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how did your GI/gut symptoms start?
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
3 months ago
vitamin D and magnesium deficiency from B12 loading doses
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
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please some help here, end stage liver cancer.
Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say that I found out that my dad was diagnosed with liver cancer today. (he was never a drinker or fat or what so ever, he is quite old though, he is
Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say that I found out that my dad was diagnosed with liver cancer today. (he was never a drinker or fat or what so ever, he is quite old though, he is
Jimmy777
in
British Liver Trust
6 months ago
Your stories shared
Hello everyone, I'm heading to San Francisco tomorrow to attend ASCO GI, the American Society of Clinical Oncology's Gastrointestinal Symposium focusing on GI cancers. Tomorrow night, Blue Faery is supporting a Continuing Medical Education (CME) program to help oncologists better understand HCC. Before
Hello everyone, I'm heading to San Francisco tomorrow to attend ASCO GI, the American Society of Clinical Oncology's Gastrointestinal Symposium focusing on GI cancers. Tomorrow night, Blue Faery is supporting a Continuing Medical Education (CME) program to help oncologists better understand HCC. Before
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
6 months ago
Energy-starved breast cancer cells consume their surroundings for fuel, research suggest
Perhaps another piece to the puzzle Home Oncology & Cancer Home Endocrinology & Metabolism JANUARY 16, 2024 Editors' notes Energy-starved breast cancer cells consume their surroundings for fuel, research suggests by Public Library of Science Breast cancer cells (in blue) eating extracellular
Perhaps another piece to the puzzle Home Oncology & Cancer Home Endocrinology & Metabolism JANUARY 16, 2024 Editors' notes Energy-starved breast cancer cells consume their surroundings for fuel, research suggests by Public Library of Science Breast cancer cells (in blue) eating extracellular
Scout4answers
in
Advanced Prostate Cancer
6 months ago
Cause of RLS - another step
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
RLSLearner
in
Restless Legs Syndrome
3 months ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
3 months ago
Iron Levels
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
Brufax
in
Restless Legs Syndrome
3 months ago
diverticulosis, itis, IBS etc
Hi everyone, I’ve taken note of discussions on here regarding gut issues vis a vis under active thyroid. Does levothyroxine of itself also cause gut issues? Many thanks.
Hi everyone, I’ve taken note of discussions on here regarding gut issues vis a vis under active thyroid. Does levothyroxine of itself also cause gut issues? Many thanks.
Calceolaria
in
Thyroid UK
3 months ago
Stopping iron supplement
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
giggy63
in
Thyroid UK
3 months ago
Ovary discomfort a month after failed ET.
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
Saskiahope
in
Fertility Network UK
3 months ago
Cribiform Prostate Cancer
I have some findings of cribiform cancer in my cancer biopsy. I will start treatment with ADT this mnonth and SBRT in April, 2024. Cribiform cancer in the literature is associated with significantly worse outcomes. Does anyone have experience with this?
I have some findings of cribiform cancer in my cancer biopsy. I will start treatment with ADT this mnonth and SBRT in April, 2024. Cribiform cancer in the literature is associated with significantly worse outcomes. Does anyone have experience with this?
Worked_the_World
in
Advanced Prostate Cancer
6 months ago
New blood test to detect neuroendocrine PCa
Summary: Researchers have developed a blood test that can reliably detect neuroendocrine prostate cancer and differentiate it from castration-resistant prostate cancer-adenocarcinoma (CRPC-adeno). https://www.sciencedaily.com/releases/2024/01/240110120221.htm
Summary: Researchers have developed a blood test that can reliably detect neuroendocrine prostate cancer and differentiate it from castration-resistant prostate cancer-adenocarcinoma (CRPC-adeno). https://www.sciencedaily.com/releases/2024/01/240110120221.htm
HikerWife
in
Advanced Prostate Cancer
6 months ago
Thank you everybody
Thank you everybody for bearing with me as I poured out my frustrations and anxieties with my current treatment plan over my last several posts, and for all your comments and advice. I called my MO's office this morning and left a voice mail detailing my declining status and the fact that I was done
Thank you everybody for bearing with me as I poured out my frustrations and anxieties with my current treatment plan over my last several posts, and for all your comments and advice. I called my MO's office this morning and left a voice mail detailing my declining status and the fact that I was done
skiingfiend
in
Advanced Prostate Cancer
6 months ago
Breathlessness
Hi I am currently on a cycle which involves two sessions at two weeks apart called TETP. So I am having etoposide and paclitaxel then cisplatin and paclitaxel two weeks later. I was wondering if anyone else has experienced a tight chest and breathlessness when having any of the above. Also I have developed
Hi I am currently on a cycle which involves two sessions at two weeks apart called TETP. So I am having etoposide and paclitaxel then cisplatin and paclitaxel two weeks later. I was wondering if anyone else has experienced a tight chest and breathlessness when having any of the above. Also I have developed
Swimbuddy
in
My Ovacome
6 months ago
Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
6 months ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
3 months ago
Chronic Pain,and fear.
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Breathless1943
in
Bowel Disease Support
3 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
3 months ago
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