A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them.
Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would be happy to answer a few questions by email, Zoom or Teams.
There is very little information available to people with some of these conditions. So your experiences can really help to shape our work and support others in a similar situation to you.
The conditions that will be part of this work are:
Hepatic (liver) Haemangioma
Focal nodule hyperplasia (FNH)
Hepatic (liver) Adenoma
Biliary hamartoma
Nodular regenerative hyperplasia
Simple liver cysts
Complex liver cysts
Polycystic liver disease (PLD)
Caroli disease and Caroli syndrome
Congenital hepatic fibrosis
Choledochal cysts (in adults)
Hydatid cysts in your liver
Thank you 🙏