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Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
5 months ago
help with results please
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
Bollieforme
in
Thyroid UK
5 months ago
Diabetic and Eye Damage
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
123charl
in
Macular Society
5 months ago
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Headaches!
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Tescohednesford
in
PMRGCAuk
5 months ago
Tapering with a high ESR Reading?
My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was cancelled for a fourth time yesterday, I dropped to 7 mg yesterday after being told, from 31 days on 7.5mg. I have read that ESR could denote
My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was cancelled for a fourth time yesterday, I dropped to 7 mg yesterday after being told, from 31 days on 7.5mg. I have read that ESR could denote
Motida
in
PMRGCAuk
5 months ago
frustrated and anxious re appt
just feel this Is a safe space to have a rant was diagnosed beginning of October with NTG ( quite a lot of damage already , nerve damage, some peripheral vision loss ) Started on medication and was due to have a follow up appt after. 2 months ( so should have been December) However the hospital
just feel this Is a safe space to have a rant was diagnosed beginning of October with NTG ( quite a lot of damage already , nerve damage, some peripheral vision loss ) Started on medication and was due to have a follow up appt after. 2 months ( so should have been December) However the hospital
Crafty-gran
in
Glaucoma UK
5 months ago
Sore dry eyes
Good morning folks. I’ve been switched from Latanoprost to Monopost drops for both eyes. Bilateral NTG. I was getting a lot of headaches, eye pain and swelling around my right eye and a duty A&E ophthalmologist suggested I could be reacting to the preservatives in the Latanoprost drops. I’ve been on
Good morning folks. I’ve been switched from Latanoprost to Monopost drops for both eyes. Bilateral NTG. I was getting a lot of headaches, eye pain and swelling around my right eye and a duty A&E ophthalmologist suggested I could be reacting to the preservatives in the Latanoprost drops. I’ve been on
Maisie79
in
Glaucoma UK
5 months ago
Extremely high eye pressure while sleeping.
Hi, I have been diagnosed with glaucoma for about 12 years now and I also have uveitis since I was 2 years old. The last 4/5 years the main focus has been managing glaucoma as my uveitis is in remission. Recently I managed to get self monitoring eye pressure machine from Icare so I can keep track of
Hi, I have been diagnosed with glaucoma for about 12 years now and I also have uveitis since I was 2 years old. The last 4/5 years the main focus has been managing glaucoma as my uveitis is in remission. Recently I managed to get self monitoring eye pressure machine from Icare so I can keep track of
Biggs87
in
Glaucoma UK
5 months ago
Eye issues related to hypothyroidism
Hi all, I was diagnosed with hypothyroidism in January of this year and started on 50mg levothyroxine. I’m having bloods every six weeks and working on my iron, vitamin D levels, folate and selenium. I’ll add my test results at the end for info. Overall I am feeling much better but I developed eye
Hi all, I was diagnosed with hypothyroidism in January of this year and started on 50mg levothyroxine. I’m having bloods every six weeks and working on my iron, vitamin D levels, folate and selenium. I’ll add my test results at the end for info. Overall I am feeling much better but I developed eye
Phoenix_24
in
Thyroid UK
5 months ago
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
5 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
5 months ago
Glaucoma and macula degeneration
I've had glaucoma for nearly 30 yrs (I am 75) now diagnosed with macula degeneration in left eye . Anyone have the same ..what are the prospects ? Thank you..
I've had glaucoma for nearly 30 yrs (I am 75) now diagnosed with macula degeneration in left eye . Anyone have the same ..what are the prospects ? Thank you..
jesolo12
in
Glaucoma UK
5 months ago
covid and metratrexate for RA
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
Mybirthday1975
in
NRAS
5 months ago
Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
5 months ago
distortion on Amsler grid
Hi, I’m 44 years old and developed eye pain a couple of weeks ago, it was pretty intense and mostly in the outer corner of my left eye though a little in my right eye too. I thought I had an eye infection so booked an eye test with an OCT scan, my eye test was fine, OCT scan was fine too and my prescription
Hi, I’m 44 years old and developed eye pain a couple of weeks ago, it was pretty intense and mostly in the outer corner of my left eye though a little in my right eye too. I thought I had an eye infection so booked an eye test with an OCT scan, my eye test was fine, OCT scan was fine too and my prescription
Phoenix_24
in
Macular Society
5 months ago
eylea injections
Hi everyone. I have the eyelea injections in both eyes, it is often painful for 3-4 days after and i always have bloodshot eyes. My question is, when should i return to work after these injections? I work in an acute mental health unit where there is risk of aggression and violence ?
Hi everyone. I have the eyelea injections in both eyes, it is often painful for 3-4 days after and i always have bloodshot eyes. My question is, when should i return to work after these injections? I work in an acute mental health unit where there is risk of aggression and violence ?
90rach
in
Macular Society
5 months ago
Pain in Left Eye
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Lenore58
in
PMRGCAuk
5 months ago
First Injection of Pegasys
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
dogsandhorses
in
MPN Voice
5 months ago
Laser iridiridotomy
Hi all, I am a glaucoma suspect and on the list for LI. I need to make a decision whether or not to go ahead with this procedure. I was wondering if anyone (suspect) had it and what was the difference you felt post-procedure. I am suffering from dry eye and dull and occasional sharp pain at the
Hi all, I am a glaucoma suspect and on the list for LI. I need to make a decision whether or not to go ahead with this procedure. I was wondering if anyone (suspect) had it and what was the difference you felt post-procedure. I am suffering from dry eye and dull and occasional sharp pain at the
btsg09
in
Glaucoma UK
5 months ago
Coffee-drinker?
I've had glaucoma since 1988, many ops and drops. Have noticed that my eyes get very misty from time to time, which is a pain when you are having tests to get your driving licence back etc. Thought, blood sugar? That's all I need... Nope. Turns out it's COFFEE that's affecting me! No coffee, no
I've had glaucoma since 1988, many ops and drops. Have noticed that my eyes get very misty from time to time, which is a pain when you are having tests to get your driving licence back etc. Thought, blood sugar? That's all I need... Nope. Turns out it's COFFEE that's affecting me! No coffee, no
Hula48
in
Glaucoma UK
5 months ago
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