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Atypical PMG and Depo-Medrol
My rheumatologist says that I possibly have atypical PMG. My symptoms at their worst have been relatively minor. In mid-March I had a 120 mg shot of Depo-Medrol. It reduced my symptoms to almost nothing. They have since returned to a slight extent but are very tolerable. The rheumatologist has ordered
My rheumatologist says that I possibly have atypical PMG. My symptoms at their worst have been relatively minor. In mid-March I had a 120 mg shot of Depo-Medrol. It reduced my symptoms to almost nothing. They have since returned to a slight extent but are very tolerable. The rheumatologist has ordered
Donaloge
in
PMRGCAuk
2 years ago
Fragile skin on lower leg
Hi all, I have had PMR 8 years and am currently on 4/3 mg of Medrol. My skin on my legs from the knee down are very fragile and bruise and cut easily. I wear compression socks which helps but when taking them on and off I still bruise. I currently take 1000 mg of collagen. But I am wondering if there
Hi all, I have had PMR 8 years and am currently on 4/3 mg of Medrol. My skin on my legs from the knee down are very fragile and bruise and cut easily. I wear compression socks which helps but when taking them on and off I still bruise. I currently take 1000 mg of collagen. But I am wondering if there
smoothilly
in
PMRGCAuk
2 years ago
How long does Solu-Medrol depress the immune system?
Hi, just wondering if anyone knows the answer to this question…? I have been messaging my neuro about so many things lately with my medication change from Tysabri to Ocrevus and 5 days of Solu-Medrol so I thought I’d see if any of you knew. Thanks! Jennifer
Hi, just wondering if anyone knows the answer to this question…? I have been messaging my neuro about so many things lately with my medication change from Tysabri to Ocrevus and 5 days of Solu-Medrol so I thought I’d see if any of you knew. Thanks! Jennifer
Tuliplover
in
My MSAA Community
2 years ago
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Thank You Fam, I'm Home! :)
I received all of your "prayers, love and Bday Salutations" you guys bless my soul! The emergency was crowned; but my doctors are wonderful and because my syptoms and MS 15 was it. I went back for assessment really quickly. Being tired, I'm used too - but feeling like "Ivory Soap"was left on my face
I received all of your "prayers, love and Bday Salutations" you guys bless my soul! The emergency was crowned; but my doctors are wonderful and because my syptoms and MS 15 was it. I went back for assessment really quickly. Being tired, I'm used too - but feeling like "Ivory Soap"was left on my face
stepsforNeeC
in
My MSAA Community
3 years ago
Unfortunate News precipitated by rare side effect of Docetaxl
Hi, I am writing here on behalf of my father, @Dokalam2017 who was very active on this forum. He was diagnosed with Stage 4 Prostate cancer in June 2020 and started ADT (Arbiraterone + Degarelix (monthly) + Denosumab (Quarterly)) soon after. His cancer became Castration Resistant starting May 2021 (PSA
Hi, I am writing here on behalf of my father, @Dokalam2017 who was very active on this forum. He was diagnosed with Stage 4 Prostate cancer in June 2020 and started ADT (Arbiraterone + Degarelix (monthly) + Denosumab (Quarterly)) soon after. His cancer became Castration Resistant starting May 2021 (PSA
doklam2017
in
Advanced Prostate Cancer
3 years ago
Has anyone successfully used Dr. Peatfield´s Adrenal Fatigue protocol?
I have read several articles by Dr. P where he stresses that treating and optimising adrenal health is crucial before adding thyroid hormone. He recommends using glandulars or HC/prednisone (depending on how severe the condition is) for 8-12 weeks and then trying to wean off it and see if the thyroid
I have read several articles by Dr. P where he stresses that treating and optimising adrenal health is crucial before adding thyroid hormone. He recommends using glandulars or HC/prednisone (depending on how severe the condition is) for 8-12 weeks and then trying to wean off it and see if the thyroid
Hidden
in
Thyroid UK
3 years ago
Covid anyone?
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
TonyiaR7
in
My MSAA Community
3 years ago
Medrol Steroid POST-cryoablation
Hi all . . . any and all opinions appreciated . . . on 3 Nov 2021 I underwent cryoablation and a treatment of atrial flutter and paroxysmal AFIB. My 7 day wait period went GREAT, until the morning of Wed 10 Nov, I threw my lower back out. Naturally as many of you know I’m sure, you're discouraged form
Hi all . . . any and all opinions appreciated . . . on 3 Nov 2021 I underwent cryoablation and a treatment of atrial flutter and paroxysmal AFIB. My 7 day wait period went GREAT, until the morning of Wed 10 Nov, I threw my lower back out. Naturally as many of you know I’m sure, you're discouraged form
SanManChicago
in
AF Association
3 years ago
Positive vibes with less pain
Taking a different road today and going down the positive vibe road. Waited a week to make sure I wasn’t premature in my happiness. Went last Wednesday for bilateral fluoroscopy guided steroid L5 epidural for my back pain. I was definitely nervous but the physician doing the procedure was so nice
Taking a different road today and going down the positive vibe road. Waited a week to make sure I wasn’t premature in my happiness. Went last Wednesday for bilateral fluoroscopy guided steroid L5 epidural for my back pain. I was definitely nervous but the physician doing the procedure was so nice
Jmiller623
in
LUPUS UK
3 years ago
CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another hospital to see if she could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib
First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another hospital to see if she could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib
Noham027
in
CLL Support
3 years ago
How much prednisone should you take for adrenal fatigue?
I have seen many posts here by patients treated by Dr. P in the UK and who were told to take either prednisone or Nutri Adrenals Extra or both for the rest of their lives. From the posts I´ve read, it would seem they were prescribed a full replacement dose of pred (5 mg or more daily). I consulted a
I have seen many posts here by patients treated by Dr. P in the UK and who were told to take either prednisone or Nutri Adrenals Extra or both for the rest of their lives. From the posts I´ve read, it would seem they were prescribed a full replacement dose of pred (5 mg or more daily). I consulted a
Hidden
in
Thyroid UK
4 years ago
Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?
Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Biologic Infusions
Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Biologic Infusions
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Confused newbie...
August 2019, I suddenly with diffuse body pain (the most excruciating located at the base of my thumbs). I was transported to the ER. 3 times in 6 days, was treated with strong steroids (had a horrid reaction to 7 days of Dexamethazone), and simply continued with Diclofenac until February 2020. Was
August 2019, I suddenly with diffuse body pain (the most excruciating located at the base of my thumbs). I was transported to the ER. 3 times in 6 days, was treated with strong steroids (had a horrid reaction to 7 days of Dexamethazone), and simply continued with Diclofenac until February 2020. Was
CO_mtnLady
in
PMRGCAuk
4 years ago
Nasty side effects of 2nd Pfizer shot:
What I sent to CDC 03-19-2021 online via their VAERs form: Received 2nd Pfizer shot 2/25/2021. To stave off side effects, I took 2 Ibuprofen before bed. In the morning, I was more wobbly than usual, but could make it to the bathroom and return to bed. A couple of hours later I had chills, bladder was
What I sent to CDC 03-19-2021 online via their VAERs form: Received 2nd Pfizer shot 2/25/2021. To stave off side effects, I took 2 Ibuprofen before bed. In the morning, I was more wobbly than usual, but could make it to the bathroom and return to bed. A couple of hours later I had chills, bladder was
WildInMontana
in
My MSAA Community
3 years ago
Pred timing
Is it better to take Medrol at nighttime inside the time release capsules or in the morning? I had been taking at nighttime and after watching Dr Sarah Mackie’s recent lecture I have changed it to the morning. But am feeling stiffer and a bit more achy. She states that taking the prednisone in the morning
Is it better to take Medrol at nighttime inside the time release capsules or in the morning? I had been taking at nighttime and after watching Dr Sarah Mackie’s recent lecture I have changed it to the morning. But am feeling stiffer and a bit more achy. She states that taking the prednisone in the morning
kimsaunsc
in
PMRGCAuk
4 years ago
Officially tapering as of today~!
Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. In July of 2020 I got down to 8 mg of Medrol but started having blurriness in my right eye so went back up to 16 mg per day. Since November 2020 I've been on 12 Medrol per day along with Actemra. I had mentioned in a post
Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. In July of 2020 I got down to 8 mg of Medrol but started having blurriness in my right eye so went back up to 16 mg per day. Since November 2020 I've been on 12 Medrol per day along with Actemra. I had mentioned in a post
Grammy80
in
PMRGCAuk
4 years ago
More PT
Good morning to all my ms family. I pray everyone is doing as well as they can taming this monster named MS. I had a Neurologist appt Wednesday. I was having a little problem with major more than normal fatigue stopping my Gilyena to switch to Ocrevus. So he ordered a 3 day round of solumedrol and some
Good morning to all my ms family. I pray everyone is doing as well as they can taming this monster named MS. I had a Neurologist appt Wednesday. I was having a little problem with major more than normal fatigue stopping my Gilyena to switch to Ocrevus. So he ordered a 3 day round of solumedrol and some
Doubled51
in
My MSAA Community
4 years ago
Out of Remission. Starting over...
Hi everyone, Unfortunately after three months of remission I had a very bad flareup. The week before my husband and I were leaving for Maine (Sept) I decided to get a flu shot. Four days later while in Maine I started not to feel well. The usual PMR symptoms. I had no medication with me. My doctor
Hi everyone, Unfortunately after three months of remission I had a very bad flareup. The week before my husband and I were leaving for Maine (Sept) I decided to get a flu shot. Four days later while in Maine I started not to feel well. The usual PMR symptoms. I had no medication with me. My doctor
Marie1479
in
PMRGCAuk
4 years ago
Has anyone else noticed hormone requirement changing once you reach end-stage Hashimoto´s?
I expected to required T3 and T4 at this stage, but not only do I only seem to require T4, but also lower doses now than 20 years ago when I was diagnosed. Back then, an ultrasound showed my thyroid gland was of normal size, but that there was already extensive damage to the hormone-producing cells.
I expected to required T3 and T4 at this stage, but not only do I only seem to require T4, but also lower doses now than 20 years ago when I was diagnosed. Back then, an ultrasound showed my thyroid gland was of normal size, but that there was already extensive damage to the hormone-producing cells.
Hidden
in
Thyroid UK
4 years ago
I paid the doctor....now for your input!
First let me say my laptop is in the shape...I’m not too fast on the Ipad! The rheumatologist told me today that he wants me to stay on Actemra for another month before tapering. AND....he is going to switch me from prednisolone (Been on —solone for 15 months) to prednisone per day for this coming
First let me say my laptop is in the shape...I’m not too fast on the Ipad! The rheumatologist told me today that he wants me to stay on Actemra for another month before tapering. AND....he is going to switch me from prednisolone (Been on —solone for 15 months) to prednisone per day for this coming
Grammy80
in
PMRGCAuk
4 years ago
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