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Experiences with
Decompressive craniectomy
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Big surgery
Hi everyone I have a meningioma and it now has oedema round it. I have been told because of it I will probably need a craniotomy after my next scan in June. I was told it will be a big surgery with risks. This is by a top neurosurgeon. How do Ideal with this. I’m just falling to pieces. I’m 64 so not
Hi everyone I have a meningioma and it now has oedema round it. I have been told because of it I will probably need a craniotomy after my next scan in June. I was told it will be a big surgery with risks. This is by a top neurosurgeon. How do Ideal with this. I’m just falling to pieces. I’m 64 so not
Nellam
in
Meningioma Support
2 years ago
Advanced Suprise
I have G9 and finished Proton Radiation treatments X 40 one year ago. Maintaining Eligard Q6 months. Just received a shock. Had a mental abnormality about 3 weeks ago. Received an MRI that showed Metastatic Brain Tumors X 3 and swelling of the brain. Taking steroid and anti-seizure med. My Radiation
I have G9 and finished Proton Radiation treatments X 40 one year ago. Maintaining Eligard Q6 months. Just received a shock. Had a mental abnormality about 3 weeks ago. Received an MRI that showed Metastatic Brain Tumors X 3 and swelling of the brain. Taking steroid and anti-seizure med. My Radiation
WalrusReads3
in
Advanced Prostate Cancer
2 years ago
Schwannoma recurrence
I had a craniotomy for a large(4.5 cm) scwannoma 6 months ago, which I'm still working to recover from. My recent MRI from March 1 showed a much smaller growth which is suspect for a recurrent and I'll be having Gamma Knife surgery to deal with the new growth in 4-6 weeks. I'm just wondering how many
I had a craniotomy for a large(4.5 cm) scwannoma 6 months ago, which I'm still working to recover from. My recent MRI from March 1 showed a much smaller growth which is suspect for a recurrent and I'll be having Gamma Knife surgery to deal with the new growth in 4-6 weeks. I'm just wondering how many
musicman5
in
Acoustic Neuroma Support
2 years ago
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Hello,
Hello, I am Joanne, I had a craniotomy June 2016. I was an interpreter for deaf children in schools, had a seizure at work, was rushed to hospital to be told I had a mass on my brain and needed emergency surgery. It turned out to be a massive brain tumour. I lost my speech . It will be 6 years this year
Hello, I am Joanne, I had a craniotomy June 2016. I was an interpreter for deaf children in schools, had a seizure at work, was rushed to hospital to be told I had a mass on my brain and needed emergency surgery. It turned out to be a massive brain tumour. I lost my speech . It will be 6 years this year
Jowood29
in
Headway
2 years ago
recovery time
I will be having a supraorbital craniotomy surgery where they are going above my eyebrow to remover the benign tumor. Has anyone else had this kind of surgery? If so how long did you have to stay in the hospital?
I will be having a supraorbital craniotomy surgery where they are going above my eyebrow to remover the benign tumor. Has anyone else had this kind of surgery? If so how long did you have to stay in the hospital?
marceag1
in
Meningioma Support
2 years ago
Old helmets
Hi everyone Does anyone know any charities that accept old helmets worn for neurological reasons eg: post craniotomy? Many thanks
Hi everyone Does anyone know any charities that accept old helmets worn for neurological reasons eg: post craniotomy? Many thanks
Charlie90
in
Headway
3 years ago
Hi everyone, does anyone know of any charities that accept old helmets for neurological reasons ie: following a craniotomy for safety
Old helmets Brain injury Craniotomy
Old helmets Brain injury Craniotomy
Charlie90
in
Different Strokes
3 years ago
New Here and Qs about 12/2021 surgery
Hello all. I'm scheduled for an occipital craniotomy in December, and I'm feeling very fearful about life after this surgery. In March of 2020, I was diagnosed with a 2.4 x 2.4 x 2.3 cm meningioma along the superior left tentorium, just to the left of midline, resulting in mass effect on the parasagittal
Hello all. I'm scheduled for an occipital craniotomy in December, and I'm feeling very fearful about life after this surgery. In March of 2020, I was diagnosed with a 2.4 x 2.4 x 2.3 cm meningioma along the superior left tentorium, just to the left of midline, resulting in mass effect on the parasagittal
BikeReadWashRepeat
in
Meningioma Support
3 years ago
My mom needs craniotomy
My mom is 69 years old. In 2007 she was first diagnosed with a meningioma that was diagnosed incidentally because she underwent an MRI because she has optic neuritis. At the time she had the CyberKnife and up until 2013 the tumor had not grown. She had no symptoms. About 6 months ago, her personality
My mom is 69 years old. In 2007 she was first diagnosed with a meningioma that was diagnosed incidentally because she underwent an MRI because she has optic neuritis. At the time she had the CyberKnife and up until 2013 the tumor had not grown. She had no symptoms. About 6 months ago, her personality
4Mudda
in
Meningioma Support
3 years ago
Bedtime head discomfort - pillow recommendations?
Hi all, I had a craniotomy in 2018 and still struggle a lot with sleep. I can only sleep on my left hand side now and it takes an age to get comfortable. Can anyone recommend a pillow that you have used and doesn't fail you. I've been looking at the Internet but I feel even more confused. Thanks in
Hi all, I had a craniotomy in 2018 and still struggle a lot with sleep. I can only sleep on my left hand side now and it takes an age to get comfortable. Can anyone recommend a pillow that you have used and doesn't fail you. I've been looking at the Internet but I feel even more confused. Thanks in
JimG1983
in
Headway
3 years ago
Injury details. SCBIRT nearly 20 years later.
Right temporal extramural Haematoma, Small interparanchymal haemorrhage In both frontal lobes Skull fracture rh side Surgery right Temporal-parietal craniotomy Above is the list of injury’s sustained and surgery. I have the last few weeks been attending Sheffield Brain injury center to try to better
Right temporal extramural Haematoma, Small interparanchymal haemorrhage In both frontal lobes Skull fracture rh side Surgery right Temporal-parietal craniotomy Above is the list of injury’s sustained and surgery. I have the last few weeks been attending Sheffield Brain injury center to try to better
CW2002
in
Headway
3 years ago
Cranioplasty
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Charlie90
in
Headway
3 years ago
Cranioplasty date has been set, any advice gratefully received
So my husbands cranioplasty date has come through for the beginning of August. He is 13 months post his aneurysm surgery which resulted in a massive stroke and craniotomy. He has been home 2 months and is pretty much bedbound. He struggles with sitting balance, in fact I think he would just topple
So my husbands cranioplasty date has come through for the beginning of August. He is 13 months post his aneurysm surgery which resulted in a massive stroke and craniotomy. He has been home 2 months and is pretty much bedbound. He struggles with sitting balance, in fact I think he would just topple
pozza40
in
Headway
3 years ago
37 YEARS SINCE MY TBI.
I've always had a thing about dates. Especially 7th March. My TBI has now been part of my life for just over two thirds of my lifespan. I've had my TBI for twice as long as I haven't (if that makes any sense!). It's a strange time: lots of looking back and a bit of forward looking now that the post TBI
I've always had a thing about dates. Especially 7th March. My TBI has now been part of my life for just over two thirds of my lifespan. I've had my TBI for twice as long as I haven't (if that makes any sense!). It's a strange time: lots of looking back and a bit of forward looking now that the post TBI
Glenquoich
in
Headway
3 years ago
Prolonged Disorder of Consciousness
Hi, Just wondering if anyone out there has any experience of this and can give me some encouragement. Has anyone recovered from being in this state? My partner has this diagnosis and is almost 8 months post aneurysm surgery that caused a stroke then swelling needing further surgery 10 days later and
Hi, Just wondering if anyone out there has any experience of this and can give me some encouragement. Has anyone recovered from being in this state? My partner has this diagnosis and is almost 8 months post aneurysm surgery that caused a stroke then swelling needing further surgery 10 days later and
123Bereft
in
Headway
3 years ago
Bifrontal Cranioplasty
Hello, My mum had a Bifrontal
decompressive
craniectomy
due to a severe TBI. She spent a month in a coma, is now GCS of 15 in intensive rehab and can talk, eat foods (albeit confused) and will soon be learning to walk. She’s progressing fast and really well.
Hello, My mum had a Bifrontal
decompressive
craniectomy
due to a severe TBI. She spent a month in a coma, is now GCS of 15 in intensive rehab and can talk, eat foods (albeit confused) and will soon be learning to walk. She’s progressing fast and really well.
cjh97
in
Headway
4 years ago
Has anyone else experienced a seizure a prolonged period after their brain injury
Delayed seizure I had a cerebral haemorrhage following by coil clipping & craniotomy around 18 months ago and had 1 seizure a few days ago I am currently still in hospital being monitored I am confused to why this has happened as I thought seizures usually happened in the days after the injury and not
Delayed seizure I had a cerebral haemorrhage following by coil clipping & craniotomy around 18 months ago and had 1 seizure a few days ago I am currently still in hospital being monitored I am confused to why this has happened as I thought seizures usually happened in the days after the injury and not
Charlie90
in
Headway
3 years ago
Help me 😂😂
Had epilepsy surgery but caught a infection which caused a brain infection had another craniotomy now quiet scared because I haven’t got my bone flap which be replaced but got like a freezing feeling going over my head then sharp pain praying my infection hasn’t come back have anyone else had this weird
Had epilepsy surgery but caught a infection which caused a brain infection had another craniotomy now quiet scared because I haven’t got my bone flap which be replaced but got like a freezing feeling going over my head then sharp pain praying my infection hasn’t come back have anyone else had this weird
Bobthe84
in
Headway
4 years ago
Appointment instead of letter!!!!
I had a craniotomy 5 years ago to remove a large benign meningioma. Regular MRI which is followed by a letter with good news of no recurrence. This time after MRI two weeks ago I get a letter with an appointment via phone call for 6th Jan from neurosurgeon. I’m scared!
I had a craniotomy 5 years ago to remove a large benign meningioma. Regular MRI which is followed by a letter with good news of no recurrence. This time after MRI two weeks ago I get a letter with an appointment via phone call for 6th Jan from neurosurgeon. I’m scared!
Relaxation12
in
The Brain Tumour Charity
4 years ago
I’ve just had yearly MRI after craniotomy 5 years ago to remove large benign meningioma. Every year I get letter but not this time...
Scan results
Scan results
Relaxation12
in
The Brain Tumour Charity
4 years ago
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