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Introduction from AF sufferer - since 2012
Hi all I am 53 and male and I guess my story will be familiar. My first awareness of AF was after going to A&E feeling extremely fatigued and dreadful. 5 days later and two failed cardioversions later I was sent home with various medications. The next few months saw several other trips and hospital
Hi all I am 53 and male and I guess my story will be familiar. My first awareness of AF was after going to A&E feeling extremely fatigued and dreadful. 5 days later and two failed cardioversions later I was sent home with various medications. The next few months saw several other trips and hospital
Cristatus
in
AF Association
8 years ago
sleep apnoea and driving license
Hi there, I've been diagnosed with sleep apnoea (OSA) since oct 2015 and been on a CPAP machine since nov 2015. I have notified the DVLA as per the advice of my sleep apnoea clinic and been told by the DVLA that I have to return my driving license and have it changed to a 3 yearly license instead. Note
Hi there, I've been diagnosed with sleep apnoea (OSA) since oct 2015 and been on a CPAP machine since nov 2015. I have notified the DVLA as per the advice of my sleep apnoea clinic and been told by the DVLA that I have to return my driving license and have it changed to a 3 yearly license instead. Note
kungfoo-panda
in
PMRGCAuk
8 years ago
When it all goes wrong I start to worry
Having one of those "is it all worth it" days! October: exacerbation closely followed by another in November. Sleep study arranged in December and sleep apnoea diagnosis in January. February got off to a good start, found a mask that sort of worked, CPAP doing the job and right up to yesterday all was
Having one of those "is it all worth it" days! October: exacerbation closely followed by another in November. Sleep study arranged in December and sleep apnoea diagnosis in January. February got off to a good start, found a mask that sort of worked, CPAP doing the job and right up to yesterday all was
y_not
in
Lung Conditions Community Forum
8 years ago
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~Update on PMR & newly diagnosed sleep apnoea~
Diagnosed with PMR January 2015 although highly likely developed March/April 2014. Suspected GCA Sept 2015 and negative histology to temporal artery biopsy. Have been wanting to share my good news since using CPAP machine (continuous positive airway pressure) every night since being diagnosed with
Diagnosed with PMR January 2015 although highly likely developed March/April 2014. Suspected GCA Sept 2015 and negative histology to temporal artery biopsy. Have been wanting to share my good news since using CPAP machine (continuous positive airway pressure) every night since being diagnosed with
Megams
in
PMRGCAuk
9 years ago
Acupan (nefopam)
Hi i have been prescribed this painkiller to deal with break through pain for my PSA and cancer. I take MST Continus on a morning but the pain has so severe recently. Unfortunately I took the recommended dose yesterday and felt very light headed, and nauseous. Can anyone tell me if these side effects
Hi i have been prescribed this painkiller to deal with break through pain for my PSA and cancer. I take MST Continus on a morning but the pain has so severe recently. Unfortunately I took the recommended dose yesterday and felt very light headed, and nauseous. Can anyone tell me if these side effects
Slightly_ginger
in
NRAS
9 years ago
CARDIOVERSION
I HAVE JUST HAD MY SECOND CARDIO (MONDAY 16 NOVEMBER) HAD TO STAY IN HOSPITAL OVER NIGHT FOR MONITORING AS I AM ON CPAP MACHINE . ON THE LAST OPERATION I HAD WHICH WAS ON MY STOMACH IN MAY THIS YEAR I WAS TOLD THAT HAVING ANY FURTHER ANAESTHETIC COULD BE VERY DANGEROUS AS TO REGARDING MY HEART CONDITION
I HAVE JUST HAD MY SECOND CARDIO (MONDAY 16 NOVEMBER) HAD TO STAY IN HOSPITAL OVER NIGHT FOR MONITORING AS I AM ON CPAP MACHINE . ON THE LAST OPERATION I HAD WHICH WAS ON MY STOMACH IN MAY THIS YEAR I WAS TOLD THAT HAVING ANY FURTHER ANAESTHETIC COULD BE VERY DANGEROUS AS TO REGARDING MY HEART CONDITION
humbroad
in
AF Association
9 years ago
Fibromyalgia, meds and sweating
Hi all, just wondered if anyone else pours sweat with meds for fm. I was recently put on 30mg duloxetine (always think im talking about paint) then upped to 60mg and the sweating was unbelievable. At night I had to put a cold wet facecloth on my head to cool down. Sweats are always from shoulders up
Hi all, just wondered if anyone else pours sweat with meds for fm. I was recently put on 30mg duloxetine (always think im talking about paint) then upped to 60mg and the sweating was unbelievable. At night I had to put a cold wet facecloth on my head to cool down. Sweats are always from shoulders up
ell2
in
Fibromyalgia Action UK
9 years ago
COPD & CPAP
Sorry, I rarely post but just need some advice, please. Had COPD for 4 years, currently on steroids & antibiotics for a chest infection. Because of sleep issues and on advice of the GP I have been referred for sleep apnoea testing. While waiting (and because I'm getting some real bad nights) I stuck
Sorry, I rarely post but just need some advice, please. Had COPD for 4 years, currently on steroids & antibiotics for a chest infection. Because of sleep issues and on advice of the GP I have been referred for sleep apnoea testing. While waiting (and because I'm getting some real bad nights) I stuck
y_not
in
Lung Conditions Community Forum
9 years ago
Interstitial lung disease with no full diagnosis
Hi all, I'm Jez. I'm 29 and I have interstitial lung disease. In may 2014 I had to go to A+E due to "being very poorly". As it turned out I was going through chronic respiratory failure. My sats when I went in were somewhere between 40 and 50 and we were struggling to get them back up to a safe place
Hi all, I'm Jez. I'm 29 and I have interstitial lung disease. In may 2014 I had to go to A+E due to "being very poorly". As it turned out I was going through chronic respiratory failure. My sats when I went in were somewhere between 40 and 50 and we were struggling to get them back up to a safe place
Gsxrjez
in
Lung Conditions Community Forum
9 years ago
Living with PV for 47 years after father diagnosed days earlier.
In 1968-9 my father was diagnosed with PV and Spherocytosis by VA. His doctors suggested his direct family members also be test to see if disorders were hereditary. Out of 6 people, his mother, older brother, older sister, oldest daughter, son, and youngest daughter-me I was found to also have
In 1968-9 my father was diagnosed with PV and Spherocytosis by VA. His doctors suggested his direct family members also be test to see if disorders were hereditary. Out of 6 people, his mother, older brother, older sister, oldest daughter, son, and youngest daughter-me I was found to also have
Hidden
in
MPN Voice
9 years ago
Caring for a person with AF
My daughter is 26 and has congenital heart disease, she was admitted to hospital 3 weeks ago and diagnosed with AF. During 26 years of hospital visits this had never been mentioned or picked up before, can it have started all of a sudden. She has been put on warfarin, digoxin and verapamil. I am worried
My daughter is 26 and has congenital heart disease, she was admitted to hospital 3 weeks ago and diagnosed with AF. During 26 years of hospital visits this had never been mentioned or picked up before, can it have started all of a sudden. She has been put on warfarin, digoxin and verapamil. I am worried
dianef2303
in
AF Association
9 years ago
5 years on and no further forward
Hi, my symptoms started summer of 2010. I had a constant tremor in my right hand which quickly escalated to whole body jerks and spasms within a few months. I had suffered with a constant headache for a number of years, and had regular migraines. My GP referred me to a neurologist who I saw for a couple
Hi, my symptoms started summer of 2010. I had a constant tremor in my right hand which quickly escalated to whole body jerks and spasms within a few months. I had suffered with a constant headache for a number of years, and had regular migraines. My GP referred me to a neurologist who I saw for a couple
Alison2010
in
Functional Neurological Disorder - FND Hope
9 years ago
Cervical spondylosis
I was diagnosed with CS December 2011, just woke up one morning with a sore neck, I'd say I've tried majority of painkillers, none worked, I'm now taking MST continus, prolonged released morphine tablets 50mg twice a day, they ease the neck pain but do nothing for shoulders, arms, hands, fingers, legs
I was diagnosed with CS December 2011, just woke up one morning with a sore neck, I'd say I've tried majority of painkillers, none worked, I'm now taking MST continus, prolonged released morphine tablets 50mg twice a day, they ease the neck pain but do nothing for shoulders, arms, hands, fingers, legs
Pam6971
in
Pain Concern
9 years ago
Obstructive sleep aponea
Hi everyone hope your all as well as can be ive just been diagnosed with obstructive sleep aponea and am getting a CPAP machine tomorrow i am a bit worried about using it as i hate anything blowing in my face looking for some helpfull advice on it if anyone else has it thanks
Hi everyone hope your all as well as can be ive just been diagnosed with obstructive sleep aponea and am getting a CPAP machine tomorrow i am a bit worried about using it as i hate anything blowing in my face looking for some helpfull advice on it if anyone else has it thanks
brambles65
in
Lung Conditions Community Forum
9 years ago
2 week old superstars
Well, today is Holly and Poppy's 2 week milestone. The girls are currently going from strength to strength and are progressing well. They have both come off their ventilators and are both on CPAP (a continuous supply of pressurised oxygen). Both are having some of mummies milk, Poppy is taking in a
Well, today is Holly and Poppy's 2 week milestone. The girls are currently going from strength to strength and are progressing well. They have both come off their ventilators and are both on CPAP (a continuous supply of pressurised oxygen). Both are having some of mummies milk, Poppy is taking in a
Completenewbie
in
Pregnancy and Parenting Support
9 years ago
Home Nebuliser plus CPAP (Continuous Positive Airway Pressure)
Using Salbutamol 2mg/ml nebuliser solution (5mg/2.5ml) ampoule, combined with Ipatroprium Bromide 500 micrograms/2ml nebuliser solution, upto 4 times a day. CPAP every night during sleeping hours. How many are on a combination like this. When traveling by air, have to advise airline well in advance
Using Salbutamol 2mg/ml nebuliser solution (5mg/2.5ml) ampoule, combined with Ipatroprium Bromide 500 micrograms/2ml nebuliser solution, upto 4 times a day. CPAP every night during sleeping hours. How many are on a combination like this. When traveling by air, have to advise airline well in advance
I8tories
in
Asthma Community Forum
9 years ago
Mayonnaise for PD?
I don't like coconut oil. I like mayonnaise. And now they have them with no saturated fast and high omega threes. It seems to work A LOT better than coconut oil. my thinking is much clearer at least half a day after have 1 part bread to 2 parts mayonnaise. A tablespoon does my brain really, really
I don't like coconut oil. I like mayonnaise. And now they have them with no saturated fast and high omega threes. It seems to work A LOT better than coconut oil. my thinking is much clearer at least half a day after have 1 part bread to 2 parts mayonnaise. A tablespoon does my brain really, really
zawy
in
Cure Parkinson's
9 years ago
Thyroid
I have a growth on my thyroid which is growing downwards towards my heart. I have a CPAP mask to wear when I sleep which helps to keep my airways clear as the growth is obstructing my airway. I wanted to know if I can get a copy of my CT scan, which I can show my family so they understand better what
I have a growth on my thyroid which is growing downwards towards my heart. I have a CPAP mask to wear when I sleep which helps to keep my airways clear as the growth is obstructing my airway. I wanted to know if I can get a copy of my CT scan, which I can show my family so they understand better what
Lynn262
in
Thyroid UK
9 years ago
Nebuliser and CPAP (Continuous Positive Airway Pressure)
I have both these machines at home, the nebuliser, issued by the Royal Brompton Hospital, had since 2000 and the CPAP suggested required after Sleep Apnea study, whilst an inpatient, on 12 days, continuous iv amnophylin. Bought my own as ones offered by NHS, we're single pressure, and suggested variable
I have both these machines at home, the nebuliser, issued by the Royal Brompton Hospital, had since 2000 and the CPAP suggested required after Sleep Apnea study, whilst an inpatient, on 12 days, continuous iv amnophylin. Bought my own as ones offered by NHS, we're single pressure, and suggested variable
I8tories
in
Asthma Community Forum
9 years ago
Lost My Dad
First I want to say thanks to everyone who posts here. The stories of recovery kept me positive for my dad. He was 72 and had a brain aneurysm with SAH. My mom found him in the AM with his CPAP he was not responsive and had vomited in his CPAP. EMS came and cleared his airways he had aspirated and
First I want to say thanks to everyone who posts here. The stories of recovery kept me positive for my dad. He was 72 and had a brain aneurysm with SAH. My mom found him in the AM with his CPAP he was not responsive and had vomited in his CPAP. EMS came and cleared his airways he had aspirated and
kchamilton
in
Headway
9 years ago
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