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1 year post diagnosis
I am a 54 yo male living in Vegas, I found out I was Jak2 positive last year, looked at labs before doctor and freaked. I have been having slightly higher RBC and Platelets for around 6-7 years. I used to donate blood pretty regularly and took testosterone, so the doctors kinda ignored it. I was a paramedic
I am a 54 yo male living in Vegas, I found out I was Jak2 positive last year, looked at labs before doctor and freaked. I have been having slightly higher RBC and Platelets for around 6-7 years. I used to donate blood pretty regularly and took testosterone, so the doctors kinda ignored it. I was a paramedic
FINFAN1970
in
MPN Voice
4 months ago
T3 battles
I’m on T3 only, taking 30mcg in one dose daily. Spoke to the endocrinologist this morning and after explaining to her that the reason I don’t take levothyroxine is because it made me far worse she said she’s never heard anyone that’s happened to. I told her I currently have symptoms of being under medicated
I’m on T3 only, taking 30mcg in one dose daily. Spoke to the endocrinologist this morning and after explaining to her that the reason I don’t take levothyroxine is because it made me far worse she said she’s never heard anyone that’s happened to. I told her I currently have symptoms of being under medicated
ScriptMaz
in
Thyroid UK
4 months ago
Best way to take NDT
Hello, today is my first day taking NDT. I was on a T4/T3 combo for the last two years. I usually chewed my meds (T4, T3) and tried to grind them as much as possible with my teeth before drinking a glass of water. What is the best way to take NDT? Can I take it in the same way to ensure good absorption
Hello, today is my first day taking NDT. I was on a T4/T3 combo for the last two years. I usually chewed my meds (T4, T3) and tried to grind them as much as possible with my teeth before drinking a glass of water. What is the best way to take NDT? Can I take it in the same way to ensure good absorption
Alex_N
in
Thyroid UK
4 months ago
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T3 NHS Prescription in SW London
Hi all,
Has anyone found a NHS endocrinologist who will prescribe Liothyronine in SW London?!
Ideally Charing Cross/Chelsea Westminster… Details: I have been taking 100mcg Levothyroxine daily and 10mcg (morning) and 5mcg (afternoon) Liothyronine for 3 years which has made a world of difference
Hi all,
Has anyone found a NHS endocrinologist who will prescribe Liothyronine in SW London?!
Ideally Charing Cross/Chelsea Westminster… Details: I have been taking 100mcg Levothyroxine daily and 10mcg (morning) and 5mcg (afternoon) Liothyronine for 3 years which has made a world of difference
Meebles
in
Thyroid UK
4 months ago
Reverse T3, stress and temperature
hello. I am one of a few outliers here, not hashi, but some classic low thyroid symptoms eg loss of eyebrows, leg hair, and in bloods, poor converter and not high t3, and for me most telling, low temperature and heart rate. (i am not posting results today) People have suggested it is central hypothyroidism
hello. I am one of a few outliers here, not hashi, but some classic low thyroid symptoms eg loss of eyebrows, leg hair, and in bloods, poor converter and not high t3, and for me most telling, low temperature and heart rate. (i am not posting results today) People have suggested it is central hypothyroidism
lauriegraham
in
Thyroid UK
4 months ago
Medicheck bloods - some advice please?
Hello everyone, took the suggestion of this wonderful group and got some private bloods done before my next gp review . The online gp stated that my thyroxine dose of 50 mcg were working well for me and vits were excellent. That’s doesn’t really match how I feel day to day although much better than before
Hello everyone, took the suggestion of this wonderful group and got some private bloods done before my next gp review . The online gp stated that my thyroxine dose of 50 mcg were working well for me and vits were excellent. That’s doesn’t really match how I feel day to day although much better than before
Kellybun
in
Thyroid UK
4 days ago
What on earth is going on with my T4?
I've just got my latest test results back. I am currently on100mcg levothyroxine which was raised from 75 in June. However my T4 levels have significantly decreased since June despite the rise in levo. My TSH results have also decreased. Can anyone explain what is likely to be going on? I've also had
I've just got my latest test results back. I am currently on100mcg levothyroxine which was raised from 75 in June. However my T4 levels have significantly decreased since June despite the rise in levo. My TSH results have also decreased. Can anyone explain what is likely to be going on? I've also had
TheSnufkin
in
Thyroid UK
5 days ago
Confused and seeking wisdom !
I have been living with hypo type symptoms for decades but have been very unwell for the last 10 years. I have long suspected thyroid issues being a part of it. I had a diagnosis of M.E. in 2021 but likely would have had one earlier if I had gone to GP's. I am mostly home bound often bed/sofa bound.
I have been living with hypo type symptoms for decades but have been very unwell for the last 10 years. I have long suspected thyroid issues being a part of it. I had a diagnosis of M.E. in 2021 but likely would have had one earlier if I had gone to GP's. I am mostly home bound often bed/sofa bound.
Biba22
in
Thyroid UK
6 days ago
Is my T3 too low
hi everyone, love this forum it’s so helpful. I wanted to ask if you think my T3 is low? My current results after my top up of 5 weeks on Levo at 75mg is now : Tsh 0.40 0.27-4.20 Free Throxine 18.5 12.0-22.0 Total T3 1.9 1.3 -
hi everyone, love this forum it’s so helpful. I wanted to ask if you think my T3 is low? My current results after my top up of 5 weeks on Levo at 75mg is now : Tsh 0.40 0.27-4.20 Free Throxine 18.5 12.0-22.0 Total T3 1.9 1.3 -
Kirpaa
in
Thyroid UK
7 days ago
Started Xtandi mono therapy 2 months ago but after dropping PSA from 3.3 to .82 its now up to1.360. Continue with SBRT to 4 spots next week?
PSMA Scan results from March 5, 2024 ONCOLOGIC FINDINGS: History of metastatic castrate resistant prostate cancer status post interval radiation therapy to T3 and right 3rd rib with: - Post surgical changes prior prostatectomy - Essentially resolved prior PSMA uptake in right 3rd posterior rib and
PSMA Scan results from March 5, 2024 ONCOLOGIC FINDINGS: History of metastatic castrate resistant prostate cancer status post interval radiation therapy to T3 and right 3rd rib with: - Post surgical changes prior prostatectomy - Essentially resolved prior PSMA uptake in right 3rd posterior rib and
SViking
in
Advanced Prostate Cancer
4 months ago
Sore, swollen lips; lethargy and weakness
Hello all.... over the last year or so I have had worsening health. I have been managing ok for a good few years my hypothyrodism / hashimoto's / menopause via Thyroid-S x 2 grains / strictly gluten free for over 5 years / Oestrogel x4 pumps/day. Had reasonable energy levels, body composition, mood
Hello all.... over the last year or so I have had worsening health. I have been managing ok for a good few years my hypothyrodism / hashimoto's / menopause via Thyroid-S x 2 grains / strictly gluten free for over 5 years / Oestrogel x4 pumps/day. Had reasonable energy levels, body composition, mood
richar03
in
Thyroid UK
9 days ago
PLMD medication
Hello I just joined because i was recently diagnosed with PLMD. The doctors don't really seem very informed about this condition. My ferritin level was fine around 200 so I decided to not supplement that even though the hospital advised me to. I then went onto take Pramipexole (didn't help) for
Hello I just joined because i was recently diagnosed with PLMD. The doctors don't really seem very informed about this condition. My ferritin level was fine around 200 so I decided to not supplement that even though the hospital advised me to. I then went onto take Pramipexole (didn't help) for
drover123
in
Restless Legs Syndrome
4 months ago
What on earth is happening to me?
Just had mediicheck results ... CRP 4.030 Range < 3 Ferritin 66.6 (30 -332) Folate 35.2 Range <7 B12 > 150 Range > 37.5 Vit D 90.6 (50-250) TSH 0.007 (0.27-4.2) Free T3 5.6 (3.1 - 6.8) T4 21.4 (12.22) Thyroid Antibodies 76.90 (0-115) Thyroid Peroxidase Antibodies 62.0 (0
Just had mediicheck results ... CRP 4.030 Range < 3 Ferritin 66.6 (30 -332) Folate 35.2 Range <7 B12 > 150 Range > 37.5 Vit D 90.6 (50-250) TSH 0.007 (0.27-4.2) Free T3 5.6 (3.1 - 6.8) T4 21.4 (12.22) Thyroid Antibodies 76.90 (0-115) Thyroid Peroxidase Antibodies 62.0 (0
dipsyqueen
in
Thyroid UK
11 days ago
T4 to T3 conversion
Does T4 to T3 conversion lessen with age? I'm just trying to figure out why I feel 20 years older than my real age. No changes to any meds and supplements and TSH and T4 levels are on a par with where they've been for several years. Ferritin is low but I suspect it's been that way for a long time. I
Does T4 to T3 conversion lessen with age? I'm just trying to figure out why I feel 20 years older than my real age. No changes to any meds and supplements and TSH and T4 levels are on a par with where they've been for several years. Ferritin is low but I suspect it's been that way for a long time. I
Jingley
in
Thyroid UK
12 days ago
GP Coming - what to ask
having my annual review tomorrow and GP is coming to see me. Looking at all my past results I wonder, with them being up and down constantly, whether I am one of those whereby Levo no longer works for me and might be keeping me ill. Diagnosed back in 2005 and it's too far back to remember how I was
having my annual review tomorrow and GP is coming to see me. Looking at all my past results I wonder, with them being up and down constantly, whether I am one of those whereby Levo no longer works for me and might be keeping me ill. Diagnosed back in 2005 and it's too far back to remember how I was
Jefner
in
Thyroid UK
4 months ago
Help with iron results
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Becsf
in
Thyroid UK
1 month ago
T4 keeps dipping and Endo says levels are still “good” (but I feel exhausted)
Hi all, I used to be on: -150mg of Levo And - 1.5 grains of ERFA NDT which was very suitable for years. My T4 would usually come out in between 18 to 20 pmol/L (range is 9.0 to 23.0 pmol/L), and my T3 whilst on the upper end of acceptable, would come out in between 4.6 and 6.5 pmol/L (range is
Hi all, I used to be on: -150mg of Levo And - 1.5 grains of ERFA NDT which was very suitable for years. My T4 would usually come out in between 18 to 20 pmol/L (range is 9.0 to 23.0 pmol/L), and my T3 whilst on the upper end of acceptable, would come out in between 4.6 and 6.5 pmol/L (range is
hormonaljunkie
in
Thyroid UK
4 months ago
Newest blood results - Need advice
[u]Last post I was on 150mcg, TSH 1.8, FT4 19 (11-23), and FT3 5.6 (3.4-5.9)[/u] - Still felt awful, coming down from 225mcg severe overmedcation - Based on the FT3, NEW DOC lowered to 137.5mcg (bodyweight dosage for me) - Prescribed Zoloft (was never anxious or depressed, and said this) - Many told
[u]Last post I was on 150mcg, TSH 1.8, FT4 19 (11-23), and FT3 5.6 (3.4-5.9)[/u] - Still felt awful, coming down from 225mcg severe overmedcation - Based on the FT3, NEW DOC lowered to 137.5mcg (bodyweight dosage for me) - Prescribed Zoloft (was never anxious or depressed, and said this) - Many told
Johnfishman22
in
Thyroid UK
16 days ago
DIO2 and DIO1 results from ancestry
I thought it was more clear cut when I did this test but on reading more the wise ones on here point out it is not black and white and only a guide more potential for conversion issues. Shoot me down if I am wrong ... would welcome comments. For DIO2 - 1 of my results is mutated - more likely a poor
I thought it was more clear cut when I did this test but on reading more the wise ones on here point out it is not black and white and only a guide more potential for conversion issues. Shoot me down if I am wrong ... would welcome comments. For DIO2 - 1 of my results is mutated - more likely a poor
Sleepman
in
Thyroid UK
2 months ago
Is lactose intolerance and soya sensitivity affecting absorption of T4?
SlowDragon If I have a lactose intolerance and sensitivity to soya, could this be affecting my T4 absorption or conversion to T3? If so, would liquid thyroxine help or do I need T3 added? I recall reading a post regarding this from you but I am unsure where it is now. I avoid lactose and soya but
SlowDragon If I have a lactose intolerance and sensitivity to soya, could this be affecting my T4 absorption or conversion to T3? If so, would liquid thyroxine help or do I need T3 added? I recall reading a post regarding this from you but I am unsure where it is now. I avoid lactose and soya but
Sailing14
in
Thyroid UK
4 months ago
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