Perfusion MRI results

[Curlyanne]

Hello all

I have just received some great news following a second MRI that my heart is now normal with no defects present following viral myocarditis and ongoing sensations of pain during up hill exercise.

The results letter does not specify whether it is appropriate for me to now stop taking heart meds, bisoprolol and aspirin.

Does anyone have any experience of whether it would be safe, or do I need to either contact cardiology or my GP to confirm.

Look forward to hearing your thoughts.

[Hidden]

Hello

What brilliant news you must be feeling so happy and I am really pleased for you

I would not stop any meds till you have spoken to your Cardiologist or Doctor they have not caused you any harm by taking them so till you can get the answer I would continue with them

Let us know how you get on x

[Curlyanne in reply to Hidden]

Thank you so much for your kind words. The relief is huge. I really wish you all the best with your health.😊🙏🏻

[Hidden in reply to Curlyanne]

Thank You x

[Anon2023]

Hi I can’t advise about meds but I just wanted to say that I’m so happy that you’ve received such good news. It gives us all hope. 😊

[Curlyanne in reply to Anon2023]

Thank you so much for your message. I wish everyone could have such good news. I know I am very lucky🙏🏻

[Captain_Birdseye]

Hi,

I've been advised to come off medication by the cardiologist following a bout of myocarditis... but was advised to speak to my GP about it, I've managed to get a phone call tomorrow so will see what they say.

Probably best to talk to your GP if possible, they'll either know, or follow up with the cardiologist?

[Curlyanne in reply to Captain_Birdseye]

Hello, thank you for your message. I will contact my GP for advice. Best wishes🙏🏻

[Kristin1812 Heart Star]

Yes, I agree with Captain_Birdseye. Don’t come off meds, without speaking to you GP first. They will contact your Cardiologist if they need more advice.

[Curlyanne in reply to Kristin1812]

Hello and Thank you for your reply. Best wishes 🙏🏻

[Kristin1812 Heart Star in reply to Curlyanne]

Thank you. You are doing so well……great news to hear.

[Hearty77]

Such fantastic news. I’m so pleased for you. Celebrate in style. As per others comments I’d check in with your GP / Cardiologist regarding medication.

[Curlyanne in reply to Hearty77]

Thank you for taking the time to reply and for your kind words😊

[Qualipop]

That's absolutely brilliant news; you must be thrilled but yes you must contact your doctor before stopping any medication.

[Curlyanne in reply to Qualipop]

Hello, thank you for replying and your kind words😊🙏🏻 I will contact my GP for advice.

[sentra636]

Hi Curlyanne,

Good to hear about your progress,

just wanted to ask after looking at your profile/posts,

You have had myocarditis since about 4 years ago?

Has it taken all this time to get better or have you had it more than once?

[Curlyanne]

Hello. Thank you for your reply.

I have only had one occurrence that I know of, which made me pretty poorly. I was told it was likely I would make a full recovery at the time, but frustratingly was told I would not be tested again to confirm that, as follow up MRIs aren’t carried out for myocarditis .

I went back to A&E twice last year with similar chest pain to myocarditis, but troponin tests were negative. After ruling out a gastric cause which I was told was likley (went private to do that as was so frustrated), and persisting with my GP, I was given a treadmill test and then the stress MRI profusion just to rule out a cardiac cause. Thankfully the MRI showed no abnormalities in my arteries or the small veins and that the areas of my heart affected by myocarditis were now healed.

Are you suffering from recurrent myocarditis?