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Factor Xa inhibitor
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How to fight for treatment?
I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe
I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe
Bumblebee02
in
Pernicious Anaemia Society
1 year ago
Antibodies Negative
Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor
Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor
Stepp
in
Pernicious Anaemia Society
1 year ago
Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Gecko22
in
Pernicious Anaemia Society
1 year ago
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B12 injections stopped by GP
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
ValentinoBlue
in
Pernicious Anaemia Society
1 year ago
Could my B12d be due to medication
After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but
After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but
woo79
in
Pernicious Anaemia Society
1 year ago
Intrinsic Factor Antibodies
Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references
Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references
smg1950
in
Pernicious Anaemia Society
1 year ago
Possible R.A ?
Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around
Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around
Valla81
in
NRAS
1 year ago
Tests booked. Do I need to come off medication?
Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,
Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,
sunflower022
in
Thyroid UK
1 year ago
Recently diagnosed - help request to understand test results
I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for
I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for
Slowrunner1208
in
Thyroid UK
1 year ago
Still in HF?
Hi all, First post. This is a great forum, very informative and supportive. Diagnosed with hypertension 18 months ago, usual ACE inhibitors took 6 months to lower BP. Then came AF, on Atenolol and Eliquis, but side effects, and GP switched me to Bisoprolol. Symptoms worsened and I ended up hospitalized
Hi all, First post. This is a great forum, very informative and supportive. Diagnosed with hypertension 18 months ago, usual ACE inhibitors took 6 months to lower BP. Then came AF, on Atenolol and Eliquis, but side effects, and GP switched me to Bisoprolol. Symptoms worsened and I ended up hospitalized
Lloyd2022
in
British Heart Foundation
1 year ago
I believe you.
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Tracking your B12 changes after injections? (Please share if so)
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Pante
in
Pernicious Anaemia Society
1 year ago
any advice please
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
Thrones12
in
Pernicious Anaemia Society
1 year ago
Another ignorant GP - "is PA forever?" he asked
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
HKAnne
in
Pernicious Anaemia Society
1 year ago
I’m new to this forum
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
Isla-baby
in
NRAS
1 year ago
Can I eat better to aid stomach acid?
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Mocha23
in
Pernicious Anaemia Society
1 year ago
RF, RA, Rayos & Pain
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
Jojosteeler
in
NRAS
1 year ago
Epigenetics
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
pjoshea13
in
Fight Prostate Cancer
1 year ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Joint pain
Hi Gp tested for Anca, rheumatoid factor, ESR, which is the best place to interpret these results?
Hi Gp tested for Anca, rheumatoid factor, ESR, which is the best place to interpret these results?
Mividauk2
in
Thyroid UK
1 year ago
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