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Decompensated liver
Hi my husband was diagnosed with decompensated liver in October 22, he's abstained from alcohol, has lost 3 stone,and looks and feels well!Past few days he's noticed his feet swelling again, it's hard to put his shoes on! He's on spironolactone 100mg everyday with 20mg furosemide in morning and 40mg
Hi my husband was diagnosed with decompensated liver in October 22, he's abstained from alcohol, has lost 3 stone,and looks and feels well!Past few days he's noticed his feet swelling again, it's hard to put his shoes on! He's on spironolactone 100mg everyday with 20mg furosemide in morning and 40mg
Tulip1973
in
British Liver Trust
1 year ago
Experience of benign liver tumours or liver cysts?
A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them. Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would
A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them. Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Liver Stent/Tips
Hi, I had a tips in May 2022, within 6 weeks it failed and I had urgent surgery to correct it in July 2022. I've been told my new TIPS is very big. Since then I have felt absolutely amazing. However, past week I've had a build up of ascities - not huge but enough to see my weight increase by 7lbs. I
Hi, I had a tips in May 2022, within 6 weeks it failed and I had urgent surgery to correct it in July 2022. I've been told my new TIPS is very big. Since then I have felt absolutely amazing. However, past week I've had a build up of ascities - not huge but enough to see my weight increase by 7lbs. I
BumbleCat
in
British Liver Trust
1 year ago
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Ggt of 110
Hello,The GP surgery phoned up yesterday just a day after I had an LTF. Apparently my GGT was 110 though the ATL only 29. Why would this be? I have cut back in the last six months (used to drink 25 units a week) but admit I did drink quite a bit of wine in December, Xmas etc. I also ate more sugars
Hello,The GP surgery phoned up yesterday just a day after I had an LTF. Apparently my GGT was 110 though the ATL only 29. Why would this be? I have cut back in the last six months (used to drink 25 units a week) but admit I did drink quite a bit of wine in December, Xmas etc. I also ate more sugars
Redgasworks1
in
British Liver Trust
1 year ago
spider nevi?
Had labs about a year ago and all was perfectly normal. I drank a bit heavily in the pandemic but have since slowed down and stoped completely this month. Anxiety is though the roof. No family history of liver issues, or pain or other symptoms to note of. Appreciate any advice, I’ll be seeing my doctor
Had labs about a year ago and all was perfectly normal. I drank a bit heavily in the pandemic but have since slowed down and stoped completely this month. Anxiety is though the roof. No family history of liver issues, or pain or other symptoms to note of. Appreciate any advice, I’ll be seeing my doctor
John398
in
British Liver Trust
1 year ago
Green/grey stools
I had a drink on Christmas day and boxing day after not drinking for 6 months, I've had a pain in my liver area for over year all test CT scan blood test were normal ultrasound said fatty liver, the green/grey stools seem to have gone now more of a yellow/brown colour I've had another lft and the gamma
I had a drink on Christmas day and boxing day after not drinking for 6 months, I've had a pain in my liver area for over year all test CT scan blood test were normal ultrasound said fatty liver, the green/grey stools seem to have gone now more of a yellow/brown colour I've had another lft and the gamma
Hidden
in
British Liver Trust
1 year ago
Done a home liver blood test
Hi, I done a liver blood test at home and sent it off to the lab. there was 8 markers in the results 7 of them were normal, but the gamma gt was high it was 87 U/L after having a drink on Xmas day and boxing day drinking 12 can's of John Smith's bitter after being sober for 6 months. with that measurement
Hi, I done a liver blood test at home and sent it off to the lab. there was 8 markers in the results 7 of them were normal, but the gamma gt was high it was 87 U/L after having a drink on Xmas day and boxing day drinking 12 can's of John Smith's bitter after being sober for 6 months. with that measurement
Hidden
in
British Liver Trust
1 year ago
Should Alcohol Get a Worse Rap?
A bit out of the usual line of comment or 1uestion. Having never been a drinker ( can't stand the taste of it) I've always been bemused at what a big role alcohol plays in society. It's seen as a key aspects of most of life's big events, as well as being important as location of a social event, as a
A bit out of the usual line of comment or 1uestion. Having never been a drinker ( can't stand the taste of it) I've always been bemused at what a big role alcohol plays in society. It's seen as a key aspects of most of life's big events, as well as being important as location of a social event, as a
Walt1010
in
British Liver Trust
2 years ago
SPIRONOLACTONE . WHEN CAN I STOP TAKING IT?
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
bcsurfer
in
British Liver Trust
2 years ago
falling off the wagon
I have been diagnosed with cirrhosis and have been off alcohol since diagnosed 2 moths ago I was never a heavy drinker but did have a few bottles of beer the other day feeling bad about this now as have been told never to drink again have I just signed my death sentence ?
I have been diagnosed with cirrhosis and have been off alcohol since diagnosed 2 moths ago I was never a heavy drinker but did have a few bottles of beer the other day feeling bad about this now as have been told never to drink again have I just signed my death sentence ?
Tim12
in
British Liver Trust
2 years ago
End of Life Memories
Thinking back to a year ago I was busy trying to turn an unused room filled with a lifetime of boxes into a habitable, useable bedroom for the arrival of a hospital bed before the hospital would allow mum to come home.
Thinking back to a year ago I was busy trying to turn an unused room filled with a lifetime of boxes into a habitable, useable bedroom for the arrival of a hospital bed before the hospital would allow mum to come home.
2022minks
in
British Liver Trust
2 years ago
BLOODS & SCAN UPDATE
Just had my bloods results UKELD score 60 now was 69 a month ago still slightly yellow still, my spleen has shrunk 1.2cm to 18.6cm the right-hand lobe of my liver is normal in size now, slowly improving got appointment at QE hospital 13 dec for first transplant assessment still but hopefully all the
Just had my bloods results UKELD score 60 now was 69 a month ago still slightly yellow still, my spleen has shrunk 1.2cm to 18.6cm the right-hand lobe of my liver is normal in size now, slowly improving got appointment at QE hospital 13 dec for first transplant assessment still but hopefully all the
lonmallin50
in
British Liver Trust
2 years ago
Recent deterioration
I have an autoimmune liver disease called Nodular Regenerative Hyperplasia. This is caused by a primary immune condition called Common Variable Immune Deficiency. I have deteriorated slowly over 10 years and the phrase “ advanced liver disease” was used for the first time in September. A few weeks
I have an autoimmune liver disease called Nodular Regenerative Hyperplasia. This is caused by a primary immune condition called Common Variable Immune Deficiency. I have deteriorated slowly over 10 years and the phrase “ advanced liver disease” was used for the first time in September. A few weeks
Devonviolet
in
British Liver Trust
2 years ago
Update on hubby Nov 2022
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
mumof3girls
in
British Liver Trust
2 years ago
blood test results
Hi, I’m hoping someone can give some reassurance. receptionist from gp surgery called today with repeat blood test results to say my GGT levels were high and to avoid alcohol. I’ve booked a telephone consultation with a gp Monday to discuss these results. I had bloods done in august which they said my
Hi, I’m hoping someone can give some reassurance. receptionist from gp surgery called today with repeat blood test results to say my GGT levels were high and to avoid alcohol. I’ve booked a telephone consultation with a gp Monday to discuss these results. I had bloods done in august which they said my
Calll
in
British Liver Trust
2 years ago
liver pain
hey all haven’t drunk for about a month now after ages of heavy drinking probably about 6 years, yet still getting liver pain and soreness why hasn’t this gone yet ?
hey all haven’t drunk for about a month now after ages of heavy drinking probably about 6 years, yet still getting liver pain and soreness why hasn’t this gone yet ?
Deanneeral
in
British Liver Trust
2 years ago
Non-alcoholic fatty liver disease (NAFLD) in some cases may actually be alcoholic liver disease (ALD).
Perhaps this information has already been published on the forum. It seemed to me very interesting and worthy of attention. Excess fat in the liver cells can accumulate due to chronic poisoning with some substances - and most often this substance is alcohol. But fatty liver disease is very common in
Perhaps this information has already been published on the forum. It seemed to me very interesting and worthy of attention. Excess fat in the liver cells can accumulate due to chronic poisoning with some substances - and most often this substance is alcohol. But fatty liver disease is very common in
Fibro2021
in
British Liver Trust
2 years ago
portal hypertension.
Could anyone tell me what stage liver disease I'm at to have portal hypertension & gastric & oesophagus varices. Thank you.
Could anyone tell me what stage liver disease I'm at to have portal hypertension & gastric & oesophagus varices. Thank you.
Chichi58
in
British Liver Trust
2 years ago
Drug for post radiation fibrosis
Does anyone know anything about pentoxifylline, used to treat in post-radiation fibrosis, and it's affect in a patient with liver disease? I don't know why I'm even asking. It can't be OK? Pentoxifylline is supposed to increase blood supply and improve fibrosis. Or where to get more information? It
Does anyone know anything about pentoxifylline, used to treat in post-radiation fibrosis, and it's affect in a patient with liver disease? I don't know why I'm even asking. It can't be OK? Pentoxifylline is supposed to increase blood supply and improve fibrosis. Or where to get more information? It
LastChanceSalon
in
British Liver Trust
2 years ago
Giving up driving...
Hi I just needed to vent a bit and ask for advice on how to handle something. My husband has decompensated alcohol related liver disease. Cirrhosis, regularly gets new varices banded etc. He has been seen by the QE transplant team but his UKELD score is only 52 so they aren't assessing him yet and
Hi I just needed to vent a bit and ask for advice on how to handle something. My husband has decompensated alcohol related liver disease. Cirrhosis, regularly gets new varices banded etc. He has been seen by the QE transplant team but his UKELD score is only 52 so they aren't assessing him yet and
RustyTractor
in
British Liver Trust
2 years ago
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