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Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
Aumshantii
in
Pernicious Anaemia Society
3 years ago
More advice needed.
I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my haemoglobin and mcv levels are normal, and the guidlines i quoted pre date covid, and they have been told tratment has to be oral cyanocobalamin. She
I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my haemoglobin and mcv levels are normal, and the guidlines i quoted pre date covid, and they have been told tratment has to be oral cyanocobalamin. She
Calypsoplus
in
Pernicious Anaemia Society
3 years ago
Advice please
MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle fatigue and lack of appetite. I feel really quite unwell and not sure what to do. I've started B12 sublingual myself at 1000mcg. Father and
MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle fatigue and lack of appetite. I feel really quite unwell and not sure what to do. I've started B12 sublingual myself at 1000mcg. Father and
Lunadoo
in
Pernicious Anaemia Society
3 years ago
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Hi I am new to this. I have intrinsic factor abs, GP is refusing B12 injections until gastro confirm PA Where can I buy these in the London?
B12injections London
B12injections London
Aumshantii
in
Pernicious Anaemia Society
3 years ago
Living La Vida Loca...Cancer/Chemo/Banana Trees & Miracles
well....(deep subject)... my PSA has gone up (again) and is now ALMOST 1000. It's 980.0 My platelets having dropped to 6,000. I was prepared to argue with my oncologist about doing the chemo (Jevtana) that she has me scheduled for again on Thursday...but, alas... there was no argument. She concurred
well....(deep subject)... my PSA has gone up (again) and is now ALMOST 1000. It's 980.0 My platelets having dropped to 6,000. I was prepared to argue with my oncologist about doing the chemo (Jevtana) that she has me scheduled for again on Thursday...but, alas... there was no argument. She concurred
greatjohn
in
Advanced Prostate Cancer
3 years ago
Test for intrinsic factor antibodies - when to do?
Quick questions, I hope! My doctor has agreed to this test but said we should wait until after 4 weeks after a third monthly injection of b12. I don't really see the point in waiting, because if it confirms a Pernicious Anemia diagnosis, that would hopefully mean I could start on more frequent loading
Quick questions, I hope! My doctor has agreed to this test but said we should wait until after 4 weeks after a third monthly injection of b12. I don't really see the point in waiting, because if it confirms a Pernicious Anemia diagnosis, that would hopefully mean I could start on more frequent loading
fireflymairi
in
Pernicious Anaemia Society
3 years ago
B12 levels are high but.......
Hi - I’m new to this, but will try to write my query. Got diagnosed with PA by a gastroenterologist about 6 years ago ( I don’t have the intrinsic factor) B12 injections every 3 months until about 3 years ago, then down to every 2 months. But at 6 weeks, I go downhill fast. This past year, it’s been
Hi - I’m new to this, but will try to write my query. Got diagnosed with PA by a gastroenterologist about 6 years ago ( I don’t have the intrinsic factor) B12 injections every 3 months until about 3 years ago, then down to every 2 months. But at 6 weeks, I go downhill fast. This past year, it’s been
Space69
in
Pernicious Anaemia Society
3 years ago
How long before an oral B12 tablet affects your Active/Serum B12 level?
Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet): 1) How long does it take an oral B12 tablet to be absorbed, such that it raises an Active B12 blood test result (or failing that, a Serum B12
Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet): 1) How long does it take an oral B12 tablet to be absorbed, such that it raises an Active B12 blood test result (or failing that, a Serum B12
Katanaqui
in
Pernicious Anaemia Society
3 years ago
Imbruvica ibrutinib & ACE inhibitors
I have just been told to stop my ramipril due to an interaction with ibrutinib having the risk of sudden cardiac death! I have been taking ibrutinib daily for 3/4 years with ramipril most of the time and obviously have not had this reaction so it may be very rare or not apply in my case. I have no other
I have just been told to stop my ramipril due to an interaction with ibrutinib having the risk of sudden cardiac death! I have been taking ibrutinib daily for 3/4 years with ramipril most of the time and obviously have not had this reaction so it may be very rare or not apply in my case. I have no other
sphexx
in
CLL Support
3 years ago
Active B12 testing
Hi all, I have held off SI this month as I was trying to work out what might be causing skin flushing that I’ve been having. My neuro symptoms and stiff and achey joints are back although I’ve been waiting to hear from my GP about whether they will test for anti- intrinsic factor antibodies again and
Hi all, I have held off SI this month as I was trying to work out what might be causing skin flushing that I’ve been having. My neuro symptoms and stiff and achey joints are back although I’ve been waiting to hear from my GP about whether they will test for anti- intrinsic factor antibodies again and
Alpaca24
in
Pernicious Anaemia Society
3 years ago
Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
Thyroid Results advice and are private tests accurate?
I wonder if anyone can help I have got aches and pains in my joints I’m taking 1000 Vitamin D per day (Dr just said take it but not how much!) and sunbathing whenever possible as was told I’m slightly deficient. Here are my latest result with no change in medication 25 micro grams Levothyroxine (previous
I wonder if anyone can help I have got aches and pains in my joints I’m taking 1000 Vitamin D per day (Dr just said take it but not how much!) and sunbathing whenever possible as was told I’m slightly deficient. Here are my latest result with no change in medication 25 micro grams Levothyroxine (previous
HealthySam
in
Thyroid UK
3 years ago
Help and thoughts please!
Hi,I’m new to this site! I have scleroderma, PBC, Sjögrens and hypothyroidism and fairly bad osteoarthritis. The scleroderma has left me particularly unwell. For the past 2 months I have had a positive rheumatoid factor in my blood work, and am waiting for the results of my anti ccp antibody test. I
Hi,I’m new to this site! I have scleroderma, PBC, Sjögrens and hypothyroidism and fairly bad osteoarthritis. The scleroderma has left me particularly unwell. For the past 2 months I have had a positive rheumatoid factor in my blood work, and am waiting for the results of my anti ccp antibody test. I
MissusTee
in
NRAS
3 years ago
A bit about me
I worked in a Haematology laboratory for over 40 years until retirement. In that time I saw the introduction of automation into Blood Counting, Coagulation testing, and later, B12, Folate, Ferritin, Intrinsic Factor antibodies and Erythropoietin assays. In addition to routine laboratory work, I participated
I worked in a Haematology laboratory for over 40 years until retirement. In that time I saw the introduction of automation into Blood Counting, Coagulation testing, and later, B12, Folate, Ferritin, Intrinsic Factor antibodies and Erythropoietin assays. In addition to routine laboratory work, I participated
FlipperTD
in
Pernicious Anaemia Society
3 years ago
Low stomach acid tests
I asked some questions about B12 and Diarrhoea here: https://healthunlocked.com/pasoc/posts/145437733/vit-b12-and-diarrhoea Some people came back suggesting that low stomach acid (hypochlorhydria or achlorhydria) is a cause of stomach acid. I did the sodium bicarbonate "burp" test and it seems I might
I asked some questions about B12 and Diarrhoea here: https://healthunlocked.com/pasoc/posts/145437733/vit-b12-and-diarrhoea Some people came back suggesting that low stomach acid (hypochlorhydria or achlorhydria) is a cause of stomach acid. I did the sodium bicarbonate "burp" test and it seems I might
mickeymouse42
in
Pernicious Anaemia Society
3 years ago
IF and celiac test results 'normal'
Hi all, if you had tests on the NHS for Intrinsic factor did you get details of test or just told normal? I have two tests in my online records which just show up as n/a which I assumed meant they weren't taken at all. When I called the doctors they said that the intrinsic factor one was 'normal'. I
Hi all, if you had tests on the NHS for Intrinsic factor did you get details of test or just told normal? I have two tests in my online records which just show up as n/a which I assumed meant they weren't taken at all. When I called the doctors they said that the intrinsic factor one was 'normal'. I
Bonjourtristesse
in
Pernicious Anaemia Society
3 years ago
Where to get private testing done
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
BEE2019
in
Pernicious Anaemia Society
3 years ago
B12 and hot flushes
Hello, I started my loading doses just over a year ago and ended up resorting to SI as many do around Nov 2020 as I had ongoing neuro symptoms (tingling & numbness in hands & feet, some shooting nerve pains in fingers). I now SI every 2 weeks although I still have some mild neuro symptoms (unsure whether
Hello, I started my loading doses just over a year ago and ended up resorting to SI as many do around Nov 2020 as I had ongoing neuro symptoms (tingling & numbness in hands & feet, some shooting nerve pains in fingers). I now SI every 2 weeks although I still have some mild neuro symptoms (unsure whether
Alpaca24
in
Pernicious Anaemia Society
3 years ago
My Labs
Just got my labs back (keep in mind that I had a B12 injection from my former GP on June 30th). Not sure what to make of it. I have had two loading doses of B12 the last two days. Should I stay the course on the injections- daily for a week, then weekly for 4 weeks, then monthly? Intrinsic Factor: 1.1
Just got my labs back (keep in mind that I had a B12 injection from my former GP on June 30th). Not sure what to make of it. I have had two loading doses of B12 the last two days. Should I stay the course on the injections- daily for a week, then weekly for 4 weeks, then monthly? Intrinsic Factor: 1.1
Pain12345
in
Pernicious Anaemia Society
3 years ago
B12 Testing
My GP tested my B12 in late June and it was 248. She gave me a B12 (Cyanocobalamin) injection on June 30th without doing any other tests. I then went to see a neurologist and she couldn’t believe that the GP had not done more testing. The neurologist has me scheduled today for the following tests: B12
My GP tested my B12 in late June and it was 248. She gave me a B12 (Cyanocobalamin) injection on June 30th without doing any other tests. I then went to see a neurologist and she couldn’t believe that the GP had not done more testing. The neurologist has me scheduled today for the following tests: B12
Pain12345
in
Pernicious Anaemia Society
3 years ago
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