Search
Search
About
Log in
Join
Experiences with
Enzyme Replacement Therapy
Posts
Communities
19,391 public posts
Filter results
can anyone recommend lovely thyroid specialist bucks/hearts/London area/zoom
after my third horrible gp appointment I need help. Here is the full story… been exhausted for over a decade, cold, tinnitus, tennis elbow, nerve pain, back ache, low, down, dry skin, upper arm swelling etc etc. gps always said iron fine, TSH fine not much else. Private well woman test showed low
after my third horrible gp appointment I need help. Here is the full story… been exhausted for over a decade, cold, tinnitus, tennis elbow, nerve pain, back ache, low, down, dry skin, upper arm swelling etc etc. gps always said iron fine, TSH fine not much else. Private well woman test showed low
Laundry
in
Thyroid UK
1 year ago
Hormone replacement therapHa
Are any members who have a f on hormone replacement therapy? Or have been taken off this medication because of. Af ?
Are any members who have a f on hormone replacement therapy? Or have been taken off this medication because of. Af ?
trixie100
in
AF Association
1 year ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Bad test news - questions to ask doctor
I knew my husband had AF following an EKG prior to surgery in 2012. He was a college athlete and only health issues have been hip and knee replacements. They tried to shock him out of AF but it was unsuccessful. He was put on Xarelto 20 mg. He has always been asymptomatic and I was naive since he
I knew my husband had AF following an EKG prior to surgery in 2012. He was a college athlete and only health issues have been hip and knee replacements. They tried to shock him out of AF but it was unsuccessful. He was put on Xarelto 20 mg. He has always been asymptomatic and I was naive since he
Donti
in
AF Association
11 months ago
Regurgitation
Hello. So I posted a while ago about having ventricular bigeminy and that I was having a private echo done. A&E, my GP and my cardiologist said to not have it because my heart structure won't change in 7 months. I got my report back today and it turns I have pulmonary, mitral and tricuspid regurgitation
Hello. So I posted a while ago about having ventricular bigeminy and that I was having a private echo done. A&E, my GP and my cardiologist said to not have it because my heart structure won't change in 7 months. I got my report back today and it turns I have pulmonary, mitral and tricuspid regurgitation
Blackwolf_7619
in
British Heart Foundation
11 months ago
still feel fatigue after a hip replacement.
Hi I had a hip replacement 3months ago but still feel very tired after exercise. Is this normal after this operation. I am trying to walk every day and do my exercises as the physio suggests. I thought by now I should feel better than I do. Would like your thoughts on this for anyone out there who
Hi I had a hip replacement 3months ago but still feel very tired after exercise. Is this normal after this operation. I am trying to walk every day and do my exercises as the physio suggests. I thought by now I should feel better than I do. Would like your thoughts on this for anyone out there who
Chocolate41
in
Pernicious Anaemia Society
11 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
5 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
5 months ago
Mitral valve replacement - waiting for operation, the wait time and the do's and dont's advice please
Hi all, I had an ECG on 17th July which showed severe leaking of my Mitral valve. I had an angiogram on the 28th July which showed no blockages in my arteries. I have a meeting with my cardiologist on 15th August. To date my GP or the cardio team have not given me any advice on what I should be doing
Hi all, I had an ECG on 17th July which showed severe leaking of my Mitral valve. I had an angiogram on the 28th July which showed no blockages in my arteries. I have a meeting with my cardiologist on 15th August. To date my GP or the cardio team have not given me any advice on what I should be doing
JDAYT_Waldorf
in
British Heart Foundation
11 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
5 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
Hyperbaric oxygen therapy
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Topsy-Turvey
in
Lung Conditions Community Forum
9 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
5 months ago
Delay date for Lupron injection
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
John347
in
Advanced Prostate Cancer
5 months ago
PROSTOX Tests
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Infamous9597
in
Advanced Prostate Cancer
12 days ago
MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
Gl448
in
Advanced Prostate Cancer
12 days ago
It's Back!
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
Tjc1
in
Advanced Prostate Cancer
5 months ago
Lupron SEs - legs
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
NickKnick
in
Advanced Prostate Cancer
17 days ago
Has Anyone had an Experience With T2 Supplements
Could this be my missing link, as I have all the symptoms listed below? Or is it just marketing hype? I am looking for advice from my more knowledgeable friends on here! I had never considered this before, had you? It's a long post, as I've added most of what they say on their website about it! It's
Could this be my missing link, as I have all the symptoms listed below? Or is it just marketing hype? I am looking for advice from my more knowledgeable friends on here! I had never considered this before, had you? It's a long post, as I've added most of what they say on their website about it! It's
Me1157
in
Thyroid UK
1 year ago
PSA still undectable
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
Brysonal
in
Fight Prostate Cancer
5 months ago
1
...
83
84
85
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4479 results
Thyroid UK
2469 results
Endometriosis UK
1869 results
View top 10 communities
Sort by
Most Relevant
Newest