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TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
7 months ago
Just found the PRDA!
I live in the USA and we have nothing like PRDA here! After surgery, chemo, pelvic radiation and brachytherapy for an aggressive endometrial cancer, I thought things were ok. But bowel issues have been challenging as well as pelvic insufficiency fractures. I struggle to achieve balance and quality of
I live in the USA and we have nothing like PRDA here! After surgery, chemo, pelvic radiation and brachytherapy for an aggressive endometrial cancer, I thought things were ok. But bowel issues have been challenging as well as pelvic insufficiency fractures. I struggle to achieve balance and quality of
FierceFriend
in
Pelvic Radiation Disease Association
7 months ago
Feeling a bit nervous. What next?
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Skyeplus
in
My Ovacome
7 months ago
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I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
MissTwiggy
Graduate
in
Couch to 5K
7 months ago
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
7 months ago
Alone and Surgery 03/01/2024
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
xinte60
in
The Roy Castle Lung Cancer Foundation
7 months ago
Fulvestrant and Kisquali
Hi All, I've recently found out I have a regional recurrence of my BC and my oncologist is recommending switching me to Fulvestrant and Kisquali . I was diagnosed 4 years ago with Stage 3 ,due to the size of the tumor and lymph node involvement, HR+ Her2-. I had a bilateral mastectomy with an
Hi All, I've recently found out I have a regional recurrence of my BC and my oncologist is recommending switching me to Fulvestrant and Kisquali . I was diagnosed 4 years ago with Stage 3 ,due to the size of the tumor and lymph node involvement, HR+ Her2-. I had a bilateral mastectomy with an
Jg1960
in
SHARE Breast Cancer Support
7 months ago
5 day blastocyst - negative results 9dpt
hi all, I had cancer when I was 25 and had my eggs frozen before I started treatment. I only managed to freeze eggs. After treatment against the odds I fell pregnant naturally. My daughter was born 2016 and after that had to finish chemo and radiotherapy which put me into menopause age 27. fast forward
hi all, I had cancer when I was 25 and had my eggs frozen before I started treatment. I only managed to freeze eggs. After treatment against the odds I fell pregnant naturally. My daughter was born 2016 and after that had to finish chemo and radiotherapy which put me into menopause age 27. fast forward
hephar
in
Fertility Network UK
7 months ago
What next after Docetaxel...?
On 4/19/23 I was seen by the trial MO to confirm the previous recommendation of 10 sessions of of Docetaxel after the new liquid biopsy confirmed the first one with no mutations. Meanwhile, the PSA has risen to 115 before a kidney issue and to about 350 just before Chemo. On 12/06/2023, after 9 sessions
On 4/19/23 I was seen by the trial MO to confirm the previous recommendation of 10 sessions of of Docetaxel after the new liquid biopsy confirmed the first one with no mutations. Meanwhile, the PSA has risen to 115 before a kidney issue and to about 350 just before Chemo. On 12/06/2023, after 9 sessions
Ollie1948
in
Advanced Prostate Cancer
7 months ago
PSA Numbers and 3rd Round of Docetaxel
Hi all - so first an update. Had 3rd chemo session out of 6 yesterday and at least in my experience things are going really well all things considered. Lost hair on balls first then finally head and facial but elsewhere it is good. No issues with hand or feets. No nausea or fatigue. In fact I had
Hi all - so first an update. Had 3rd chemo session out of 6 yesterday and at least in my experience things are going really well all things considered. Lost hair on balls first then finally head and facial but elsewhere it is good. No issues with hand or feets. No nausea or fatigue. In fact I had
Yzinger
in
Advanced Prostate Cancer
7 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
7 months ago
Sweet syndrome following induction chemotherapy for acute myeloid leukaemia
An uncommon culprit of neutropenic fever: a case of Sweet syndrome following induction therapy for acute myeloid leukemia, 2023. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10660447/ Sweet's syndrome following induction chemotherapy (cytarabine and idarubicin) for acute myeloid leukaemia. Neutrophil
An uncommon culprit of neutropenic fever: a case of Sweet syndrome following induction therapy for acute myeloid leukemia, 2023. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10660447/ Sweet's syndrome following induction chemotherapy (cytarabine and idarubicin) for acute myeloid leukaemia. Neutrophil
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
7 months ago
PSA in lower range, yet PSMA PET SCAN shows diffuse bone Metastasis
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Ij2023
in
Advanced Prostate Cancer
7 months ago
Peripheral neuropathy
Hi, wanted to know if anyone on Anagralide suffers from numb feet? I have been on it for 5 years with E.T. and this numbness is getting worse as its affecting my balance. There was an article in the Mail newspaper yesterday about certain chemo drugs can cause this. I have moved back into an area so
Hi, wanted to know if anyone on Anagralide suffers from numb feet? I have been on it for 5 years with E.T. and this numbness is getting worse as its affecting my balance. There was an article in the Mail newspaper yesterday about certain chemo drugs can cause this. I have moved back into an area so
Benjamin12
in
MPN Voice
7 months ago
A quick introduction
Good day to all! I’ve been faithfully reading this forum for a little while, and have found it interesting and helpful, sometimes even encouraging. So, my diagnosis was in April of this year (2023): stage four prostate cancer with considerable metastasis to bone (ribs, sternum, pelvis). PSA was
Good day to all! I’ve been faithfully reading this forum for a little while, and have found it interesting and helpful, sometimes even encouraging. So, my diagnosis was in April of this year (2023): stage four prostate cancer with considerable metastasis to bone (ribs, sternum, pelvis). PSA was
Pinkyboy
in
Advanced Prostate Cancer
7 months ago
Trodelvy update
Having super good run with this drug going onto round 10 or 11 - CEA normal and CA15 down another 4% all other liver and general chemistry normal. I wanted to reiterate that the side effects get more manageable too. I believe that results from the San Antonio Conference last week will make this drug
Having super good run with this drug going onto round 10 or 11 - CEA normal and CA15 down another 4% all other liver and general chemistry normal. I wanted to reiterate that the side effects get more manageable too. I believe that results from the San Antonio Conference last week will make this drug
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
7 months ago
Small cell advanced prostate cancer spread to liver and lungs.
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
lcfcpolo
in
Advanced Prostate Cancer
7 months ago
Mastectomies
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
Kernowafibber
in
My Ovacome
7 months ago
My docetaxel experience so far
For those who may be interested, I started docetaxel chemo on 20th October and have just had my 3rd infusion on 8th December. I did moderate fasting the day before for the first infusion but haven't bothered since. I wore iced gloves and socks and munched on ice cubes during the chemo sessions. I've
For those who may be interested, I started docetaxel chemo on 20th October and have just had my 3rd infusion on 8th December. I did moderate fasting the day before for the first infusion but haven't bothered since. I wore iced gloves and socks and munched on ice cubes during the chemo sessions. I've
Benkaymel
in
Advanced Prostate Cancer
7 months ago
Back/rib pain after pleural tap and abdominal drain
Hi I've been diagnosed with Stage 4 ovarian cancer in May this year. I had 2 abdominal drains and 1 pleural tap for ascitees. Just finished 6th round of chemo and waiting for what happens next. Generally feel fairly well except for constant rib/back pain and tightness in area of pleural tap and
Hi I've been diagnosed with Stage 4 ovarian cancer in May this year. I had 2 abdominal drains and 1 pleural tap for ascitees. Just finished 6th round of chemo and waiting for what happens next. Generally feel fairly well except for constant rib/back pain and tightness in area of pleural tap and
Leopard2018
in
My Ovacome
7 months ago
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