Search
Search
About
Log in
Join
Experiences with
Electroporation therapy
Posts
Communities
16,721 public posts
Filter results
Discussion about SHARE webinar: "Understanding Uterine Cancer Treatment Options" What would you like to learn more about?
https://www.sharecancersupport.org/understanding-uterine-cancer-treatment-options-video/ Such a great presentation with lots information. I keep having to go back and look at it. It's one of the few webinars that even talk about my treatment option and talks about combined hormone therapy. How do
https://www.sharecancersupport.org/understanding-uterine-cancer-treatment-options-video/ Such a great presentation with lots information. I keep having to go back and look at it. It's one of the few webinars that even talk about my treatment option and talks about combined hormone therapy. How do
Merma
Moderator
in
SHARE Uterine Cancer Support
9 months ago
Sciatica
I went off ADT 9 months ago after 6 months of Elegard depot treatment following prostate radiation. I know that many of the side effects of ADT can persist months and even years after stopping Elegard (Lupron). But I seem to have developed new symptoms (breast sensitivity and sciatica) 6 months after
I went off ADT 9 months ago after 6 months of Elegard depot treatment following prostate radiation. I know that many of the side effects of ADT can persist months and even years after stopping Elegard (Lupron). But I seem to have developed new symptoms (breast sensitivity and sciatica) 6 months after
sciaticaman
in
Advanced Prostate Cancer
9 months ago
Re: Weight lifting for ADT fat gain and weight gain
A huge thank you šš» to everybody who posted comments for my son about lifting weights for weight gain/fat accumulation while on ADT . I sent them on and he did read them, and he called and told me that he was going to go that route and possibly higher a personal trainer too! Despite hiking just about
A huge thank you šš» to everybody who posted comments for my son about lifting weights for weight gain/fat accumulation while on ADT . I sent them on and he did read them, and he called and told me that he was going to go that route and possibly higher a personal trainer too! Despite hiking just about
Cactus297
in
Advanced Prostate Cancer
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Return of Armpit Odor - Yikes!!!
For almost two years, I (and others! š) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
For almost two years, I (and others! š) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
JohnInTheMiddle
in
Advanced Prostate Cancer
9 months ago
First test results after adding T3 - Iām confused!
Hi everyone, Iād really appreciate your help with my latest results and welcome ideas for suggested next steps. Just a reminder, I currently self-treat. In October I posted the following results (Randox) whilst on 62.5mcg of Levo (Eutirox): TSH 1.44 (0.35-5.5) FT4 18.2 (11.9-21.6) FT3 3.96 (3.1
Hi everyone, Iād really appreciate your help with my latest results and welcome ideas for suggested next steps. Just a reminder, I currently self-treat. In October I posted the following results (Randox) whilst on 62.5mcg of Levo (Eutirox): TSH 1.44 (0.35-5.5) FT4 18.2 (11.9-21.6) FT3 3.96 (3.1
J972
in
Thyroid UK
9 months ago
Estrogen vs ADT?
I've read 5 recent papers that discuss the use of estrogen as an alternative treatment to ADT (Lupron, etc.). The new data looks very favorable. A bit of history. Huggins discovered this effect around 1941-44, and he found that high doses of estrogen (estradiol) efficiently castrated men, which
I've read 5 recent papers that discuss the use of estrogen as an alternative treatment to ADT (Lupron, etc.). The new data looks very favorable. A bit of history. Huggins discovered this effect around 1941-44, and he found that high doses of estrogen (estradiol) efficiently castrated men, which
janebob99
in
Prostate Cancer Network
9 months ago
DEXA scan result Poor. What to do about T3? Endocrinologist unhappy with suppressed TSH even before DEXA. How do I advocate for myself now?!
Afternoon All, Iāve just received a letter from my Second Opinion Endocrinologist with the results of my first ever DEXA scan. She is not happy. T Scores (no idea what any of this means, btw!): -1.6 L spine, -0.4 total hip, -0.9 NOF A few months back I was told by Endocrinologist One to reduce my
Afternoon All, Iāve just received a letter from my Second Opinion Endocrinologist with the results of my first ever DEXA scan. She is not happy. T Scores (no idea what any of this means, btw!): -1.6 L spine, -0.4 total hip, -0.9 NOF A few months back I was told by Endocrinologist One to reduce my
Abi-Abster
in
Thyroid UK
9 months ago
Age and timing for Triplet therapy?
I am age 81, active and neither fit nor frail, radiated in 2021 without hormone therapy. Radiated again in 2023 for a pelvic node. In December the PSA rose to 3.78 and a PSMA-PET scan showed cancer growing in prostate, shrinking in pelvic node, and spread to one abdominal node. I started ADT with
I am age 81, active and neither fit nor frail, radiated in 2021 without hormone therapy. Radiated again in 2023 for a pelvic node. In December the PSA rose to 3.78 and a PSMA-PET scan showed cancer growing in prostate, shrinking in pelvic node, and spread to one abdominal node. I started ADT with
vintage42
in
Advanced Prostate Cancer
9 months ago
coming off gnhr analogue injections
Iāve been on gnhr analogue injections for endo and adeno for a year and they relieved all my symptoms. My consultant has now taken me off them as they started wearing off after 3 weeks and he wanted to āsee how I got on without themā (which is a whole different matter and Iām quite angry about). Iām
Iāve been on gnhr analogue injections for endo and adeno for a year and they relieved all my symptoms. My consultant has now taken me off them as they started wearing off after 3 weeks and he wanted to āsee how I got on without themā (which is a whole different matter and Iām quite angry about). Iām
lauraeastw
in
Endometriosis UK
9 months ago
Duluxotine
Hi. I have been on Duluxotine for about 5 months now and have not felt any benefits re: pain. It has been making me wake up.in the night and more tired. I had a cold turkey over Christmas as I couldn't get my meds and had to go back on them after 5 days as I was still rattling. I take Pregablin as well
Hi. I have been on Duluxotine for about 5 months now and have not felt any benefits re: pain. It has been making me wake up.in the night and more tired. I had a cold turkey over Christmas as I couldn't get my meds and had to go back on them after 5 days as I was still rattling. I take Pregablin as well
Catsandcakes77
in
Fibromyalgia Action UK
9 months ago
perineural Invasion
My prostate biopsy has discovered perineural invasion (cancer along nerves) in 4 out of 6 sites with Gleason Score 9 in half of my prostate. This is associated with a significantly worse prognosis for survival. What are experiences of other men with this diagnosis? I am 84, in good health, and preparing
My prostate biopsy has discovered perineural invasion (cancer along nerves) in 4 out of 6 sites with Gleason Score 9 in half of my prostate. This is associated with a significantly worse prognosis for survival. What are experiences of other men with this diagnosis? I am 84, in good health, and preparing
Worked_the_World
in
Advanced Prostate Cancer
9 months ago
Statin use and mortality risk in men on ADT.
New ADT study from Hong Kong (1). "A total of 4920 patients were included, consisting of 2578 statin users and 2342 non-users (mean age 76.1 Ā± 8.2 years). Over a mean follow-up period of 4.2 Ā± 3.3 years, it was observed that statin users had significantly lower risks of both PCa-related mortality
New ADT study from Hong Kong (1). "A total of 4920 patients were included, consisting of 2578 statin users and 2342 non-users (mean age 76.1 Ā± 8.2 years). Over a mean follow-up period of 4.2 Ā± 3.3 years, it was observed that statin users had significantly lower risks of both PCa-related mortality
pca2004
in
Fight Prostate Cancer
9 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
9 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisoneā¦..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bedā¦ā¦initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisoneā¦..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bedā¦ā¦initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
8 months ago
The devil's dilemma
Between a rock and a hard place I am not sure if this topic has been discussed here before but itās extremely frustrating to me since I donāt understand which way to go Very very interesting video. In a nut shell, the video discussion is about the introduction of NEPC and progression from HS to
Between a rock and a hard place I am not sure if this topic has been discussed here before but itās extremely frustrating to me since I donāt understand which way to go Very very interesting video. In a nut shell, the video discussion is about the introduction of NEPC and progression from HS to
StayingOptimistic
in
Advanced Prostate Cancer
9 months ago
Pirtobrutinib triple trial Cycle 7 update
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naĆÆve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naĆÆve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
SeymourB
in
CLL Support
1 year ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
9 months ago
After bicalutimide and a high testosterone level is pre treatment T just guess work?
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
SimMartin
in
Prostate Cancer Network
9 months ago
Divergent second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
Cali3
in
Advanced Prostate Cancer
9 months ago
New possible treatment being researched
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Shamrock46
in
Advanced Prostate Cancer
9 months ago
1
...
76
77
78
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4614 results
Thyroid UK
2429 results
Endometriosis UK
1893 results
View top 10 communities
Sort by
Most Relevant
Newest