with incompetent doctors . She has all the symptoms I have and as I am treated with injections I need to know what I can get done as surgery
What tests do I need to do for my teenager to rule out pa and can I go ahead and treat her myself as per guidelines . This is my second post today I’m so fed up with incompetent doctors . She has all the symptoms I have and as I am treated with injections I need to know what I can get done as surgery
Andypandy30
in
Pernicious Anaemia Society
6 years ago
Help with understanding test results?
Hi everyone. In the last 18 months I have had many strange (and as yet undiagnosed) symptoms. Too many to list on here and not bore you all to death but my main worries are leg pains (intermittent claudication), leg weakness/pain, tingling hands/feet, fast heart rate when walking, left sided chest pain
Hi everyone. In the last 18 months I have had many strange (and as yet undiagnosed) symptoms. Too many to list on here and not bore you all to death but my main worries are leg pains (intermittent claudication), leg weakness/pain, tingling hands/feet, fast heart rate when walking, left sided chest pain
pj16
in
Pernicious Anaemia Society
6 years ago
Really upset and frustrated following a hematologist appointment--any ideas?
Hi all, I've posted on here several times after testing positive for the intrinsic factor antibody a month or so ago. Until then, I had had a year of general fatigue, then 3-4 months of increasingly bad fatigue, cracked corners of my mouth, shortness of breath, inability to exercise, forgetfulness/difficulty
Hi all, I've posted on here several times after testing positive for the intrinsic factor antibody a month or so ago. Until then, I had had a year of general fatigue, then 3-4 months of increasingly bad fatigue, cracked corners of my mouth, shortness of breath, inability to exercise, forgetfulness/difficulty
hummingbird88
in
Pernicious Anaemia Society
6 years ago
B12 oral spray
Hi all, could I please have some advice regarding the b12 subligal spray! I have started using this daily and having 4 weekly injection. I have pernicious anaemia which I tested positive for intrinsic factor. So my question is! Is the siblings spray effective? My b12 level atm is 415 at 4 weekly injections
Hi all, could I please have some advice regarding the b12 subligal spray! I have started using this daily and having 4 weekly injection. I have pernicious anaemia which I tested positive for intrinsic factor. So my question is! Is the siblings spray effective? My b12 level atm is 415 at 4 weekly injections
Amynic
in
Pernicious Anaemia Society
6 years ago
Advice Needed Please
Hi There I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic
Hi There I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic
joleen19832
in
Pernicious Anaemia Society
6 years ago
B12 management
With recent bloods of B12 showing 211 (200-) I have just seen gp and was told it was normal and did not require treatment. I had pdf with guidance and argued the point. Was told it had gone up from 133 (180-) 2 years ago and would take time. Advised supplements from Holland & Barrett. I advised I did
With recent bloods of B12 showing 211 (200-) I have just seen gp and was told it was normal and did not require treatment. I had pdf with guidance and argued the point. Was told it had gone up from 133 (180-) 2 years ago and would take time. Advised supplements from Holland & Barrett. I advised I did
LowB12
in
Pernicious Anaemia Society
6 years ago
Moving forward
Saw GP today & plans made: 1. Repeat bloods including intrinsic factor & parietal antibodies etc & look at renal function 2. Liver ultrasound to see if fatty liver 3. ENT referral to include thyroid scan...initially tried to pursuance me recent feeling of choking at night was related to weight, then
Saw GP today & plans made: 1. Repeat bloods including intrinsic factor & parietal antibodies etc & look at renal function 2. Liver ultrasound to see if fatty liver 3. ENT referral to include thyroid scan...initially tried to pursuance me recent feeling of choking at night was related to weight, then
LowB12
in
Thyroid UK
6 years ago
Is muscular pain and stiffness a symptom of PA?
Hi, I've just joined PA because my husband was diagnosed with PA about 2 weeks ago. At this stage we're hoping that it is just PA he has as his symptoms are not usual. He is suffering from a lot of stiffness and pain, mostly in his large muscles. This is very bad at times and at other times not so bad
Hi, I've just joined PA because my husband was diagnosed with PA about 2 weeks ago. At this stage we're hoping that it is just PA he has as his symptoms are not usual. He is suffering from a lot of stiffness and pain, mostly in his large muscles. This is very bad at times and at other times not so bad
LuceyLocket
in
Pernicious Anaemia Society
6 years ago
Newly diagnosed with pernicious anemia, still have unresolved symptoms
Hi everyone! I'm quite new here, and was just diagnosed with pernicious anemia (somewhat--more later) a month ago. I essentially had overwhelming fatigue for several months, to the point where I finally realized it must be a medical situation. When I went to the GP, she tested my B12 levels (as I'm
Hi everyone! I'm quite new here, and was just diagnosed with pernicious anemia (somewhat--more later) a month ago. I essentially had overwhelming fatigue for several months, to the point where I finally realized it must be a medical situation. When I went to the GP, she tested my B12 levels (as I'm
hummingbird88
in
Pernicious Anaemia Society
6 years ago
Medical record online.
Hope everyone is as well as can be😜 Just been checking my Medical record online and going through one letter my doctor wrote to I can’t remember who at this moment.Any way I noticed doctor ad put to ? That I was positive for intrinsic factor antibodies not sure what it is perhaps you kind people will
Hope everyone is as well as can be😜 Just been checking my Medical record online and going through one letter my doctor wrote to I can’t remember who at this moment.Any way I noticed doctor ad put to ? That I was positive for intrinsic factor antibodies not sure what it is perhaps you kind people will
Chance15
in
Pernicious Anaemia Society
6 years ago
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 • By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 • By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Skin patches, sublingual sprays etc. Do they work?
Hi I tested negative for intrinsic factor antibodies and my b12 is quite low (see profile for numbers), but I am Hashi's and not got the treatment for that quite right yet. I have some b12 deficient symptoms (possibly, could be the Hashi's perhaps). As more b12 won't do me any harm, and working on
Hi I tested negative for intrinsic factor antibodies and my b12 is quite low (see profile for numbers), but I am Hashi's and not got the treatment for that quite right yet. I have some b12 deficient symptoms (possibly, could be the Hashi's perhaps). As more b12 won't do me any harm, and working on
Laundretta
in
Pernicious Anaemia Society
6 years ago
Results back from 1st blood tests via Blue Horizon
Hi everyone I just received my blood results and wonder if someone can interpret them for me so I can have a discussion my GP on Friday. I have got a result review from the doctors at Blue Horizon but I really would like to hear what members say about them as I feel that you have more experience and
Hi everyone I just received my blood results and wonder if someone can interpret them for me so I can have a discussion my GP on Friday. I have got a result review from the doctors at Blue Horizon but I really would like to hear what members say about them as I feel that you have more experience and
Bellesbus
in
Thyroid UK
6 years ago
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