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Confused
I have been on high dose pred for 5 months....from60mg down to 30 and back up a few times. I had 2 Actemra injections(epi-pen) and my rheamy says my bloodwork shows almost normal inflammation . I am currently on 35 mg pred and going to 30 next week. I still get a light headache....now my problem is that
I have been on high dose pred for 5 months....from60mg down to 30 and back up a few times. I had 2 Actemra injections(epi-pen) and my rheamy says my bloodwork shows almost normal inflammation . I am currently on 35 mg pred and going to 30 next week. I still get a light headache....now my problem is that
Joseph14612
in
PMRGCAuk
2 years ago
OFCABG
On Monday 10 10 2022 had the OFCABG. first day very rough as i felt like i could not breathe. Got home Friday. but still weak and neck pain. Incision itchy but does not hurt as much as a rotator cuff surgery 5 years ago. Hurt really bad. Do not have strength yet and sleeping in recliner. appetite
On Monday 10 10 2022 had the OFCABG. first day very rough as i felt like i could not breathe. Got home Friday. but still weak and neck pain. Incision itchy but does not hurt as much as a rotator cuff surgery 5 years ago. Hurt really bad. Do not have strength yet and sleeping in recliner. appetite
Montana77
in
British Heart Foundation
2 years ago
Beta blockers
Ive been on 2.5 bisopherol since june 7th. lve gradually got worse and worse with my leg pains to the point l could not walk .Every bone ached and joints painful .l decided to cut to half 1.25 and within 4 days l'm feeling marginally better every day. I'm still on a channel blocker and plavix bp
Ive been on 2.5 bisopherol since june 7th. lve gradually got worse and worse with my leg pains to the point l could not walk .Every bone ached and joints painful .l decided to cut to half 1.25 and within 4 days l'm feeling marginally better every day. I'm still on a channel blocker and plavix bp
Cupcake8908
in
British Heart Foundation
2 years ago
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fitful sleeps
I have cardiomyopathy with no symptoms at this point. The only issue is my interrupted sleeping with fidgeting and the need to stretch my hamstrings .( bizarre I know) .I am on telmisartin plus for BP and Plavix and Crestor.Also sertraline which is for anxiety.My question is and I would ask the Dr. This
I have cardiomyopathy with no symptoms at this point. The only issue is my interrupted sleeping with fidgeting and the need to stretch my hamstrings .( bizarre I know) .I am on telmisartin plus for BP and Plavix and Crestor.Also sertraline which is for anxiety.My question is and I would ask the Dr. This
Darcy2000
in
British Heart Foundation
2 years ago
GCA Update and...Cartoon Diary!
I haven't posted in a bit although every morning at 2:30am my HU digest comes in (and of course, because of pred i'm awake) and devour the posts which I so look forward to. They are so helpful and give such a sense of supportive community. Here's update. Saw new rheumy. Previous rheumy i only saw once
I haven't posted in a bit although every morning at 2:30am my HU digest comes in (and of course, because of pred i'm awake) and devour the posts which I so look forward to. They are so helpful and give such a sense of supportive community. Here's update. Saw new rheumy. Previous rheumy i only saw once
Cobalt2sister
in
PMRGCAuk
2 years ago
coronery stent
Hello friends I am programmed tomorrow for coronery stant, is there anyone who has done the same surgery and how it went, it hurt, what to expect next, do I take plavix? I've been diagnosed with JAK2V617F and hypertension, taking xydroxy 3 times a week+aspirin. Sorry of my lack of english and
Hello friends I am programmed tomorrow for coronery stant, is there anyone who has done the same surgery and how it went, it hurt, what to expect next, do I take plavix? I've been diagnosed with JAK2V617F and hypertension, taking xydroxy 3 times a week+aspirin. Sorry of my lack of english and
krotsida
in
MPN Voice
2 years ago
Crazy update from neuron ophthalmologist appt.
well went for follow up after temporal artery biopsy was negative. I've been on 80 prednisone for 2 weeks ( some metropolitan packs before that). Had trip to ER per her recommendation after temporary blind spot peripheral vision 2 times....sooooo...doc doesn't think its GCA tho she admits biopsy size
well went for follow up after temporal artery biopsy was negative. I've been on 80 prednisone for 2 weeks ( some metropolitan packs before that). Had trip to ER per her recommendation after temporary blind spot peripheral vision 2 times....sooooo...doc doesn't think its GCA tho she admits biopsy size
Cobalt2sister
in
PMRGCAuk
2 years ago
Just read the stories of GCA March 22...I'm new
I have learned so much thank you , and from stories have been looking at some past symptoms I had in new light. May be related to the GCA for which they are now treating me ( and pending recent biopsy results). Most recently visual disturbances (80 pred). Prior temple headaches into occipital, enlarged
I have learned so much thank you , and from stories have been looking at some past symptoms I had in new light. May be related to the GCA for which they are now treating me ( and pending recent biopsy results). Most recently visual disturbances (80 pred). Prior temple headaches into occipital, enlarged
Cobalt2sister
in
PMRGCAuk
2 years ago
Coming off plavix.
Hi all,Saw me cardiologists Wednesday and he told me that next month his stopping my plavix medication which I have been on since my heart attack last May when I had a stent put in,I'm also on pradaxa blood thinners twice a day,my question is I have read many reports that stopping plavix can be dangerous
Hi all,Saw me cardiologists Wednesday and he told me that next month his stopping my plavix medication which I have been on since my heart attack last May when I had a stent put in,I'm also on pradaxa blood thinners twice a day,my question is I have read many reports that stopping plavix can be dangerous
pet131
in
British Heart Foundation
3 years ago
Thank you for your replies to my post about Plavix
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
Bluetoday1
in
MPN Voice
3 years ago
Blood clots from Cancer
I understand having Cancer can predispose one to thickened blood....and blood clots....and having strokes. My husband was diagnosed with stage 4 prostate cancer...and bone cancer in several places in July.....and, last week had a stroke too. Doctors put him on PLAVIX to thin his blood to prevent any
I understand having Cancer can predispose one to thickened blood....and blood clots....and having strokes. My husband was diagnosed with stage 4 prostate cancer...and bone cancer in several places in July.....and, last week had a stroke too. Doctors put him on PLAVIX to thin his blood to prevent any
JaMaArky
in
Advanced Prostate Cancer
3 years ago
Taking Plavix (generic clopidogrel) for PV
I have tried Hydroxyurea and Anagrelide but both of them were intolerable for me. I was getting ready to go on Jakafi (very expensive as others have pointed out). My HCT seems to be under control with an occasional phlebotomy but platelets are still very, very high. At my last Hematology appointment
I have tried Hydroxyurea and Anagrelide but both of them were intolerable for me. I was getting ready to go on Jakafi (very expensive as others have pointed out). My HCT seems to be under control with an occasional phlebotomy but platelets are still very, very high. At my last Hematology appointment
Bluetoday1
in
MPN Voice
3 years ago
Question on specialists for extremely high APS auto antibodies
Hi - I am new here too and recently diagnosed with APS after vasc surgeon finding a blood clot in an artery in my arm. Now both my cardiolipin IgG and my beta 2 glucoprotein 1 IgG are both off the charts high....too high to measure. I am very scared about more clots and symptoms, or worse. I started
Hi - I am new here too and recently diagnosed with APS after vasc surgeon finding a blood clot in an artery in my arm. Now both my cardiolipin IgG and my beta 2 glucoprotein 1 IgG are both off the charts high....too high to measure. I am very scared about more clots and symptoms, or worse. I started
new2aps
in
Hughes Syndrome APS Forum
3 years ago
Plavix and ITP
I was diagnosed with ITP a month ago. Platelets of 1. I was on Plavix and baby aspirin along with Zoloft. Was anyone on the same or similar medications when diagnosed. Initially my Dr thought the medication caused the low platelets. I have been off them for a month though and at this point it seems
I was diagnosed with ITP a month ago. Platelets of 1. I was on Plavix and baby aspirin along with Zoloft. Was anyone on the same or similar medications when diagnosed. Initially my Dr thought the medication caused the low platelets. I have been off them for a month though and at this point it seems
joecirillo
in
ITP Support Association
3 years ago
Reconsidering Vinpocetine - Not Feeling Well Today
So I took Vinpocetine yesterday, 2 doses of 30 mg, which put me at the high end (or over) the recommended dosing). Woke up feeling nauseous. Then I read Elliot's and Julie's warning and article https://www.verywellhealth.com/the-benefits-of-vinpocetine-89593#:~:text=Vinpocetine%20may%20slow%20blood%
So I took Vinpocetine yesterday, 2 doses of 30 mg, which put me at the high end (or over) the recommended dosing). Woke up feeling nauseous. Then I read Elliot's and Julie's warning and article https://www.verywellhealth.com/the-benefits-of-vinpocetine-89593#:~:text=Vinpocetine%20may%20slow%20blood%
Bolt_Upright
in
Cure Parkinson's
3 years ago
Pregnant and having ET
Hi everyone. I am 6 weeks pregnant and was on plavix for my ET. But now dr. Wants me to put on aspirin, as plavix is not safe during pregnancy. Anyone who experienced pregnancy and taking aspirin?how much aspirin? Baby or adult aspirin?any side effects?
Hi everyone. I am 6 weeks pregnant and was on plavix for my ET. But now dr. Wants me to put on aspirin, as plavix is not safe during pregnancy. Anyone who experienced pregnancy and taking aspirin?how much aspirin? Baby or adult aspirin?any side effects?
mustabshra
in
MPN Voice
3 years ago
which drug is reducing my heart rate whic is 40
heart rate 44 daily dose Irbesarten 300mgm, lercandipine10mg, plavix 75mg, bisoprolol5 mg, lipitor 80 mg, which one is reducing heart rate. I am 80yrs and very active no dizzy . on irbersarten 20 yrs see it does reduce heart rate. Stuck in Philippine jungle only Sharmans and witch doctors.
heart rate 44 daily dose Irbesarten 300mgm, lercandipine10mg, plavix 75mg, bisoprolol5 mg, lipitor 80 mg, which one is reducing heart rate. I am 80yrs and very active no dizzy . on irbersarten 20 yrs see it does reduce heart rate. Stuck in Philippine jungle only Sharmans and witch doctors.
berniekkk
in
British Heart Foundation
3 years ago
Plavix and shortness of breath
Had a stent put in my heart and now on plavix and aspirin,now get bouts of bad shortness of breath which put my BP all over the place and making me feel very light headed and weak,hoping to come off plavix and try something different.
Had a stent put in my heart and now on plavix and aspirin,now get bouts of bad shortness of breath which put my BP all over the place and making me feel very light headed and weak,hoping to come off plavix and try something different.
pet131
in
British Heart Foundation
3 years ago
Cardiomyopathy blues
Since being diagnosed with Cardiomyopathy ( Ejection fraction 45) which really isn’t that bad I have felt so light headed and nauseated .Put on the usual heart meds beta blockers ,plavix and BP med as protection for any event . BP is checked by me regularly and is not too low .My question is if it is
Since being diagnosed with Cardiomyopathy ( Ejection fraction 45) which really isn’t that bad I have felt so light headed and nauseated .Put on the usual heart meds beta blockers ,plavix and BP med as protection for any event . BP is checked by me regularly and is not too low .My question is if it is
Darcy2000
in
British Heart Foundation
3 years ago
Slow Pred taper for PMR and GCA
Recently on top of everything else I was put on an array of heart meds for Cardiomyopathy. Plavix, Bisopropolol and temisartan for BP. I am also on Actemra . I am doing a slow taper of Pred 1 mg every 6 weeks and currently at 8 mgs and I have 2 months left on Actemra. I am always light headed and it
Recently on top of everything else I was put on an array of heart meds for Cardiomyopathy. Plavix, Bisopropolol and temisartan for BP. I am also on Actemra . I am doing a slow taper of Pred 1 mg every 6 weeks and currently at 8 mgs and I have 2 months left on Actemra. I am always light headed and it
Darcy2000
in
PMRGCAuk
3 years ago
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