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ferritin level and symptom question
I first posted a few months ago and based upon replies there were mixed feelings on whether my symptoms were truly RLS. Main complaints were a current/restless sensation in my legs and some twitching, more at night but also in the daytime if I was sitting for long. The symptom that was not fitting
I first posted a few months ago and based upon replies there were mixed feelings on whether my symptoms were truly RLS. Main complaints were a current/restless sensation in my legs and some twitching, more at night but also in the daytime if I was sitting for long. The symptom that was not fitting
Corolla1
in
Restless Legs Syndrome
2 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
2 months ago
RLS: nutrition matters, n = 1
Hi, just want to give an update on an experiment I've alluded to in posts on a few others' threads. I recently was able to wean completely off my pramipexole Rx over the course of about a month. (I had been taking it for 6-7 years, increasing over time b/c of augmentation, from .12 mg nightly to about
Hi, just want to give an update on an experiment I've alluded to in posts on a few others' threads. I recently was able to wean completely off my pramipexole Rx over the course of about a month. (I had been taking it for 6-7 years, increasing over time b/c of augmentation, from .12 mg nightly to about
HawkintheHills
in
Restless Legs Syndrome
2 months ago
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Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
2 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
2 months ago
GPs! Lack of knowledge.
Continuation of RLS with GP. Ferritin levels are 50, normal apparently! I take Ropinirole 4mg and 210mg iron tablets to try and raise Ferritin. The GP keep stating that my levels are normal and there was very little she could do or suggest…her knowledge was very limited. How would you continue this
Continuation of RLS with GP. Ferritin levels are 50, normal apparently! I take Ropinirole 4mg and 210mg iron tablets to try and raise Ferritin. The GP keep stating that my levels are normal and there was very little she could do or suggest…her knowledge was very limited. How would you continue this
Standing123
in
Restless Legs Syndrome
2 months ago
Food as medicine recommendations
I am educating myself via all the posts (thank you to all the regular posters). Is there a summary anywhere or a recommended book of how to ensure you are making the most of what you eat / don’t eat? For example, I just read that I need to eat steak and chips (great news) to help support optimal ferritin
I am educating myself via all the posts (thank you to all the regular posters). Is there a summary anywhere or a recommended book of how to ensure you are making the most of what you eat / don’t eat? For example, I just read that I need to eat steak and chips (great news) to help support optimal ferritin
N5girl
in
Thyroid UK
2 months ago
Iron ranges changed
Has anyone noticed Iron Levels changed? Mine went from range 30-100 to Range 13-100. My recent ferritin was Curious
Has anyone noticed Iron Levels changed? Mine went from range 30-100 to Range 13-100. My recent ferritin was Curious
Batty1
in
Thyroid UK
2 months ago
How to handle going off mirapex
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
lorri214
in
Restless Legs Syndrome
3 months ago
Burenorphine side effects
I am still struggling with nausea despite buprenorphine success on RLS front. In my daily diary today I wrote:- QUOTE I took a total of 400mcg buprenorphine yesterday (100 in morning, 100 in evening and 200mcg at bedtime using tablet cutter. Nausea side effect still a problem. I have stopped taking
I am still struggling with nausea despite buprenorphine success on RLS front. In my daily diary today I wrote:- QUOTE I took a total of 400mcg buprenorphine yesterday (100 in morning, 100 in evening and 200mcg at bedtime using tablet cutter. Nausea side effect still a problem. I have stopped taking
davchar23
in
Restless Legs Syndrome
3 months ago
Buprenorphine @ 2 weeks, issues
Hi, I've been on buprenorphine (suboxone 2.0mg as i'm in USA) for little more than 2 weeks. This is after augmenting on pramipexole, getting off that last year, and having some moderate but transient response to IV Iron 5 mos ago that has mostly gone away (despite my ferritin levels still being 300)
Hi, I've been on buprenorphine (suboxone 2.0mg as i'm in USA) for little more than 2 weeks. This is after augmenting on pramipexole, getting off that last year, and having some moderate but transient response to IV Iron 5 mos ago that has mostly gone away (despite my ferritin levels still being 300)
Avart
in
Restless Legs Syndrome
3 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
3 months ago
About to have my first Ferritin infusion
Hello from Tasmania, Australia. Briefly, I have had RLS for over 40 years. I am taking 2mg of Pramipexole and 1200 mg of Gabapentin per night which enables me to get a few hours of reasonable sleep . I also have to be careful not to sit for any length of time during the day or the RLS crank up. Tomorrow
Hello from Tasmania, Australia. Briefly, I have had RLS for over 40 years. I am taking 2mg of Pramipexole and 1200 mg of Gabapentin per night which enables me to get a few hours of reasonable sleep . I also have to be careful not to sit for any length of time during the day or the RLS crank up. Tomorrow
Sappington
in
Restless Legs Syndrome
3 months ago
any tips/advice
Hello, I’m new here. I came upon this sit while trying to search for ways to lower my thyroid antibodies as my latest bloods have come back abnormal. But was told that my iron, ferritin and vitamin d was ok. I was wondering if there was any advice on how to feel a bit healthier.? I was as diagnosed
Hello, I’m new here. I came upon this sit while trying to search for ways to lower my thyroid antibodies as my latest bloods have come back abnormal. But was told that my iron, ferritin and vitamin d was ok. I was wondering if there was any advice on how to feel a bit healthier.? I was as diagnosed
Margiepargie
in
Thyroid UK
3 months ago
Ferritin low again
Following an iron infusion my ferritin rose from 100 to 1052Three months later it was 250 and after another three months it is 64. T sats are 24% I take ferrous gluconate with effervescent vitamin c alternate days on an empty stomach and I follow the rules regarding fasting for bloods and ceasing iron
Following an iron infusion my ferritin rose from 100 to 1052Three months later it was 250 and after another three months it is 64. T sats are 24% I take ferrous gluconate with effervescent vitamin c alternate days on an empty stomach and I follow the rules regarding fasting for bloods and ceasing iron
Biscuitface
in
Restless Legs Syndrome
3 months ago
TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
3 months ago
Blood thinners and ferritin levels
For the last few months, I have been suffering from low ferritin levels and wondering if it could be caused by Edoxaban. I take a course of iron tablets, feel okay for a few weeks and then it starts again. Just wondering if anybody has also experienced this.
For the last few months, I have been suffering from low ferritin levels and wondering if it could be caused by Edoxaban. I take a course of iron tablets, feel okay for a few weeks and then it starts again. Just wondering if anybody has also experienced this.
Norfolk_spaniel
in
Atrial Fibrillation Support
3 months ago
FERRITIN LEVEL
What should my Ferritin level be to help with RLS? Secondly, can anybody recommend an iron supplement. I am anemic. Thank you
What should my Ferritin level be to help with RLS? Secondly, can anybody recommend an iron supplement. I am anemic. Thank you
Josana13
in
Restless Legs Syndrome
3 months ago
Injections
Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted all the time. I cant afford private treatment for B12. I already pay private consultants for menopause care so I just can't add on anymore.
Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted all the time. I cant afford private treatment for B12. I already pay private consultants for menopause care so I just can't add on anymore.
RedOne1
in
Pernicious Anaemia Society
3 months ago
Iron test
Which is the most important, serum iron or serum ferritin?
Which is the most important, serum iron or serum ferritin?
tagaxel
in
Restless Legs Syndrome
7 months ago
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