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Experiences with
Dermatomyositis
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Can NHS GP's order an ENA Panel?
I am waiting for a rheumatology appointment (been waiting since September last year) and have suspected psoriatic arthritis then
dermatomyositis
. But recently I've been wondering if I don't just have plain old Sjogren's Syndrome.
I am waiting for a rheumatology appointment (been waiting since September last year) and have suspected psoriatic arthritis then
dermatomyositis
. But recently I've been wondering if I don't just have plain old Sjogren's Syndrome.
Chancery
in
Sjogren's Support
5 years ago
Anyone get calcinosis?
I only discovered what they were a few weeks ago when I discovered
Dermatomyositis
. It was the fact that they are rare that made me stick to my guns that this might be
Dermatomyositis
- that and the rashes, as I said.
I only discovered what they were a few weeks ago when I discovered
Dermatomyositis
. It was the fact that they are rare that made me stick to my guns that this might be
Dermatomyositis
- that and the rashes, as I said.
Chancery
in
Myositis UK
5 years ago
Diabetes Medicine Metformin for Moon Face
Mr Hough suffers from another rare condition which causes red, scaly rashes on the skin, called
dermatomyositis
, and is doctors told him the steroids would be effective for treating this, too. He says: ‘Taking steroids was like flicking a light switch.
Mr Hough suffers from another rare condition which causes red, scaly rashes on the skin, called
dermatomyositis
, and is doctors told him the steroids would be effective for treating this, too. He says: ‘Taking steroids was like flicking a light switch.
Estellemac
in
PMRGCAuk
5 years ago
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High Ferritin and High LDH - any thoughts?
The two most likely is muscle damage (I suspect
Dermatomyositis
, hence me asking her to check) and cancer. Obviously the idea of cancer worries me! If anyone has any ideas, or personal experience of this I'd be grateful to hear them. Thanks!
The two most likely is muscle damage (I suspect
Dermatomyositis
, hence me asking her to check) and cancer. Obviously the idea of cancer worries me! If anyone has any ideas, or personal experience of this I'd be grateful to hear them. Thanks!
Chancery
in
Myositis UK
5 years ago
Any experts on strange blood tests?
The two most likely is muscle damage (I suspected
Dermatomyositis
, hence me asking her to check) and cancer. Obviously the idea of cancer worries me! If anyone has any suggestions or ideas I'd be grateful to hear them. Thanks!
The two most likely is muscle damage (I suspected
Dermatomyositis
, hence me asking her to check) and cancer. Obviously the idea of cancer worries me! If anyone has any suggestions or ideas I'd be grateful to hear them. Thanks!
Chancery
in
Thyroid UK
5 years ago
Anybody really good with blood test diagnostics?
The two most likely is muscle damage (I suspected
Dermatomyositis
, hence me asking her to check) and cancer. Obviously the idea of cancer worries me! If anyone has any suggestions or ideas I'd be grateful to hear them. Thanks!
The two most likely is muscle damage (I suspected
Dermatomyositis
, hence me asking her to check) and cancer. Obviously the idea of cancer worries me! If anyone has any suggestions or ideas I'd be grateful to hear them. Thanks!
Chancery
in
Pernicious Anaemia Society
5 years ago
Anyone Had High Ferritin Levels?
I asked my doc if it might be related to my suspected
Dermatomyositis
but she said she didn't think so, but I'm not sure why not? If it is an inflammation marker and myositis inflames muscles, causing pain, which I have a-plenty, why mightn't high ferritin be reflecting that?
I asked my doc if it might be related to my suspected
Dermatomyositis
but she said she didn't think so, but I'm not sure why not? If it is an inflammation marker and myositis inflames muscles, causing pain, which I have a-plenty, why mightn't high ferritin be reflecting that?
Chancery
in
Myositis UK
5 years ago
21and new to having dermato, looking for guidance on how the treatment will be!
I recently found I have
dermatomyositis
. My ck is high(450) and adolase is high as well.. I am only 21 so this is shaking my world a bit. I thought I just had rosacea for a few years, but the gottrons were what made me realize.
I recently found I have
dermatomyositis
. My ck is high(450) and adolase is high as well.. I am only 21 so this is shaking my world a bit. I thought I just had rosacea for a few years, but the gottrons were what made me realize.
zoeavacado
in
Myositis UK
5 years ago
Can my GP help with tests?
Since then I feel it is much more likely I have
Dermatomyositis
. I have a new doctor (my old one referred me) and I wondered if they might be able to do some tests now to speed up a potential diagnosis. Does anyone know if GP's can do any tests to help? If they can, what should I ask for?
Since then I feel it is much more likely I have
Dermatomyositis
. I have a new doctor (my old one referred me) and I wondered if they might be able to do some tests now to speed up a potential diagnosis. Does anyone know if GP's can do any tests to help? If they can, what should I ask for?
Chancery
in
Myositis UK
5 years ago
Could I have dermatomyositis?
All I want to know is does this sound like it could be
dermatomyositis
?
All I want to know is does this sound like it could be
dermatomyositis
?
Chancery
in
Myositis UK
5 years ago
Newbie seeking advice! X
Just wondering if anyone who ended up being diagnosed with
Dermatomyositis
, had a normal ck result initially? I have had a chest rash for years, that looks like I have been sunbathing with a sleeveless t-shirt on, and a rash on my upper back. I also have had a rash on my arms for years too.
Just wondering if anyone who ended up being diagnosed with
Dermatomyositis
, had a normal ck result initially? I have had a chest rash for years, that looks like I have been sunbathing with a sleeveless t-shirt on, and a rash on my upper back. I also have had a rash on my arms for years too.
Traceyuk1968
in
Myositis UK
5 years ago
Rash On the Chest with Muscle Weakness
Dermatomyositis
and Degos disease are, rarely, associated.
Dermatomyositis
may be induced by medications, including hydroxyurea, penicillamine, interferon beta, and ipilimumab.
Dermatomyositis
and Degos disease are, rarely, associated.
Dermatomyositis
may be induced by medications, including hydroxyurea, penicillamine, interferon beta, and ipilimumab.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Dermatopolymyositis and Hashimotos.
I am really struggling healthwise at the moment and was diagnosed with Hashimotos last year and have now had a recent diagnosis of dermatopolymyositis...specifically
dermatomyositis
. .....I know it is a rare disease, but wondering if there is anyone else on this forum who may have experience of living
I am really struggling healthwise at the moment and was diagnosed with Hashimotos last year and have now had a recent diagnosis of dermatopolymyositis...specifically
dermatomyositis
. .....I know it is a rare disease, but wondering if there is anyone else on this forum who may have experience of living
Aesm
in
Thyroid UK
5 years ago
Could this be Dermatomyositis?
So I have the red bumps that come and go every so often, I have been diagnosed with Reynaud syndrome in the past. My fingers look puffy and these raised bumps show up and it only seem to happen on my right hand
So I have the red bumps that come and go every so often, I have been diagnosed with Reynaud syndrome in the past. My fingers look puffy and these raised bumps show up and it only seem to happen on my right hand
Soylatte14
in
LUpus Patients Understanding and Support
5 years ago
Gastro problems
I show features of scleroderma, rheumatoid arthritis,
dermatomyositis
, and Sjogren's. I am 24 now, and throughout this time, I have always struggled with some degree of stomach issues--nausea and stomach cramping mostly.
I show features of scleroderma, rheumatoid arthritis,
dermatomyositis
, and Sjogren's. I am 24 now, and throughout this time, I have always struggled with some degree of stomach issues--nausea and stomach cramping mostly.
searcher24
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Dermatomyositis
Hello I was diagnosed with
Dermatomyositis
in 2018 and still believe I’m not receiving the right care. I am in hopes to connect with others who can maybe give me some type of hope that there’s Doctors who actually know how to treat my condition.
Hello I was diagnosed with
Dermatomyositis
in 2018 and still believe I’m not receiving the right care. I am in hopes to connect with others who can maybe give me some type of hope that there’s Doctors who actually know how to treat my condition.
Lucy_4
in
Myositis UK
5 years ago
Recently diagnosed with Dermatomyositis
I’m new here and I’m trying to make sense of
Dermatomyositis
and me. Was diagnosed in March and ended up in hospital for almost a month not knowing what was wrong with me. I’m on treatment now and feeling I’m getting my mobility and strength slowly back.
I’m new here and I’m trying to make sense of
Dermatomyositis
and me. Was diagnosed in March and ended up in hospital for almost a month not knowing what was wrong with me. I’m on treatment now and feeling I’m getting my mobility and strength slowly back.
Jazzy_hands
in
Myositis UK
5 years ago
Fatigue in Systemic Lupus Erythematosus and Other Autoimmune Skin Diseases
Dermatomyositis
related to autoimmune thyroiditis. J Eur Acad Dermatol Venereol 2011; 25:1085–93. Lukjanowicz, M, Bobrowska-Snarska, D, Brzosko, M. [Coexistence of hypothyroidism with polymyositis or
dermatomyositis
]. Ann Acad Med Stetin 2006; 52 ( Suppl. 2):49–55. (in Polish).
Dermatomyositis
related to autoimmune thyroiditis. J Eur Acad Dermatol Venereol 2011; 25:1085–93. Lukjanowicz, M, Bobrowska-Snarska, D, Brzosko, M. [Coexistence of hypothyroidism with polymyositis or
dermatomyositis
]. Ann Acad Med Stetin 2006; 52 ( Suppl. 2):49–55. (in Polish).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Not lupus now but dermatomyositis and overlap syndrome!
Morning, Does anyone on this group suffer with the above. My initial diagnosis was cutaneous lupus as it was my skin swollen and red and Patches on my body. This progressed to aching arms and hands and sore mouth and tongue. My ck levels were in the thousands. This is a new diagnosis and I don’t really
Morning, Does anyone on this group suffer with the above. My initial diagnosis was cutaneous lupus as it was my skin swollen and red and Patches on my body. This progressed to aching arms and hands and sore mouth and tongue. My ck levels were in the thousands. This is a new diagnosis and I don’t really
Woods01
in
LUPUS UK
5 years ago
Does anyone take prednisone daily? How many milligrams?
I have
Dermatomyositis
and lung scarring. I take cellcept,plaquenil and prednisone. I am on a trial basis of prednisone. Does anyone take prednisone everyday and if so how many milligrams?
I have
Dermatomyositis
and lung scarring. I take cellcept,plaquenil and prednisone. I am on a trial basis of prednisone. Does anyone take prednisone everyday and if so how many milligrams?
Dermatray15
in
Lung Conditions Community Forum
5 years ago
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