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True that!
How are you doing with your MS? 🤔 Mine stinks! Always stinks!🤣 Had Ocruvus on Monday, w/ solumedrol.. the reaction to it, hit me in the middle of Weds. I hurt soooooo bad😭😭 I can hardly turn my neck! I so hate steroids!! Nough bout me! Tell me about you! 🤗💕🌠
How are you doing with your MS? 🤔 Mine stinks! Always stinks!🤣 Had Ocruvus on Monday, w/ solumedrol.. the reaction to it, hit me in the middle of Weds. I hurt soooooo bad😭😭 I can hardly turn my neck! I so hate steroids!! Nough bout me! Tell me about you! 🤗💕🌠
Jesmcd2
CommunityAmbassador
in
My MSAA Community
3 years ago
Late Christmas wishes.
Merry Christmas wishes to my loving MS family. My flare turned into a pretty bad relapse and pretty much put my pt on extremely light duty the last 2 weeks but I’m happy to say my neurologist finally ordered 3 days of solumedrol Wednesday so they got supplies to me Wednesday night and a nurse to the
Merry Christmas wishes to my loving MS family. My flare turned into a pretty bad relapse and pretty much put my pt on extremely light duty the last 2 weeks but I’m happy to say my neurologist finally ordered 3 days of solumedrol Wednesday so they got supplies to me Wednesday night and a nurse to the
Doubled51
in
My MSAA Community
3 years ago
Vasculitis in my Spine "Central nervous system Vasculitis"
Just about over a massive flare. It came on sudden. Had a terrible migraine for 3 days with pain in my lower back, discomfort in my spine and pain in my legs that felt like growing pains yet I'm an adult. It was there constantly and nagging. Just felt strange. Woke the Sunday morning with not being
Just about over a massive flare. It came on sudden. Had a terrible migraine for 3 days with pain in my lower back, discomfort in my spine and pain in my legs that felt like growing pains yet I'm an adult. It was there constantly and nagging. Just felt strange. Woke the Sunday morning with not being
Zuzu798
in
Behçet's UK
3 years ago
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Ocrevus
I started Solu Medrol 1000mg x 3 treatment on yesterday and will complete on 11/13. I’m getting ready to start Ocrevus after I was told Tecfidera is failing after 2 1/2mths, I developed 2 lesion one an active and other nonactive since Last MRI In Feb. As I was told the lesions possible developed during
I started Solu Medrol 1000mg x 3 treatment on yesterday and will complete on 11/13. I’m getting ready to start Ocrevus after I was told Tecfidera is failing after 2 1/2mths, I developed 2 lesion one an active and other nonactive since Last MRI In Feb. As I was told the lesions possible developed during
JSSimp
in
My MSAA Community
4 years ago
What was your Medrol protocol? Worried my doctor doesn't know what he is doing. Please help
Hi All, Sorry for the aggressive title but I am nervous because my doctor doesn't normally prescribe steroids and I have pressured him into allowing me to try them after 6 failed FET's with DONOR eggs. They were all perfect PGS tested embryos. Its been absolutely devastating and I will be trying with
Hi All, Sorry for the aggressive title but I am nervous because my doctor doesn't normally prescribe steroids and I have pressured him into allowing me to try them after 6 failed FET's with DONOR eggs. They were all perfect PGS tested embryos. Its been absolutely devastating and I will be trying with
Msze
in
Fertility Network UK
4 years ago
Medrol?
Hi Eveyone- Hoping to hear some success stories with FET while using Medrol? I have one embryo left. I had 2 failed transfers prior with perfect PGS tested embryos in July and September. I also have had a chemical pregnancy in the past with a FET that was not PGS tested. This is my last embryo and the
Hi Eveyone- Hoping to hear some success stories with FET while using Medrol? I have one embryo left. I had 2 failed transfers prior with perfect PGS tested embryos in July and September. I also have had a chemical pregnancy in the past with a FET that was not PGS tested. This is my last embryo and the
Msze
in
Fertility Network UK
4 years ago
Been to hormone specialist...not sure what to think?!
I am new here, but not new to thyroid problems. I was diagnosed with Hashimotos in 2001 after years of symptoms no doctor could explain: high blood pressure difficult to control even with medication, hair loss, high cholesterol, weight gain and fluid retention. Doctors suggested I was eating too much
I am new here, but not new to thyroid problems. I was diagnosed with Hashimotos in 2001 after years of symptoms no doctor could explain: high blood pressure difficult to control even with medication, hair loss, high cholesterol, weight gain and fluid retention. Doctors suggested I was eating too much
Annacat69
in
Thyroid UK
4 years ago
TPLL
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
Whatadayitwas
in
CLL Support
4 years ago
Trying to reduce Medrol
Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild compared to initial onset pain. Due to reduce again in a few days and wondering if I should go to 18 mg or down to 16? I keep reading 10% reduction
Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild compared to initial onset pain. Due to reduce again in a few days and wondering if I should go to 18 mg or down to 16? I keep reading 10% reduction
kimsaunsc
in
PMRGCAuk
4 years ago
Shortest Time Between Steroid Sets?
What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been lucky that they are still pretty mild (mostly just occasional tingling and altered sensation, with some swallowing difficulty and increased constipation
What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been lucky that they are still pretty mild (mostly just occasional tingling and altered sensation, with some swallowing difficulty and increased constipation
FuzzyBoots
in
My MSAA Community
4 years ago
Finally got home late last night!
And I don't even know what happened! Yikes! Except that I had 3days of prednisone, then saw my neurologist. Then the next day he wants me in the hospital.😐 He even got my daughter on a conference call to make me! Ugh! What's up with that? Anyway, another 2 days of Solu-Medrol, and an MRI. To show
And I don't even know what happened! Yikes! Except that I had 3days of prednisone, then saw my neurologist. Then the next day he wants me in the hospital.😐 He even got my daughter on a conference call to make me! Ugh! What's up with that? Anyway, another 2 days of Solu-Medrol, and an MRI. To show
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
saying no to methotrexate
having been dismissed as to young for pmr even though i have all the symptoms the rhumatologist has prescribed methotrexate for inflamatory arthritis but having done alot of research am i right in thinking its only to be used when all other treatments havent worked and it looks like predisone can be
having been dismissed as to young for pmr even though i have all the symptoms the rhumatologist has prescribed methotrexate for inflamatory arthritis but having done alot of research am i right in thinking its only to be used when all other treatments havent worked and it looks like predisone can be
snoopy29
in
PMRGCAuk
4 years ago
Experimence with treatment of pulmonary fibrosis?
Hi I am new her. I was diagnosed with Allergic Alveolitis in February and I am now being treated with prednisolone tablets 25 mg. In October the dose will be reduced to 14.5 mg under the condition that my desease is not progressing. So far the illness has been stabilised due to the prednisolone treatment
Hi I am new her. I was diagnosed with Allergic Alveolitis in February and I am now being treated with prednisolone tablets 25 mg. In October the dose will be reduced to 14.5 mg under the condition that my desease is not progressing. So far the illness has been stabilised due to the prednisolone treatment
Anemone1905
in
Lung Conditions Community Forum
4 years ago
Are you all hurting badly NOW???
I have not posted in a long time. I am 70 and have RA. I have been in pain so much these last few weeks because of 100% humidity and the barometer going up and down! Have you been hurting a lot lately?? My doctor called in Medrol dose Pk beside my other medication. What about you???
I have not posted in a long time. I am 70 and have RA. I have been in pain so much these last few weeks because of 100% humidity and the barometer going up and down! Have you been hurting a lot lately?? My doctor called in Medrol dose Pk beside my other medication. What about you???
Debb721
in
Cure Arthritis Community
4 years ago
A little sigh of relief ....
First of all, I'm so thankful for every one of you...I go to the 'almost ready to cave point' but all of your input kept me from accepting what I knew in my heart was wrong and made it really scary to go to bed tonight. I just got an email from the rheumatologist "who felt so unsettled he contacted the
First of all, I'm so thankful for every one of you...I go to the 'almost ready to cave point' but all of your input kept me from accepting what I knew in my heart was wrong and made it really scary to go to bed tonight. I just got an email from the rheumatologist "who felt so unsettled he contacted the
Grammy80
in
PMRGCAuk
4 years ago
Confused and angry... and scared...
I received an email from my rheumatologist this morning telling me that he does not believe the blurry vision is the result of GCA and [i]not to take the 20 mg the ophthalmologist told me to take and to take only 6mg per day...starting tomorrow because my labs were normal.[/i] That sounds familiar.
I received an email from my rheumatologist this morning telling me that he does not believe the blurry vision is the result of GCA and [i]not to take the 20 mg the ophthalmologist told me to take and to take only 6mg per day...starting tomorrow because my labs were normal.[/i] That sounds familiar.
Grammy80
in
PMRGCAuk
4 years ago
Feeling terrible and need advice on dose to go back up to
Hi my fellow PMR people. I know I have been remiss in sharing my story, and I've been thinking I will sit down and do that soon so anyone with the weird side effects I have had won't feel so weird :-). In the meantime, I have a taper problem and need your input please. I'll give you a nutshell version
Hi my fellow PMR people. I know I have been remiss in sharing my story, and I've been thinking I will sit down and do that soon so anyone with the weird side effects I have had won't feel so weird :-). In the meantime, I have a taper problem and need your input please. I'll give you a nutshell version
PMRinUSA
in
PMRGCAuk
4 years ago
Calendar blanks for tapering, if needed.
This may be old news to many but just in case~~ https://print-a-calendar.com/may-2020 You can advance and print whatever months you want. This is a link where you can print out blank calendar pages, which I definitely need to know how much Medrol to take when now that I'm doing the slooooooow taper~
This may be old news to many but just in case~~ https://print-a-calendar.com/may-2020 You can advance and print whatever months you want. This is a link where you can print out blank calendar pages, which I definitely need to know how much Medrol to take when now that I'm doing the slooooooow taper~
Grammy80
in
PMRGCAuk
4 years ago
I have a question, GCA type😎🤔😏
....and a little bit of 😔 I'm on 6 mg of Medrol per day, I was still having some intermittent jaw and temple discomfort so my rheumatologist sent me for bloodwork. My CRP and sed rate were not just good, they were awesome, frustratingly awesome. The Doctor emailed me with the news and said that 'sometimes
....and a little bit of 😔 I'm on 6 mg of Medrol per day, I was still having some intermittent jaw and temple discomfort so my rheumatologist sent me for bloodwork. My CRP and sed rate were not just good, they were awesome, frustratingly awesome. The Doctor emailed me with the news and said that 'sometimes
Grammy80
in
PMRGCAuk
4 years ago
My memory is on vacation~~
The better I feel, the more certain I am that my memory is a thing of the past or possibly it is just on vacation. I started doing some research and found this on the internet, which I copied and pasted. Undisclosed Side Effects of Actemra Can Be Severe Cognitive side effects such as memory loss and
The better I feel, the more certain I am that my memory is a thing of the past or possibly it is just on vacation. I started doing some research and found this on the internet, which I copied and pasted. Undisclosed Side Effects of Actemra Can Be Severe Cognitive side effects such as memory loss and
Grammy80
in
PMRGCAuk
4 years ago
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