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Bloods and medication ordered by Oral Medicine Consultant ...refused by GP.
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Minnskimoo
in
LUPUS UK
4 years ago
Pernicious Anemia with worsening neuropathy. I'm new here.
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
jimmel196
in
Pernicious Anaemia Society
4 years ago
B12 neuro folic acid
Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others say you don’t need it if your levels are within range So how on earth do you keep track etc if you b12 every other day and if that uses folate you
Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others say you don’t need it if your levels are within range So how on earth do you keep track etc if you b12 every other day and if that uses folate you
Milley2
in
Pernicious Anaemia Society
4 years ago
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Diagnostic tests
Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test just came back negative today. My B12 levels tend to be around 250. I also have Hashimotos Thyroiditis. My GP says she thinks I don't have PA and
Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test just came back negative today. My B12 levels tend to be around 250. I also have Hashimotos Thyroiditis. My GP says she thinks I don't have PA and
Auntbessy
in
Pernicious Anaemia Society
4 years ago
Doctors want to stop injections altogether
Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at home (for £9.15 (and rising) a pop), I’ve received a letter in the post from my GP... She has used this opportunity to write to me informing me
Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at home (for £9.15 (and rising) a pop), I’ve received a letter in the post from my GP... She has used this opportunity to write to me informing me
amydemi
in
Pernicious Anaemia Society
4 years ago
Pain
Have had pain in my hands and less so in my elbows and shoulders for several months. My GP has spoken on the phone to me and been given voltarol gel which helps a bit. Blood tests show raised inflammatory markers and rheumatoid factor. Have been referred to rheumatology as GP thinks rheumatoid arthritis
Have had pain in my hands and less so in my elbows and shoulders for several months. My GP has spoken on the phone to me and been given voltarol gel which helps a bit. Blood tests show raised inflammatory markers and rheumatoid factor. Have been referred to rheumatology as GP thinks rheumatoid arthritis
Dismal
in
NRAS
4 years ago
Question... on castor oil packs !?
Hi Ladies. Quick question. I’ve my 7th FET booked for Wednesday 9th of sept ( next wk) I’ve always suffered with thin lining, so this time I gave castor oil packs a go. I think it has made a big difference. I got to my 8mm at today’s scan ( woohoo 🙌) and I start progesterone tomorrow. QUESTION IS
Hi Ladies. Quick question. I’ve my 7th FET booked for Wednesday 9th of sept ( next wk) I’ve always suffered with thin lining, so this time I gave castor oil packs a go. I think it has made a big difference. I got to my 8mm at today’s scan ( woohoo 🙌) and I start progesterone tomorrow. QUESTION IS
TeenyTiny
in
Fertility Network UK
4 years ago
Where to next?
So I have hit a small impasse with my doctor and I'm not sure where to go next. To summarise where I am in my B12 journey, I was diagnosed B12 deficient almost 1 year ago, I was not given the Intrinsic Factor test before commencing loading doses. I was originally started on normal loading doses, until
So I have hit a small impasse with my doctor and I'm not sure where to go next. To summarise where I am in my B12 journey, I was diagnosed B12 deficient almost 1 year ago, I was not given the Intrinsic Factor test before commencing loading doses. I was originally started on normal loading doses, until
Wolf79
in
Pernicious Anaemia Society
4 years ago
Popular hypertension drugs don't increase risk of COVID-19 severity, fatality.
A new Northwestern Medicine study in mice found a widely used class of drugs to treat patients with hypertension, cardiovascular disease and diabetic kidney disease — many of whom are elderly — does not increase the risk of developing a severe and potentially fatal COVID-19 infection, as previously feared
A new Northwestern Medicine study in mice found a widely used class of drugs to treat patients with hypertension, cardiovascular disease and diabetic kidney disease — many of whom are elderly — does not increase the risk of developing a severe and potentially fatal COVID-19 infection, as previously feared
2greys
in
Lung Conditions Community Forum
4 years ago
Is it pernicious anemia?
Just confused over my blood results, my b12 went from 197-144 in just one week. My intrinsic factor was 2. I am currently on my third injection and not feeling much better. The nurse says I wasn’t absorbing b12 at all but the gp was very vague in diagnosis. I have a lot of symptoms of PA and have done
Just confused over my blood results, my b12 went from 197-144 in just one week. My intrinsic factor was 2. I am currently on my third injection and not feeling much better. The nurse says I wasn’t absorbing b12 at all but the gp was very vague in diagnosis. I have a lot of symptoms of PA and have done
Jemma28
in
Pernicious Anaemia Society
4 years ago
How long after injections are MMA and Homocysteine tests inaccurate?
I'm having a very hard time finding the answer to this, how long must I go without injections for an MMA or homocysteine test to be accurate? I've read don't supplement before an MMA test but for how long? Background: I just want to know if there's any chance I've invalidated my test results through
I'm having a very hard time finding the answer to this, how long must I go without injections for an MMA or homocysteine test to be accurate? I've read don't supplement before an MMA test but for how long? Background: I just want to know if there's any chance I've invalidated my test results through
nikaoo
in
Pernicious Anaemia Society
4 years ago
B12 deficiency follow up.
Last week I posted about a letter I received from my GP practice telling me I was ‘borderline’ deficient (my level was 121) Anyway, today I finally got to speak with the GP who wrote the letter. She told me that earlier this year, the guidelines changed. People with a reading <115ng/L will still get
Last week I posted about a letter I received from my GP practice telling me I was ‘borderline’ deficient (my level was 121) Anyway, today I finally got to speak with the GP who wrote the letter. She told me that earlier this year, the guidelines changed. People with a reading <115ng/L will still get
MissKota
in
Pernicious Anaemia Society
4 years ago
(new to forum) Struggling to diagnose/rule out Pernicious Anaemia
Hi all, I'm new to the forum (and am only in my early days of understanding PA) so apologies if my question is a bit basic. I have read through the guidelines on diagnosis for PA here http://pernicious-anaemia-society.org/diagnosis/ and can see it is hard to diagnose conclusively. I had the following
Hi all, I'm new to the forum (and am only in my early days of understanding PA) so apologies if my question is a bit basic. I have read through the guidelines on diagnosis for PA here http://pernicious-anaemia-society.org/diagnosis/ and can see it is hard to diagnose conclusively. I had the following
IA30
in
Pernicious Anaemia Society
4 years ago
Recent Bloods Help
Hello, I’m hypo after Graves’ disease (2003) currently taking 150mg Levo the last few years. My June 2020 bloods results below ( pic). I was feeling very tired and weight gain after complaining to GP he then referred to an Endo who was really understanding and did the relevant bloods to tick others
Hello, I’m hypo after Graves’ disease (2003) currently taking 150mg Levo the last few years. My June 2020 bloods results below ( pic). I was feeling very tired and weight gain after complaining to GP he then referred to an Endo who was really understanding and did the relevant bloods to tick others
yolobrass
in
Thyroid UK
4 years ago
Anyone having blood pressure issues following IV Avastin injections?
Hi everyone; I hope all is well. I'm nearly six weeks post first intravitreal(IV) Avastin injection and ten days post second IV Avastin injection. My BP is pretty high(160/90's) and nothing else could explain it other than perhaps some chronic dehydration. I was mildly elevated at times(pre Avastin therapy
Hi everyone; I hope all is well. I'm nearly six weeks post first intravitreal(IV) Avastin injection and ten days post second IV Avastin injection. My BP is pretty high(160/90's) and nothing else could explain it other than perhaps some chronic dehydration. I was mildly elevated at times(pre Avastin therapy
Edman777
in
Macular Society
4 years ago
Side effects of injection
Hi guys! Sorry for all the questions I just want to feel better! I got my first injection yesterday. I felt fine after and then a few hours later I was extremely dizzy. I had some lightheadedness as my main symptom to begin with but nothing like this. Is this a side effect of the injection? Does this
Hi guys! Sorry for all the questions I just want to feel better! I got my first injection yesterday. I felt fine after and then a few hours later I was extremely dizzy. I had some lightheadedness as my main symptom to begin with but nothing like this. Is this a side effect of the injection? Does this
CDALY474
in
Pernicious Anaemia Society
4 years ago
IGA nephropathy resistant proteinuria
Hey i posted here last year about my partner who got diagnosed out of blue with IGA nephropathy. Biopsy showed it can belong to good prognosis and medication with ACE inhibitors started soon after. He was on Quinapiril 10mg initialy and responded well to it after 5 months to bring down protein from 1
Hey i posted here last year about my partner who got diagnosed out of blue with IGA nephropathy. Biopsy showed it can belong to good prognosis and medication with ACE inhibitors started soon after. He was on Quinapiril 10mg initialy and responded well to it after 5 months to bring down protein from 1
Maryam63
in
Kidney Disease
4 years ago
Does anyone get head pressure after injecting Cytamen daily as a loading dose
Hi there I’ve just joined the PA society. I’ve had the same issues as many on here of symptoms not being taken seriously just because my B12 is not low enough for them. Even though the trend is down from 390 4 yrs ago to 250 last week. They won’t test for intrinsic factor. I have been ill now for approx
Hi there I’ve just joined the PA society. I’ve had the same issues as many on here of symptoms not being taken seriously just because my B12 is not low enough for them. Even though the trend is down from 390 4 yrs ago to 250 last week. They won’t test for intrinsic factor. I have been ill now for approx
Serenity182
in
Pernicious Anaemia Society
4 years ago
What were your Anti Parietal Cell Numbers?
What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I also have a negative Intrinsic Factor Antibody test
What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I also have a negative Intrinsic Factor Antibody test
Max1777
in
Pernicious Anaemia Society
4 years ago
Desiccated pigs stomach
My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs intrinsic factor. I will try and find the article and add it to the post.
My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs intrinsic factor. I will try and find the article and add it to the post.
PhilAB
in
Pernicious Anaemia Society
4 years ago
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