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I'm desperately in need of help for my mum.
My mum is 89 on chemo, plus she has dialysis 3 times a week. She's also got AF and leg ulcers. She's been on pramiproxal for years and still suffers with RSL. The GP took her off that and put her on quinine but this doesn't do anything for it. They now want to take her off quinine due to the kidney
My mum is 89 on chemo, plus she has dialysis 3 times a week. She's also got AF and leg ulcers. She's been on pramiproxal for years and still suffers with RSL. The GP took her off that and put her on quinine but this doesn't do anything for it. They now want to take her off quinine due to the kidney
Robinstan
in
Restless Legs Syndrome
3 months ago
Any info on the drug Dapaglifozen?
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Will1408
in
LUPUS UK
3 months ago
Cramps
I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps in legs and hands? These seem to be worse at night or after relaxing on a sofa. I try to drink lots of water, take magnesium and calcium tablets but some nights it's waking me every hour. I have to get up and walk on
I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps in legs and hands? These seem to be worse at night or after relaxing on a sofa. I try to drink lots of water, take magnesium and calcium tablets but some nights it's waking me every hour. I have to get up and walk on
234WARD03
in
PBC Foundation
3 months ago
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Itchy/burning soles + 53% TSAT
First post here but been reading and learning for the last 6 months or so. I currently have 2 issues which I’d like some advice / comment on. The 2 questions are at the end of this post, thought I’d just give some (a lot) of background. Please feel free to skip to the end. I’ve had intermittent
First post here but been reading and learning for the last 6 months or so. I currently have 2 issues which I’d like some advice / comment on. The 2 questions are at the end of this post, thought I’d just give some (a lot) of background. Please feel free to skip to the end. I’ve had intermittent
MaxxRLS
in
Restless Legs Syndrome
4 months ago
My Start Page - What I've learned and do now.
This is the Start Here paper, with clues & tips for RLS sufferers. Print it out and refer to it often. It may be your road map to possible relief. START HERE - and welcome. If you actually have Restless Legs (or Limbs) Syndrome - RLS/PLMD (now also known as Willis-Eckbom Disease) and do not know
This is the Start Here paper, with clues & tips for RLS sufferers. Print it out and refer to it often. It may be your road map to possible relief. START HERE - and welcome. If you actually have Restless Legs (or Limbs) Syndrome - RLS/PLMD (now also known as Willis-Eckbom Disease) and do not know
fritz34
in
Restless Legs Syndrome
7 months ago
Calf Pain and PAD
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
GoldfishPond
in
British Heart Foundation
8 months ago
Premaprexole
I suffer RSL terribly I need help badly although it restless legs I suffer with my arms as well I am taking Premaprexole tramadol and quinine.nothing seems to work when I get the restless i have to get out of bed and walk around I can't sit and I can't lay down it's a continuous struggle it is affecting
I suffer RSL terribly I need help badly although it restless legs I suffer with my arms as well I am taking Premaprexole tramadol and quinine.nothing seems to work when I get the restless i have to get out of bed and walk around I can't sit and I can't lay down it's a continuous struggle it is affecting
Piecrusl1
in
Restless Legs Syndrome
9 months ago
quinine
I love my gin and tonic and came across some non alcoholic gin. Anyone know if having tonic, that has quinine, an issue for PC?
I love my gin and tonic and came across some non alcoholic gin. Anyone know if having tonic, that has quinine, an issue for PC?
Lslal
in
Advanced Prostate Cancer
9 months ago
Is it OK to drink Tonic Water?
Not being very keen on tea and coffee I struggle to drink plain water. For a time I drank soda water + elderflower cordial but because of the escalating cost of the latter I switched to low cost Tonic Water from Lidl. Somewhere in the back of my remaining brain cell is a vague feeling that the (minute
Not being very keen on tea and coffee I struggle to drink plain water. For a time I drank soda water + elderflower cordial but because of the escalating cost of the latter I switched to low cost Tonic Water from Lidl. Somewhere in the back of my remaining brain cell is a vague feeling that the (minute
quanglewangle
in
Atrial Fibrillation Support
10 months ago
Quinine
I have primary RLS, it's runs family. My mom, sister, brother and now son all have it. Mine started at 11 on a long car ride home. It worsened over the years. I told my family doctor about it at age 21 and he wrote me a script for Quinine capsules. Boom gone! Years later the new doctor says it didn't
I have primary RLS, it's runs family. My mom, sister, brother and now son all have it. Mine started at 11 on a long car ride home. It worsened over the years. I told my family doctor about it at age 21 and he wrote me a script for Quinine capsules. Boom gone! Years later the new doctor says it didn't
Rlssleepy
in
Restless Legs Syndrome
11 months ago
Quinine
Anyone ever hear about drinking tonic water before bedtime that contains quinine??
Anyone ever hear about drinking tonic water before bedtime that contains quinine??
Woody4
in
Restless Legs Syndrome
1 year ago
help and a little advice please
hi, I’m not sure how things work as of yet. I applied for pips and I was lucky and got it . Now my medication has been changed taken off gabapentin Amitriyline now taking topiramate , duloxetine, quinine, Co-Codamol .Should I let them know and will it affect my PIP snow could they stop me having
hi, I’m not sure how things work as of yet. I applied for pips and I was lucky and got it . Now my medication has been changed taken off gabapentin Amitriyline now taking topiramate , duloxetine, quinine, Co-Codamol .Should I let them know and will it affect my PIP snow could they stop me having
Mountain-of-gold
in
Fibromyalgia Action UK
1 year ago
PBA Pseudobulbar Affect
Medications that healthcare providers prescribe for PBA include:
Dextromethorphan
/
quinidine
sulfate (Nuedexta®): The FDA has approved a combination of
dextromethorphan
(a cough suppressant) and a very low dose of
quinidine
sulfate (a drug used in the past to treat cardiac arrhythmias) as the first drug
Medications that healthcare providers prescribe for PBA include:
Dextromethorphan
/
quinidine
sulfate (Nuedexta®): The FDA has approved a combination of
dextromethorphan
(a cough suppressant) and a very low dose of
quinidine
sulfate (a drug used in the past to treat cardiac arrhythmias) as the first drug
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
No meds….yet
Hi New to this forum and RLS. Insomnia is crippling me and affecting everything from weight gain to cognitive abilities. I am desperately seeking sleep. GP has prescribed Quinine but little affect. Also on iron tablets, B12, Vit D, Magnesium. Next stop Ropinole. I’m scared to take this as there appears
Hi New to this forum and RLS. Insomnia is crippling me and affecting everything from weight gain to cognitive abilities. I am desperately seeking sleep. GP has prescribed Quinine but little affect. Also on iron tablets, B12, Vit D, Magnesium. Next stop Ropinole. I’m scared to take this as there appears
careerSquirrel
in
Restless Legs Syndrome
1 year ago
Pramipexole relief
My doctor has just prescribed quinine as a relief from Pramipexole which I have been on for over 20 years. I was so taken aback I couldn't argue with her, but surely this doesn't work as well as any of the drugs described here. Has anyone had any success with quinine?
My doctor has just prescribed quinine as a relief from Pramipexole which I have been on for over 20 years. I was so taken aback I couldn't argue with her, but surely this doesn't work as well as any of the drugs described here. Has anyone had any success with quinine?
Carowind
in
Restless Legs Syndrome
1 year ago
quinine query
good morning everyone, i am suffering with Continual day and night SEVERE LEG CRAMPS they actually deform the shape of my feet and the pain continues up my entire lower legs, I had practically no sleep last night, it has been happening for quite a while but is getting much worse so a couple of weeks
good morning everyone, i am suffering with Continual day and night SEVERE LEG CRAMPS they actually deform the shape of my feet and the pain continues up my entire lower legs, I had practically no sleep last night, it has been happening for quite a while but is getting much worse so a couple of weeks
Dogloverxthree
in
British Heart Foundation
1 year ago
kidney problem & PMR
I’m on 20 mil steroids. I’m up every night every two hours 3/4 times a night . Started getting swelling on ankles / feet / legs & knees . Painful cramps in feet & calfs . Doctor put me on Quinine which help a bit but I know they are not good for me. Put me on Frumil water pills . Been two months & are
I’m on 20 mil steroids. I’m up every night every two hours 3/4 times a night . Started getting swelling on ankles / feet / legs & knees . Painful cramps in feet & calfs . Doctor put me on Quinine which help a bit but I know they are not good for me. Put me on Frumil water pills . Been two months & are
Vito5566
in
PMRGCAuk
2 years ago
Quinidine Sulphate
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
LeeLowry1
in
Arrhythmia Alliance
2 years ago
”Aggressive” AF
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July, I
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July, I
BeeBee79
in
AF Association
2 years ago
Aggressive Afib
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July,
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July,
BeeBee79
in
British Heart Foundation
2 years ago
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