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Experiences with
Deep brain stimulation (DBS)
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After being diagnosed for 5 years, I'm facing DBS. Is there anyone who has regretted having it? I will be getting it at Barrow Neurological.
parkinsonspistol
in
Cure Parkinson's
11 years ago
Does having DBS reduce or eliminate the number of falls compared with before the operation?
A friend of mine has had
DBS
, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the
DBS
'adjusted' or by having had a change in their medication?
A friend of mine has had
DBS
, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the
DBS
'adjusted' or by having had a change in their medication?
Norton1
in
Cure Parkinson's
11 years ago
DBS for gait freezing
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for
DBS
. Has anyone on this site had
DBS
for gait freezing and at what age did you have it?
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for
DBS
. Has anyone on this site had
DBS
for gait freezing and at what age did you have it?
camper
in
Cure Parkinson's
11 years ago
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Deep-brain stimulation (DBS) - some information
Hello everyone There was a very informative programme about
DBS
yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Hello everyone There was a very informative programme about
DBS
yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Partner
in
Cure Parkinson's
11 years ago
i am scheduled for dbs on sept 13 and 16 any words of wisdom please advise
salon
in
Cure Parkinson's
11 years ago
DBS they will not change the battery . Feel like I am in some sick study. For over a year I have been told the battery is good for 3 months.
I don't believe them. my question is has any had a
DBS
switch off and on again, how was it . Also has anyone been told they battery has 3 month left time and time again .
I don't believe them. my question is has any had a
DBS
switch off and on again, how was it . Also has anyone been told they battery has 3 month left time and time again .
export
in
Cure Parkinson's
11 years ago
Has anyone had slow but some response to dbs? My Dr.is working it up slowly as my meds.are reduced. It is difficult to be patient!
nonnie
in
Cure Parkinson's
11 years ago
tomorrow is my appt for psychology workup prior to dbs any thoughts or tips for me?thanks please reply with your experience.
salon
in
Cure Parkinson's
11 years ago
WOULD LIKE TO HAVE INFORMATION FROM THOSE WHO HAVE HAD DBS
I am considering
DBS
and would like to hear from those who have experienced it themselves or with a spouse. I have a great fear of it for myself and my husband. I was dx 17 years ago, slow moving until recently. No tremors mostly bradykinisia. When I'm on dyskinisia. Is
DBS
hype?
I am considering
DBS
and would like to hear from those who have experienced it themselves or with a spouse. I have a great fear of it for myself and my husband. I was dx 17 years ago, slow moving until recently. No tremors mostly bradykinisia. When I'm on dyskinisia. Is
DBS
hype?
susieque
in
Cure Parkinson's
11 years ago
RLS and stomach/bowel problems
I have been looking up stuff about RLS for a while, and nothing points towards bowel problems as a leading cause of RLS. I have suffered from RLS for many years, but only recently have I made the link between bowel problems and the incidence of RLS. Notably, constipation is present when RLS decides
I have been looking up stuff about RLS for a while, and nothing points towards bowel problems as a leading cause of RLS. I have suffered from RLS for many years, but only recently have I made the link between bowel problems and the incidence of RLS. Notably, constipation is present when RLS decides
Herlie
in
Restless Legs Syndrome
11 years ago
I went to see the locum dr on Wednesday as I felt in need of reassurance and ended up with two new medicines
He told me I had a heart murmur and said I should try another water tablet and also another go at another heart medicine. The water tablet is Natrilix and the other one is Doxazosin. The Natrilix is slow release and works all day, I've to wait three days before starting the Doxazosin. Luckily I'm
He told me I had a heart murmur and said I should try another water tablet and also another go at another heart medicine. The water tablet is Natrilix and the other one is Doxazosin. The Natrilix is slow release and works all day, I've to wait three days before starting the Doxazosin. Luckily I'm
Terjo
in
AF Association
11 years ago
Weight gain. Why. After DBS or not
FifteenyearsPD
in
Cure Parkinson's
11 years ago
i got through appt for ekg next is mri soon dbs any advice for staying strong? please advice me . thanks
salon
in
Cure Parkinson's
11 years ago
Has anyone else had DBS and want to talk?
Keen to talk to anyone who has been through this and can offer advice around living with
DBS
and what that means. Thanks (Not so) ShakingAJ
Keen to talk to anyone who has been through this and can offer advice around living with
DBS
and what that means. Thanks (Not so) ShakingAJ
shakingaj
in
Parkinson's New Zealand
11 years ago
My meds is Mucuna P. (Zandopa) and half a Sinement 25/100 x 5 a day, feeling very fatigued and sleepy.
Doctor wants to talk to me about
DBS
...PLEASE HELP.
Doctor wants to talk to me about
DBS
...PLEASE HELP.
Drevy
in
Cure Parkinson's
11 years ago
This is an interesting video for anyone considering DBS.
http://www.npr.org/blogs/krulwich/2013/06/25/195521917/the-man-with-a-battery-operated-brain
http://www.npr.org/blogs/krulwich/2013/06/25/195521917/the-man-with-a-battery-operated-brain
Susie01
in
Cure Parkinson's
11 years ago
Is weight gain a Side effect of Madopar?
Last August I had
DBS
but still wound up on Sifrol And Sinemet. After a few months it was finally decided that I should wean myself off sifrol from 3 tabs a day to 3x1/2tabs a day finally down to 1/2 a tab a day.
Last August I had
DBS
but still wound up on Sifrol And Sinemet. After a few months it was finally decided that I should wean myself off sifrol from 3 tabs a day to 3x1/2tabs a day finally down to 1/2 a tab a day.
mag2908
in
Cure Parkinson's
11 years ago
cost of dbs
sheikhmuji
in
Parkinson's New Zealand
11 years ago
DBS UPDATE
My generator was turned on and programmed last Mon. 6-3-13. I did not have any dramatic results except for Thurs. morning I was able to walk and get around when I first got up,before my meds. Today 6-10-13 I went to the Dr. and the programmer changed my setting and voltage and showed me how to use the
My generator was turned on and programmed last Mon. 6-3-13. I did not have any dramatic results except for Thurs. morning I was able to walk and get around when I first got up,before my meds. Today 6-10-13 I went to the Dr. and the programmer changed my setting and voltage and showed me how to use the
Brooke
in
Cure Parkinson's
11 years ago
DBS plans on hold due to possible nocebo effects... I'm too crazy for brain surgery.
I have recently been processed with off-on testing and neuro-psychologist eval for
DBS
. My neurologist stated that I need to see a psychiatrist before they will schedule the procedure due to my anxiety depression issues fearing that I may be disappointed by the outcome.
I have recently been processed with off-on testing and neuro-psychologist eval for
DBS
. My neurologist stated that I need to see a psychiatrist before they will schedule the procedure due to my anxiety depression issues fearing that I may be disappointed by the outcome.
etterus
in
Cure Parkinson's
11 years ago
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