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Autoimmune gastritis Vs AMAG/PA
https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis that is 'where the patient produces antibodies that destroy either the Parietal Cells or Intrinsic Factor or both.' So is this very much different
https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis that is 'where the patient produces antibodies that destroy either the Parietal Cells or Intrinsic Factor or both.' So is this very much different
myownscientist
in
Pernicious Anaemia Society
2 years ago
Newly diagnosed possible Autoimmune gastritis and B12 deficiency
I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg hydroxocobalamin). My B12 was at 292 so a little above the NHS range but clearly deficient. I initially saw him to arrange an iron infusion for iron deficiency
I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg hydroxocobalamin). My B12 was at 292 so a little above the NHS range but clearly deficient. I initially saw him to arrange an iron infusion for iron deficiency
myownscientist
in
Pernicious Anaemia Society
2 years ago
Confused, again
So had bloods repeated on NHS. All except 4 came back, on my GP no reference ranges. Got print outs and have been checking every day for missing results. Just now found 2 more on my GP. , had been waiting on T3 vit D and IFA and TTG (coeliac). One says intrinsic factor ab screen test but no
So had bloods repeated on NHS. All except 4 came back, on my GP no reference ranges. Got print outs and have been checking every day for missing results. Just now found 2 more on my GP. , had been waiting on T3 vit D and IFA and TTG (coeliac). One says intrinsic factor ab screen test but no
Polo22
in
Pernicious Anaemia Society
2 years ago
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Any Advice on PA & B12 plus iron & ferritin
Hi I have Hypothyroidism and they have advised me to ask for your help . I will try & cut a long story short!! . Since 2018 I have had low Ferritin results quite often and have taken Ferrous fummerate for 6 months each time and then promptly ignored as problem solved . In December I had a blood test
Hi I have Hypothyroidism and they have advised me to ask for your help . I will try & cut a long story short!! . Since 2018 I have had low Ferritin results quite often and have taken Ferrous fummerate for 6 months each time and then promptly ignored as problem solved . In December I had a blood test
Spoticus
in
Pernicious Anaemia Society
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
Advice please on blood results RE: changing Levo to NDT
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood results…done in January! No thyroid Just realised they didn’t test Vit D but was taking better for you Vit d spray with K2 at the time… just trying their Vit d without K2 as had bad experience when trying
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood results…done in January! No thyroid Just realised they didn’t test Vit D but was taking better for you Vit d spray with K2 at the time… just trying their Vit d without K2 as had bad experience when trying
Blanche1960
in
Thyroid UK
2 years ago
News that worried us and studies that gave us hope (04/2022).
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
CSR and strabismus surgery. Plus benefits of CBD for CSR
Hi guys I was recommended for strabismus surgery.. they said it was I was a great candidate but it’s for both eyes. I’ve never really had it as bad as others may have.. it’s slight but as I’ve gotten older it’s starting to get worse. I’m also a lucky enough to have CSR and I’m curious if anybody has
Hi guys I was recommended for strabismus surgery.. they said it was I was a great candidate but it’s for both eyes. I’ve never really had it as bad as others may have.. it’s slight but as I’ve gotten older it’s starting to get worse. I’m also a lucky enough to have CSR and I’m curious if anybody has
T109
in
Macular Society
2 years ago
Dear Gambit62, Sleepybunny, Rexz, Wedgewood, and Nackapan
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Hidden
in
Pernicious Anaemia Society
2 years ago
IFA & PCA blood tests
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
ATS1304
in
Pernicious Anaemia Society
2 years ago
Changing result for intrinsic factor antibody blood test
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Aumshantii
in
Pernicious Anaemia Society
2 years ago
Active VitaminB12 test ( £38.99) Active B12 test plus folate and Intrinsic Factor Antibodies £69.99
Just noticed above tests available through www.onlinedoctor.superdrug.com.
Just noticed above tests available through www.onlinedoctor.superdrug.com.
wedgewood
in
Pernicious Anaemia Society
2 years ago
News letter
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
Nackapan
in
Pernicious Anaemia Society
2 years ago
NHS and 2nd potential anti vegf
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Deepbluesea2022
in
Macular Society
2 years ago
Are my symptoms consistent with B12 deficiency especially burning sensation.
Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin sensations - feels like someone applied deep heat when I wasn't looking. I get these on my forearms, shoulders, patches on my upper back. They
Hi Hoping people can tell me if some weird symptoms I'm having are consistent with B12 deficiency. I'm in the UK London. I have started getting burning skin sensations - feels like someone applied deep heat when I wasn't looking. I get these on my forearms, shoulders, patches on my upper back. They
AlwaysTiredxxx
in
Pernicious Anaemia Society
2 years ago
Mornings
Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if they are tingling when I wake. I also still have puffiness on the outside of each ankle below the bone despite reducing steroids. I thought this
Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if they are tingling when I wake. I also still have puffiness on the outside of each ankle below the bone despite reducing steroids. I thought this
Pangolin43
in
PMRGCAuk
2 years ago
Normal blood levels mean anything?
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
Jjg42
in
Pernicious Anaemia Society
2 years ago
B12 deficiency, IFab negative, oral cyanocobalamine not working... what's the cause of deficiency?
Hi, I'm new here, just looking for any insight on my situation to try and figure out the cause of my b12 deficiency... For a little background: I'm 32, female. I first became aware of low b12 levels in mid 2020. I'd had 3 highly stressful years and was left feeling awful with anxiety, ear fullness
Hi, I'm new here, just looking for any insight on my situation to try and figure out the cause of my b12 deficiency... For a little background: I'm 32, female. I first became aware of low b12 levels in mid 2020. I'd had 3 highly stressful years and was left feeling awful with anxiety, ear fullness
Purpleturtle21
in
Pernicious Anaemia Society
2 years ago
Timeframe for antivegf injections…
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Deepbluesea2022
in
Macular Society
2 years ago
Anemia -- of some form??
B12 Levels very high -- Self Inflicted Supplements -- 1269 Red Blood Cells - Low MCH -- High Intrinsic Factor Negative Do I have some sort of Anemia???
B12 Levels very high -- Self Inflicted Supplements -- 1269 Red Blood Cells - Low MCH -- High Intrinsic Factor Negative Do I have some sort of Anemia???
DW0172
in
Pernicious Anaemia Society
2 years ago
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