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heart failure and type 2 diabetes.
I have LBBB, diagnosed at age 32, now age 66. I am type 2 diabetic diagnosed 2019 . I have Left ventricle systolic dysfunction EF 40%. Stage 3 kidney disease, diagnosed June ‘23, I cannot tolerate statins as they send my blood Glucose levels into overdrive, most recently last June. The Doctor wanted
I have LBBB, diagnosed at age 32, now age 66. I am type 2 diabetic diagnosed 2019 . I have Left ventricle systolic dysfunction EF 40%. Stage 3 kidney disease, diagnosed June ‘23, I cannot tolerate statins as they send my blood Glucose levels into overdrive, most recently last June. The Doctor wanted
Sukaya
in
British Heart Foundation
6 months ago
PMR and Gluten Free Foods
I have been on a Vegan diet for over 17 years. I have recently read that there is a direct correlation between Gluten and inflammation. Has anyone with PMR been on a Gluten Free diet and noticed any difference in their symptoms?
I have been on a Vegan diet for over 17 years. I have recently read that there is a direct correlation between Gluten and inflammation. Has anyone with PMR been on a Gluten Free diet and noticed any difference in their symptoms?
RaisinBran
in
PMRGCAuk
6 months ago
New study of a ketogenic diet in Parkinson's
https://www.tandfonline.com/doi/full/10.1080/17582024.2024.2352394 [u]
Abstract
[/u]
Aim
: Evidence suggests low-carbohydrate diets (LCHF) may assist in treating neurodegenerative diseases such as Parkinson's disease (PD); however, gaps exist in the literature.
Patients & methods:
https://www.tandfonline.com/doi/full/10.1080/17582024.2024.2352394 [u]
Abstract
[/u]
Aim
: Evidence suggests low-carbohydrate diets (LCHF) may assist in treating neurodegenerative diseases such as Parkinson's disease (PD); however, gaps exist in the literature.
Patients & methods:
mitochondria
in
Cure Parkinson's
1 month ago
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DBS operation
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
Potatoskins
in
My MSAA Community
3 months ago
Any info or experience with light headedness and circulation issues with PD?
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
whitdemo
in
Cure Parkinson's
3 months ago
10k training run
Hi folks 🤗 just thought I'd update you on how my training is going. Today I'm up to 6k run I could pinch myself as never thought I'd get to do anything like that again!! Feeling good though wee bit knee trouble now and then. But nothing a pain killer and deep heat can sort. I'm joining a park run group
Hi folks 🤗 just thought I'd update you on how my training is going. Today I'm up to 6k run I could pinch myself as never thought I'd get to do anything like that again!! Feeling good though wee bit knee trouble now and then. But nothing a pain killer and deep heat can sort. I'm joining a park run group
22alfie
in
British Heart Foundation
9 months ago
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
3 months ago
Sky high hba1c
I was diagnosed May/June 23. I had just had my diabetes check and all was OK. Fast forward to December check and definitely not ok! I had been eating low carb and had lost weight. Life became very difficult from October with a nasty fall, mental heath crisis for our grandson while we were looking
I was diagnosed May/June 23. I had just had my diabetes check and all was OK. Fast forward to December check and definitely not ok! I had been eating low carb and had lost weight. Life became very difficult from October with a nasty fall, mental heath crisis for our grandson while we were looking
Noideas
in
PMRGCAuk
6 months ago
How I reinvented myself after PMR
I have sat here and thought to myself I haven’t reinvented myself at all, I then thought again and realised that yes I have. Before my symptoms started I worked part time in a major supermarket and would take overtime. I started the symptoms and carried on thinking everything was okay and would improve
I have sat here and thought to myself I haven’t reinvented myself at all, I then thought again and realised that yes I have. Before my symptoms started I worked part time in a major supermarket and would take overtime. I started the symptoms and carried on thinking everything was okay and would improve
Koalajane
in
PMRGCAuk
6 months ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
3 months ago
T3 only and feeling a bit desperate
I have been taking T3 only for a handful of years now and for a couple of them on a LCHF diet I was happy enough. I lost weight, and felt good. In October 2020 I restarted HRT (I still had/have) hot flushes, but within 2 months I had started to gain weight and on balance I thought that I would rather
I have been taking T3 only for a handful of years now and for a couple of them on a LCHF diet I was happy enough. I lost weight, and felt good. In October 2020 I restarted HRT (I still had/have) hot flushes, but within 2 months I had started to gain weight and on balance I thought that I would rather
Icicles
in
Thyroid UK
2 months ago
Pelvic pain and bloating,
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Lawnmow
in
Pelvic Pain Support Network
7 months ago
apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
3 months ago
Struggling again
Hi After a few months of feeling relatively ok and booking a 5 week cruise for February I am now struggling again and doubting I will be able to go . I haven’t said anything to my husband yet and that’s making me very anxious . I always sufffer badly with anxiety and I think it’s when my T3 is low .
Hi After a few months of feeling relatively ok and booking a 5 week cruise for February I am now struggling again and doubting I will be able to go . I haven’t said anything to my husband yet and that’s making me very anxious . I always sufffer badly with anxiety and I think it’s when my T3 is low .
jodary
in
Thyroid UK
7 months ago
Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
3 months ago
Stressing
I've been a bit quiet for a while but that doesn't mean to say I've stopped running. I've been ringing the changes with my runs and really enjoying them. Our park run was cancelled last week as part of the course was flooded but I got on the treadmill instead. I've also been going to my alternative
I've been a bit quiet for a while but that doesn't mean to say I've stopped running. I've been ringing the changes with my runs and really enjoying them. Our park run was cancelled last week as part of the course was flooded but I got on the treadmill instead. I've also been going to my alternative
Bruch1
Graduate
in
Couch to 5K
9 months ago
deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
4 months ago
Chronic Hashimotos and long term side effects
Hi, I was diagnosed with Hashimotos 41 years ago after 6 years of feeling awful. A locum GP spotted a goitre in my throat as I was talking to him. I have been on 100 mcg of Thyroxine ever since. Now I am 66 . I have always suffered from hypoglycaemia-type symptoms after any type of exercise (even
Hi, I was diagnosed with Hashimotos 41 years ago after 6 years of feeling awful. A locum GP spotted a goitre in my throat as I was talking to him. I have been on 100 mcg of Thyroxine ever since. Now I am 66 . I have always suffered from hypoglycaemia-type symptoms after any type of exercise (even
HeartofApple
in
Thyroid UK
7 months ago
Nausea - is it the pred, or something else?
Hello and thank you for the constant flow of useful insights. I know that stomach problems are a known side effect of steroid use, but I couldn’t see anything under nausea in the FAQs - sorry if I’ve missed it. This is my story: I’m 73, PMR diagnosed in summer 2020; since when I have reduced successfully
Hello and thank you for the constant flow of useful insights. I know that stomach problems are a known side effect of steroid use, but I couldn’t see anything under nausea in the FAQs - sorry if I’ve missed it. This is my story: I’m 73, PMR diagnosed in summer 2020; since when I have reduced successfully
calibriel
in
PMRGCAuk
7 months ago
Iodised Salt
Should I used iodised salt? (on gluten free diet/hypothyroid/levothyroxine) I note that ordinary Table/Cooking Salt is not iodised.
Should I used iodised salt? (on gluten free diet/hypothyroid/levothyroxine) I note that ordinary Table/Cooking Salt is not iodised.
Fortie
in
Thyroid UK
7 months ago
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