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Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
11 months ago
Latest test results
Hi, Slow Dragon kindly suggested I submit my latest test results , given that I continue with episodic fatigue. ( also heat/sweats). I’ve had a number of blood tests over the past 6 months all apparently normal but of course only TSH tested in respect of my diagnosis of hypothyroidism, prescribed currently
Hi, Slow Dragon kindly suggested I submit my latest test results , given that I continue with episodic fatigue. ( also heat/sweats). I’ve had a number of blood tests over the past 6 months all apparently normal but of course only TSH tested in respect of my diagnosis of hypothyroidism, prescribed currently
Calceolaria
in
Thyroid UK
11 months ago
IBRT/SBRT Radiation and ADT
I have heard so many horrifying things here about adverse reactions to those who were prescribed ADT in conjunction with or shortly after radiation treatment. Has anyone forgone taking ADT therapy or does that ruin any progress made from radiation? I have read there is no evidence ADT actually improves
I have heard so many horrifying things here about adverse reactions to those who were prescribed ADT in conjunction with or shortly after radiation treatment. Has anyone forgone taking ADT therapy or does that ruin any progress made from radiation? I have read there is no evidence ADT actually improves
805guy
in
Prostate Cancer And Gay Men
11 months ago
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Unkind
I don't seem to have much in the way of symptoms. I took motion classes but they said you're fine, come back when you have a problem. I took acupuncture sessions til they said come back when you have a problem. MY problem is the neurologist wants to take my license. I failed a driving test that didn't
I don't seem to have much in the way of symptoms. I took motion classes but they said you're fine, come back when you have a problem. I took acupuncture sessions til they said come back when you have a problem. MY problem is the neurologist wants to take my license. I failed a driving test that didn't
kaypeeoh
in
Cure Parkinson's
1 year ago
Heart-healthy foods.
New study [1]. It's well-known that men with PCa have a higher risk for cardiovascular disease. Even before ADT. Mark Moyad coined the phrase "heart-healthy is prostate healthy" and I think he is correct. The American "food pyramid" is a disaster imo, with grains at the bottom & fats at the
New study [1]. It's well-known that men with PCa have a higher risk for cardiovascular disease. Even before ADT. Mark Moyad coined the phrase "heart-healthy is prostate healthy" and I think he is correct. The American "food pyramid" is a disaster imo, with grains at the bottom & fats at the
pca2004
in
Fight Prostate Cancer
11 months ago
SHBG test through Medichecks?
I'm set with an appointment with a menopause clinic in a couple of weeks for an HRT consult and noticed that their charges for some of the tests were quite a bit higher than Medichecks, and they are running a 20% off sale that ends tonight. I've had my thyroid tests done with them already, so I believe
I'm set with an appointment with a menopause clinic in a couple of weeks for an HRT consult and noticed that their charges for some of the tests were quite a bit higher than Medichecks, and they are running a 20% off sale that ends tonight. I've had my thyroid tests done with them already, so I believe
wavedancers
in
Thyroid UK
11 months ago
Treatment after Zoladex/Prostrap
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
Hfm89
in
Endometriosis UK
11 months ago
Assessment tomorrow morning
I've got my autism assessment tomorrow morning and my mum has her part about me on a separate day this week. I'm so so scared and nervous and just don't like the unknown. But also I'm not sure how I want the result to go. Because if I am it's for life with no treatment or suport really But if I'm not
I've got my autism assessment tomorrow morning and my mum has her part about me on a separate day this week. I'm so so scared and nervous and just don't like the unknown. But also I'm not sure how I want the result to go. Because if I am it's for life with no treatment or suport really But if I'm not
Rugby3
in
Autism Support
1 year ago
Ozempic-Anti Cancer?
I'm 10-15 pounds above ideal weight, not on any form of ADT. Since cancer feeds on sugar, does it make sense to use Ozempic to reduce blood sugar to presumably starve the cancer?
I'm 10-15 pounds above ideal weight, not on any form of ADT. Since cancer feeds on sugar, does it make sense to use Ozempic to reduce blood sugar to presumably starve the cancer?
TEBozo
in
Advanced Prostate Cancer
11 months ago
GnRH analogues
Hi all, I am due to be starting injectable GnRH analogues soon alongside a HRT, dose anyone have any advice/ guidance on them and their side effects and management? In the past I have had Nafarelin (Synarel). The plan is to have these before surgery as NHS wait is 50 weeks where I am. Thanks
Hi all, I am due to be starting injectable GnRH analogues soon alongside a HRT, dose anyone have any advice/ guidance on them and their side effects and management? In the past I have had Nafarelin (Synarel). The plan is to have these before surgery as NHS wait is 50 weeks where I am. Thanks
Foodman500
in
Endometriosis UK
11 months ago
Intraductal Carcinoma & Cribiform pattern 4 treatment options?
Newly dx. PCa. with Intraductal carcinoma, IDC-P. This is the most aggressive prostate cancer type. In my case 4+3 with 70% pattern 4 with cribriform which make it even more worse. There are four types of pattern 4 (poorly formed glands, glomeruloid structures, cribriform glands, and fused glands) and
Newly dx. PCa. with Intraductal carcinoma, IDC-P. This is the most aggressive prostate cancer type. In my case 4+3 with 70% pattern 4 with cribriform which make it even more worse. There are four types of pattern 4 (poorly formed glands, glomeruloid structures, cribriform glands, and fused glands) and
FMOH_N
in
Advanced Prostate Cancer
11 months ago
CLL - Next Generation Sequencing
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
Cave123
in
CLL Support
1 year ago
Compression fracture on T 10
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,chemotherapy and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago. My scans earlier in the year also showed a small fracture
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,chemotherapy and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago. My scans earlier in the year also showed a small fracture
Brightman
in
Advanced Prostate Cancer
11 months ago
The ParkinsonNet dream
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
Esperanto
in
Cure Parkinson's
1 year ago
Can people with hypothyroidism suffer with sweats and heat intolerance?
Before I was diagnosed with hypothyroidism and put on medication, I suffered with dreadful sweating for years; eating hot food or drinks would being it on as would housework and sitting in a stuffy office environment. This would be the type that would soak on hair and clothing. For a long time I thought
Before I was diagnosed with hypothyroidism and put on medication, I suffered with dreadful sweating for years; eating hot food or drinks would being it on as would housework and sitting in a stuffy office environment. This would be the type that would soak on hair and clothing. For a long time I thought
Upanddownlady15
in
Thyroid UK
11 months ago
More on statins
I've actually been tolerating ADT quite well over the past year but beginning in January I started feeling tightness in chest, low endurance, out of breath, heavy fatigue, attributing all to Xtandi...Then in May I fainted after getting up from the couch so the old lady took me to the ER...I had an emergency
I've actually been tolerating ADT quite well over the past year but beginning in January I started feeling tightness in chest, low endurance, out of breath, heavy fatigue, attributing all to Xtandi...Then in May I fainted after getting up from the couch so the old lady took me to the ER...I had an emergency
GSDF
in
Advanced Prostate Cancer
11 months ago
Any advice welcome on latest blood tests
I've been tinkering around with Hydrocortisone and thyroid replacement for over a year now and been symptomatic for almost 4 years with low tsh and frees. I recently stopped all thyroid and HC and felt awful after around a month, so asked my GP for help (big mistake). They only do email consults and
I've been tinkering around with Hydrocortisone and thyroid replacement for over a year now and been symptomatic for almost 4 years with low tsh and frees. I recently stopped all thyroid and HC and felt awful after around a month, so asked my GP for help (big mistake). They only do email consults and
Jamima
in
Thyroid UK
11 months ago
back again - people saying I have thyroid issues - I don’t know what to do?
people keep saying my mood etc could be thyroid related and weight gain. here are my trackers of thyroid… I’ll post the rest below this. I don’t know what to do as I think my HRT is doing this. GPs won’t listen. I have no relationship with them at all. What are your thoughts?
people keep saying my mood etc could be thyroid related and weight gain. here are my trackers of thyroid… I’ll post the rest below this. I don’t know what to do as I think my HRT is doing this. GPs won’t listen. I have no relationship with them at all. What are your thoughts?
Kath2022
in
Thyroid UK
11 months ago
Red light therapy
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Durrell
in
NRAS
1 year ago
HRT patches
Hello 👋 beautiful family, can Evorel Conti patches cause stomach pain please? I will be happy if someone help me with the question thanks
Hello 👋 beautiful family, can Evorel Conti patches cause stomach pain please? I will be happy if someone help me with the question thanks
ceenana
in
Endometriosis UK
11 months ago
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