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Perfusion MRI results
Hello all I have just received some great news following a second MRI that my heart is now normal with no defects present following viral myocarditis and ongoing sensations of pain during up hill exercise. The results letter does not specify whether it is appropriate for me to now stop taking heart
Hello all I have just received some great news following a second MRI that my heart is now normal with no defects present following viral myocarditis and ongoing sensations of pain during up hill exercise. The results letter does not specify whether it is appropriate for me to now stop taking heart
Curlyanne
in
British Heart Foundation
2 years ago
How do you communicate your condition?
Hello All, I am 54M, recently diagnosed with ET in Ontario, Canada. High platelets (900), negative mutations. I do not have any visible symptoms. I do not have any pain. Maybe very occasional short term aches in certain parts of the body. I am told I am low risk, on low dose aspirin and blood panel
Hello All, I am 54M, recently diagnosed with ET in Ontario, Canada. High platelets (900), negative mutations. I do not have any visible symptoms. I do not have any pain. Maybe very occasional short term aches in certain parts of the body. I am told I am low risk, on low dose aspirin and blood panel
AnonymousMike
in
MPN Voice
2 years ago
Choice of treatment
hi everyone, I would be grateful for some advice Following my PV diagnosis in May with haematocrit over 70% and haemoglobin over 200 my treatment with venesection 2 pints a week for the first 5 weeks then periodically, none for 8 weeks, along with daily dose of 500mg hydroxycarbamide and aspirin 75mg
hi everyone, I would be grateful for some advice Following my PV diagnosis in May with haematocrit over 70% and haemoglobin over 200 my treatment with venesection 2 pints a week for the first 5 weeks then periodically, none for 8 weeks, along with daily dose of 500mg hydroxycarbamide and aspirin 75mg
Swim360
in
MPN Voice
2 years ago
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surprise surprise!
Hypertrophic Cardiomyopathy Hi there, New to here and to anything heart related Strong family history of heart issues on my dad's side....bypasses at 42 years old etc. Absolutely no heart or associated issues ( that I'm aware of ) in 53 years. Boom .... Dec 21 I noticed swelling in my legs
Hypertrophic Cardiomyopathy Hi there, New to here and to anything heart related Strong family history of heart issues on my dad's side....bypasses at 42 years old etc. Absolutely no heart or associated issues ( that I'm aware of ) in 53 years. Boom .... Dec 21 I noticed swelling in my legs
Sunnygirl007
in
British Heart Foundation
2 years ago
Chest pain and perimenopause
has anyone had symptoms of chest pain,hot flushes and nauseous due to the perimenopause? I've looked back when my symptoms started and it seems to have all started when I came off the combined pill. I'm awaiting a CT scan for my chest pain and on Bisoprolol and aspirin untill I get my scan due to family
has anyone had symptoms of chest pain,hot flushes and nauseous due to the perimenopause? I've looked back when my symptoms started and it seems to have all started when I came off the combined pill. I'm awaiting a CT scan for my chest pain and on Bisoprolol and aspirin untill I get my scan due to family
14566787
in
British Heart Foundation
2 years ago
questions and quandaries
Hi, I had a Ha and long stent in Dec 2021. put on lots meds ,bisoprolol, Ramipril, statins, aspirin and platelet thinners. was off work for 3/12 competed cardiac rehab course. was going well exercising and healthy eating slowly losing weight. End of April had an episode of severe chest pain and ended
Hi, I had a Ha and long stent in Dec 2021. put on lots meds ,bisoprolol, Ramipril, statins, aspirin and platelet thinners. was off work for 3/12 competed cardiac rehab course. was going well exercising and healthy eating slowly losing weight. End of April had an episode of severe chest pain and ended
glandabulous
in
British Heart Foundation
2 years ago
bp pills and stroke
my mate just had a stroke only 60 been on bp pills for years,i got him taking baby aspirin 3 years ago,i went to see him he told me he stopped aspirin on doc s advice 12 months ago, said he wish he had not,asked consultant who said off record if he had continued with them and no stomach issues he would
my mate just had a stroke only 60 been on bp pills for years,i got him taking baby aspirin 3 years ago,i went to see him he told me he stopped aspirin on doc s advice 12 months ago, said he wish he had not,asked consultant who said off record if he had continued with them and no stomach issues he would
peter999999999
in
High Blood Pressure Support
2 years ago
ENTRESTO 49/51 (+ Bisoprolol, Eplerenone, Aspirin, Simvastatin, Omeprazole, Dapagloflozin, Furosemide, Mexiletine).
My husband (79) has been on Entresto for nearly 2 years. Has no energy or strength and is tired most of the time with breathing problems after a very short walk in the garden. Hasn't seen cardiologist or had his EF checked since prescription issued. GP will not change any medication cos of heart problems
My husband (79) has been on Entresto for nearly 2 years. Has no energy or strength and is tired most of the time with breathing problems after a very short walk in the garden. Hasn't seen cardiologist or had his EF checked since prescription issued. GP will not change any medication cos of heart problems
BeeBee2409
in
British Heart Foundation
2 years ago
Almost 1 yr on Peg - Update
Just realized that I started taking Peg in late September 2021...it has been quite a ride. Briefly: diagnosed with ET Jak2+ officially in Dec 2020 via BMB (but had high platelets and leukocytosis for 6-10 years prior to that). Allele burden of 40% (Jak2) and 4% TET2. Had been on aspirin only and monitoring
Just realized that I started taking Peg in late September 2021...it has been quite a ride. Briefly: diagnosed with ET Jak2+ officially in Dec 2020 via BMB (but had high platelets and leukocytosis for 6-10 years prior to that). Allele burden of 40% (Jak2) and 4% TET2. Had been on aspirin only and monitoring
Solyesh
in
MPN Voice
2 years ago
Tight chest ~ waiting for angiogram
Hi everyone. I went into A&E last weekend with chest tightness and some breathing difficulty, along with some other symptoms. They were brilliant, kept me in for a couple of days, lots of ECGs, a chest X-ray and contrast CT to rule out a PE, which was clear. Long story short, ECG shows some ischemic
Hi everyone. I went into A&E last weekend with chest tightness and some breathing difficulty, along with some other symptoms. They were brilliant, kept me in for a couple of days, lots of ECGs, a chest X-ray and contrast CT to rule out a PE, which was clear. Long story short, ECG shows some ischemic
Wolfgirl71
in
British Heart Foundation
2 years ago
INR home testing
I’m fairly new to being on warfarin following valve replacement , but it’s taking awhile to get the dosage stable, despite tying to be consistent with my diet. The nurses at my surgery are great but recently my reading was very low just before we went away. The nurse suggested less green food and increase
I’m fairly new to being on warfarin following valve replacement , but it’s taking awhile to get the dosage stable, despite tying to be consistent with my diet. The nurses at my surgery are great but recently my reading was very low just before we went away. The nurse suggested less green food and increase
LGBE
in
British Heart Foundation
2 years ago
Sunday’s poem Timothy Winters - Charles Causley
Charles Causley – 1917 to 2003) Timothy Winters comes to school With eyes as wide as a football pool, Ears like bombs and teeth like splinters: A blitz of a boy is Timothy Winters. His belly is white, his neck is dark, And his hair is an exclamation mark. His clothes are enough to scare a crow
Charles Causley – 1917 to 2003) Timothy Winters comes to school With eyes as wide as a football pool, Ears like bombs and teeth like splinters: A blitz of a boy is Timothy Winters. His belly is white, his neck is dark, And his hair is an exclamation mark. His clothes are enough to scare a crow
Lyd12
in
Lung Conditions Community Forum
2 years ago
I’m falling to bits!!! Shingles now
hi all, Well update on me is that I have just started and had my first interferon injection for my ET on Thursday as I am suffering with various systems but my two main ones being fatigue and intense itching. On the Tuesday of this week I was suffering with major toothache from the weekend so managed
hi all, Well update on me is that I have just started and had my first interferon injection for my ET on Thursday as I am suffering with various systems but my two main ones being fatigue and intense itching. On the Tuesday of this week I was suffering with major toothache from the weekend so managed
Grendall
in
MPN Voice
2 years ago
Gastroscopy Procedure Query
Hi. Just wondered if anyone has had a gastroscopy with PV on Hydroxy and aspirin? I need to have some polyps removed and the letter says I should just continue with all my meds prior to the procedure. I've emailed Haematology for advice but wondered if anyone else had experience of this procedure
Hi. Just wondered if anyone has had a gastroscopy with PV on Hydroxy and aspirin? I need to have some polyps removed and the letter says I should just continue with all my meds prior to the procedure. I've emailed Haematology for advice but wondered if anyone else had experience of this procedure
MWxxxx
in
MPN Voice
2 years ago
Taking Hydroxycarbamide?…
I just passed 60 years, and I’m in great shape and leading a healthy and active lifestyle. I have a chronic state of high blood platelets (around 650,000 rather than max 450,000), at least since 2015. My Doctor now prescribed me Hydroxycarbamide (alongside aspirin 75 mg) to avoid risk of thrombosis.
I just passed 60 years, and I’m in great shape and leading a healthy and active lifestyle. I have a chronic state of high blood platelets (around 650,000 rather than max 450,000), at least since 2015. My Doctor now prescribed me Hydroxycarbamide (alongside aspirin 75 mg) to avoid risk of thrombosis.
Holden65
in
MPN Voice
2 years ago
New research on NSAID's and inflammation
From Rhonda Patrick, PHD. Can chronic use of anti-inflammatory agents paradoxically promote chronic inflammation through compensatory host response? https://www.foundmyfitness.com https://pubmed.ncbi.nlm.nih.gov/15922118/ From her newsletter: Non-steroidal anti-inflammatory drugs, or NSAIDs
From Rhonda Patrick, PHD. Can chronic use of anti-inflammatory agents paradoxically promote chronic inflammation through compensatory host response? https://www.foundmyfitness.com https://pubmed.ncbi.nlm.nih.gov/15922118/ From her newsletter: Non-steroidal anti-inflammatory drugs, or NSAIDs
Elizka
in
MPN Voice
2 years ago
Medications causing mouth ulcers?
Hi there, I’m on 9 different medications: Dapagliflozin, Bisopropolol, Aspirin, Clopidogrel, spironolactone, warfarin, atorvostatin, lanzrapole and ramipril and I’ve been taking them since late April following a HA. I’ve felt generally well apart from fatigue but in the last 6-8 weeks have developed
Hi there, I’m on 9 different medications: Dapagliflozin, Bisopropolol, Aspirin, Clopidogrel, spironolactone, warfarin, atorvostatin, lanzrapole and ramipril and I’ve been taking them since late April following a HA. I’ve felt generally well apart from fatigue but in the last 6-8 weeks have developed
EU95PTM
in
British Heart Foundation
2 years ago
3 years post NSTEMI much improved EF
I had an NSTEMI June 2019 and received 2 stents in LAD and LCX for 90% and 80% blockage. Before I was discharged I had an echocardiogram that showed left ventricle wall stunning due to ischemia and an ejection fraction of 46%. I hadn't seen a cardiologist since discharge and chose to see one privately
I had an NSTEMI June 2019 and received 2 stents in LAD and LCX for 90% and 80% blockage. Before I was discharged I had an echocardiogram that showed left ventricle wall stunning due to ischemia and an ejection fraction of 46%. I hadn't seen a cardiologist since discharge and chose to see one privately
Hatchjd
in
British Heart Foundation
2 years ago
Help with 3 day ECG results please, confused!
Any help at all with my recent 3 day ECG results would be very helpful please. Background, HA and stent fitted December 2021, on aspirin, clopidogrel, bisoprolol, ramipril, statins, levothyroxine. Been having regular palpitations, bit dizzy, ectopic beats, fluttering, sometimes lasting a short
Any help at all with my recent 3 day ECG results would be very helpful please. Background, HA and stent fitted December 2021, on aspirin, clopidogrel, bisoprolol, ramipril, statins, levothyroxine. Been having regular palpitations, bit dizzy, ectopic beats, fluttering, sometimes lasting a short
MrsSuzuki
in
British Heart Foundation
2 years ago
Haematology
hi just a quick question if anyone has any more info on this will be much appreciated so I have just received a letter from haematology. I will attach little bit confused as its such along time ago and only ever seen this lady once. I don't ever remember been asked to take asprin but
hi just a quick question if anyone has any more info on this will be much appreciated so I have just received a letter from haematology. I will attach little bit confused as its such along time ago and only ever seen this lady once. I don't ever remember been asked to take asprin but
Hidden
in
Hughes Syndrome APS Forum
2 years ago
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