I’m quite young (22) and was diagnosed with Dermatomyositis back in September, after suddenly becoming so severely inflamed in my joints that I was unable to move, and had to be taken to A&E for urgent tests.
I am now currently taking 5mg of Prednisolone, 200mg of hydroxychloroquine and 20mg of methotrexate.
Today, whilst washing my hair, about 70% of it fell out, which was pretty horrifying to me. I wanted to know if anyone else has had the same experience, because I need someone to talk to!
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PlatinumPenguin
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I have heard many who have the hair loss issue and many have scalp treatment medication. I have a steroid scalp wash, I will get you the name. Some days my scalp is very thick with dry skin so I kind of now know when my scalp needs treatment.
Of course this could be a medication reaction. Please try and get an appointment with your gp or contact your rhuemy department . Please don’t suffer in silence.
Although my hair went very thin whilst I was on the high dose of steroids (40mg) since I have dropped down to 5mg it has started to thicken up a bit. At no point did I have actual hair loss in large volume! Please see someone about it. I found myself feeling quite low at times and I am sure hair LOSS would make anyone feel anxious xx
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