Welcome to my roller coaster - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,482 members10,661 posts

Welcome to my roller coaster

jetjetjet profile image
5 Replies

Blood gone wild again --Dc {PCP } wants me back on the Enoxaparin 2 shots a day 75 mls --- today -tomorrow --and Thursday --

Warfarin -- 10 mls tonight--7.5 weds---5 on Thurs.--retest Friday ---- i guess he is finally getting it that i can't be doing this testing every week .

in the past i have gone from a 2.4 on a Tuesday to a 9.1 on Thursday .

i found an article that was in some of the info that Mary sent me -- this Dc. in Australia { i think } spoke of people that are hyper and the effects of the body;s metabolism and the warfarin . and take into effect i am APS triple positive with 26 Dia. problems. me body goes hay wire . and it can do it in as little as 3 days.

i have been battling with them since 9/1/09 on this very thing.{ just had my anniversary } --- Horray -- now maybe they will listen-- the emotional roller coaster they put me threw really is the culprit. and when one thing goes off the rest usually follows if i don't catch it.------ 0 well that's it for now -- next step the E.R.-----

Casey knows that i am having a big problem -- he is after me -- i can't move with out him at my heels-- he knows dad is in trouble -God love him.

just ride it out I guess -- waiting for confirmation from PCP office -- i have 70 syringes of the stuff 30 outdated. $1100 dollars a shot . is what the insurance company charges !!!!!

I have 40 mls and 120 mls syringes.

after my surgery i used 120 mls a day for 9 weeks so they could revisit my protein S and C as they were out of sight , but you can't check them while you are on the Warfarin so after the bridging for the surgery they kept me on it for 9 weeks total- 7 after the bridging. well got to E mail Dc Meg with the wonderful news :-) :-) :-)

Written by
jetjetjet profile image
jetjetjet
To view profiles and participate in discussions please or .
Read more about...
5 Replies
MaryF profile image
MaryFAdministrator

Hang on in there, you will come out again on top as usual! MaryF

jetjetjet profile image
jetjetjet in reply toMaryF

Thanks for the confidence-- i can use it

Lure2 profile image
Lure2

Hi there,

I agree with Mary who is moving her house at the moment.

Hang on!!!!!

Love from Kerstin to you and Casey

jetjetjet profile image
jetjetjet in reply toLure2

Thanks my friend-- how are you doing- will feel like a pin cushion by Friday !!! so glad to hear from you . life pretty hectic right now..lets see what hapens//

Lure2 profile image
Lure2

Hi jetjetjet,

I am fine now. I had a little roller coaster last week when I was coughing with fever Not like yours!!!

Keep fighting. I can only wish you GOOD LUCK and give a hugh to Casey from me. Hope he wags his tail for me.

Your friend Kerstin

Not what you're looking for?

You may also like...

Bridging with Cessation of Warfarin

2010 - Derek suffered a DVT. 2011 - after a year on warfarin, he was diagnosed with APS. 2012 - Feb...
Tiggercat profile image

To Bridge or Not to Bridge?

I am about to shut the door now the horse has bolted but I am wondering if someone out there can...
Tiggercat profile image

Bridging Protocol-Surgery

Bridging protocol for my Surgery, I finally got my Plan should I say and it will go as follows...
jetjetjet profile image

What did you, who have had to have surgery do??

My husband has been diagnosed with APS since 2003 when he had his first stroke. His last stroke was...
grammy4him profile image

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.