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Experiences with
Dermatomyositis
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Anyone have Drug-induced Myositis?
Because of that he grudgingly agreed to myositis testing (for
dermatomyositis
). In the course of writing to him today, I discovered entirely by chance that Omeprazole can cause myositis as a drug reaction.
Because of that he grudgingly agreed to myositis testing (for
dermatomyositis
). In the course of writing to him today, I discovered entirely by chance that Omeprazole can cause myositis as a drug reaction.
Chancery
in
Myositis UK
4 years ago
Anyone had Omeprazole cause Myositis?
Because of that he grudgingly agreed to myositis testing (for
dermatomyositis
). In the course of writing to him today, I discovered entirely by chance that Omeprazole can cause myositis as a drug reaction.
Because of that he grudgingly agreed to myositis testing (for
dermatomyositis
). In the course of writing to him today, I discovered entirely by chance that Omeprazole can cause myositis as a drug reaction.
Chancery
in
The UK Mastocytosis Support Group
4 years ago
Do they routinely test back muscles during an MRI & EMG?
Incidentally, he is testing wiht a view to it being
Dermatomyositis
, hence my concern. I think maybe if he was looking for Polymyositis they would look at back muscles? If anyone knows if they test the back muscles routinely I'd love to hear from you. Many thanks!
Incidentally, he is testing wiht a view to it being
Dermatomyositis
, hence my concern. I think maybe if he was looking for Polymyositis they would look at back muscles? If anyone knows if they test the back muscles routinely I'd love to hear from you. Many thanks!
Chancery
in
Myositis UK
4 years ago
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Waxy mouth & soapy taste?
Hi, dx
Dermatomyositis
in Aug 2020. Been on prednisolone (45mg/day) and methotrexate (20mg/once a week) for last three weeks. Noticing that I have a persistent waxy sensation and soapy taste in my mouth. Have tried salt gargle and various mouthwash but no change.
Hi, dx
Dermatomyositis
in Aug 2020. Been on prednisolone (45mg/day) and methotrexate (20mg/once a week) for last three weeks. Noticing that I have a persistent waxy sensation and soapy taste in my mouth. Have tried salt gargle and various mouthwash but no change.
PinkLadyNo1
in
Myositis UK
4 years ago
dermatomyositis Symptoms
Are red itchy eyelids a sign
dermatomyositis
, I already have RA and am on biologics. Both eyes are red in a butterfly shape.
Are red itchy eyelids a sign
dermatomyositis
, I already have RA and am on biologics. Both eyes are red in a butterfly shape.
Coxy69
in
Pain Concern
4 years ago
Hello I'm new here and it's good to be able to contact people who may be going through the same feelings of isolation following my diagnosis
I was finally diagnosed with
Dermatomyositis
in April last year after about 5 years of symptoms which my GP dismissed as psoriasis and me being neurotic.
I was finally diagnosed with
Dermatomyositis
in April last year after about 5 years of symptoms which my GP dismissed as psoriasis and me being neurotic.
Menamoptops
in
Myositis UK
4 years ago
Newly Diagnosed
Diagnosed 6 days ago with
Dermatomyositis
following muscle biopsy. Have been referred to Rheumatology by Dermatologist as looking likely for Systemic Lupus Erythematosus too. I am due to commence a new teaching post (I teach Reception Class in Primary School) next Monday.
Diagnosed 6 days ago with
Dermatomyositis
following muscle biopsy. Have been referred to Rheumatology by Dermatologist as looking likely for Systemic Lupus Erythematosus too. I am due to commence a new teaching post (I teach Reception Class in Primary School) next Monday.
PinkLadyNo1
in
Myositis UK
4 years ago
12 years to diagnose dermatomyositis
Finally after a very long road, a muscle biopsy confirmed it’s
dermatomyositis
. I’m thrilled that the condition was found before an autopsy :).
Finally after a very long road, a muscle biopsy confirmed it’s
dermatomyositis
. I’m thrilled that the condition was found before an autopsy :).
ItTook12Years
in
Myositis UK
4 years ago
Rituxan
Is anyone taking Rituxan for
Dermatomyositis
? Is it helping your condition?
Is anyone taking Rituxan for
Dermatomyositis
? Is it helping your condition?
Dermatray15
in
Myositis UK
4 years ago
IVIG(intravenous immunogbulin)
Is anyone taking IVIG(intravenous immunogbulin) for
dermatomyositis
? Is it helping your condition?
Is anyone taking IVIG(intravenous immunogbulin) for
dermatomyositis
? Is it helping your condition?
Dermatray15
in
Myositis UK
4 years ago
Swollen face and bruising landed my butt in the ER
So I am fearing either lupus or
dermatomyositis
... ER doc said that both are valid concerns. Have to test autoantibodies now, and go from there to see if I now have yet another burden to deal with... Thanks for reading. I feel so lost and frustrated and sick. Hope your weekend was better than mine.
So I am fearing either lupus or
dermatomyositis
... ER doc said that both are valid concerns. Have to test autoantibodies now, and go from there to see if I now have yet another burden to deal with... Thanks for reading. I feel so lost and frustrated and sick. Hope your weekend was better than mine.
Arrigo
in
Thyroid UK
4 years ago
Does this look like Ankylosing Spondylitis?
I shall mention it to the rheumatologist, if I get a chance, but I've suspected everything from psoriatic arthritis to
dermatomyositis
to glycogen storage disorders, all the time worrying I'm just unfit!
I shall mention it to the rheumatologist, if I get a chance, but I've suspected everything from psoriatic arthritis to
dermatomyositis
to glycogen storage disorders, all the time worrying I'm just unfit!
Chancery
in
NRAS
4 years ago
Could this be fibromyalgia?
In 2019 I suspected all this might have been
dermatomyositis
, and recently I wondered if it might be the even rarer Glycogen Storage Disorder, but I felt I didn't quite fit the latter and went to look at fibromyalgia (I'd dismissed it last year because of the rashes) and on looking a the NHS site's symptom
In 2019 I suspected all this might have been
dermatomyositis
, and recently I wondered if it might be the even rarer Glycogen Storage Disorder, but I felt I didn't quite fit the latter and went to look at fibromyalgia (I'd dismissed it last year because of the rashes) and on looking a the NHS site's symptom
Chancery
in
Fibromyalgia Action UK
4 years ago
Diets
I have
dermatomyositis
I have
dermatomyositis
RCWGolf
in
Myositis UK
4 years ago
Hard Bump/Nodule on Pinky
I have Mixed Connective Tissue Disease with features of RA,
dermatomyositis
, and Sjogren’s. I am wondering if I should call my rheumatologist or my primary doctor.
I have Mixed Connective Tissue Disease with features of RA,
dermatomyositis
, and Sjogren’s. I am wondering if I should call my rheumatologist or my primary doctor.
searcher24
in
NRAS
4 years ago
Lupus/dermatomyositis overlap for 12 years
Hi, I have had Lupus/
dermatomyositis
overlap for 12 years. Last September I came off immunosuppressants and have been well since then. I have just started to get joint pain again in my fingers. -What I wanted to ask is should I be self isolating? I still get the flu jab. Thanks
Hi, I have had Lupus/
dermatomyositis
overlap for 12 years. Last September I came off immunosuppressants and have been well since then. I have just started to get joint pain again in my fingers. -What I wanted to ask is should I be self isolating? I still get the flu jab. Thanks
Lionroar
in
LUPUS UK
4 years ago
Status from my PMR (?) journey
So they called the special unit for inflammatory disease and now it seems that they all agree that something is wrong, and that it is not PMR but a connective tissue disease like polymyositis/
dermatomyositis
, Lupus or the like.
So they called the special unit for inflammatory disease and now it seems that they all agree that something is wrong, and that it is not PMR but a connective tissue disease like polymyositis/
dermatomyositis
, Lupus or the like.
krillemy
in
PMRGCAuk
5 years ago
Has anyone been treated for DM without steroids? Or how quickly did you get off of prednisone if you have?
I have
Dermatomyositis
, as partially confirmed by a skin biopsy, all the symptoms, etc. My doctor also wants me to have a muscle biopsy just to rule out other kinds of myopathies.
I have
Dermatomyositis
, as partially confirmed by a skin biopsy, all the symptoms, etc. My doctor also wants me to have a muscle biopsy just to rule out other kinds of myopathies.
zoeavacado
in
Myositis UK
5 years ago
CSU
Multiple blossoms tests as under Haematology, there first thought suggested I may have
dermatomyositis
although wasn’t presented in bloods. Seen dermatologist, they say I have Cronic Spontaneous Urticaria (CSU) ?
Multiple blossoms tests as under Haematology, there first thought suggested I may have
dermatomyositis
although wasn’t presented in bloods. Seen dermatologist, they say I have Cronic Spontaneous Urticaria (CSU) ?
Pee831
in
MY SKIN
5 years ago
Hair Loss with Dermatomyositis
Hi, I’m quite young (22) and was diagnosed with
Dermatomyositis
back in September, after suddenly becoming so severely inflamed in my joints that I was unable to move, and had to be taken to A&E for urgent tests.
Hi, I’m quite young (22) and was diagnosed with
Dermatomyositis
back in September, after suddenly becoming so severely inflamed in my joints that I was unable to move, and had to be taken to A&E for urgent tests.
PlatinumPenguin
in
Myositis UK
5 years ago
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