Has anyone else experienced a seizure a prolonged period after their brain injury

[Charlie90]

Delayed seizure I had a cerebral haemorrhage following by coil clipping & craniotomy around 18 months ago and had 1 seizure a few days ago I am currently still in hospital being monitored I am confused to why this has happened as I thought seizures usually happened in the days after the injury and not after a significant amount of time down the line, I have made such fantastic progress I am so worried thst is going to be a massive set back for me!

[Bobthe84]

I had one four weeks after my craniotomy apparently the pre op seizures

[cat3]

I'm lucky enough to have been spared seizures but I'm aware how distressing and disruptive they can be. I think you need to either contact your Neuro team direct or ask your GP for a referral back for scanning or EEG, as appropriate.

I know it's a rotten time for hospital appointments but clinics should be better organized than other departments. Best to get checked out m'love and I doubt you'll be kept waiting too long with such an issue....

Best wishes, Cat x

[S21NTE]

Hi, my husband had two tonic clonic seizures consecutively 7.5months after his TBI and Craniotomy. It was a real kick in the teeth after having made such progress to be honest, it affected us quite bad and felt very cruel.

I’m pleased to say that, touch wood, he hasn’t had anymore but he is on medication for life now. It took a little while to adjust to the medication but we are back on track.

Still waiting for his reconstruction though, it’s been cancelled twice now!.

Hope you are feeling better soon. x

[sealiphone]

I began to have seizures 13 months after my TBI, which have been well controlled with medication for over 15 years.

[RogerCMerriman]

Everyone has a seizure threshold, but Brain injury tends to lower this, the risk as far as I can tell are higher just after, but are mildly raised even years/decades after.

One seizure is not enough to diagnose epilepsy so possibly maybe one off.

[Echobook]

Hi, my husband started having seizures just shy of 10 years after TBI. Currently well managed with medication and not interfering with day to day life. Was a bit of a shock though to be told it was linked to the accident so long after.

[Charlie90]

Thought I would post an update on this. I was started on keppra following the first seizure I have had no further seizures since, still an element of anxiety around seizures but i have done a lot of reading about things to avoid etc. Due to be switched from keppra to lamotrigine due to extreme irritability caused by the keppra and I am not able to accept living my life feeling this irritable.

[New_beginning in reply to Charlie90]

I'm glad all managed and glad to see update. You are doing brilliantly and total insight what works for you, and glad listened too with changes of medication . This is a fear factor with me towards my husband 15months with TBI as were working so hard with rehabilitation at home, as neuro surgeon stated hes high risk for it to occur for next two years, well were on 18months to go now. But I've noticed keppra is a no no if that time comes.

Thank you again for sharing update

[Prettythings1]

Hello I had a brain haemorrhage when I was 21 six months of the following the craniotomy and my initial brain surgery I had my first seizure followed by several more I was diagnosed with epilepsy as a result of the brain surgery and put on medication. Xx

[DMreader]

hi, my partner had TBI in 2019, and we were doing well till she had a seizure in 2022, then she had another. She is on medication and she hasn’t so far had another which is good. It has knocked her confidence a lot but I encourage her not to let it rule her. Get the right medication and you can live with it, don’t get disheartened you have to keep positive for them. Good luck x