Search
Search
About
Log in
Join
Experiences with
Deep brain stimulation (DBS)
Posts
Communities
1,053 public posts
Filter results
Links to some articles comparing FUS to DBS for Essential Tremors
articleId=1470923#articleId1470923 https://essentialtremortreatment.com/focused-ultrasound-
dbs
-which-better-for-you/ https://jnnp.bmj.com/content/early/2021/01/17/jnnp-2020-323656 https://www.michaeljfox.org/news/focused-ultrasound https://www.neurologylive.com/view/stem-cell-therapy-tbi-other-conditions
articleId=1470923#articleId1470923 https://essentialtremortreatment.com/focused-ultrasound-
dbs
-which-better-for-you/ https://jnnp.bmj.com/content/early/2021/01/17/jnnp-2020-323656 https://www.michaeljfox.org/news/focused-ultrasound https://www.neurologylive.com/view/stem-cell-therapy-tbi-other-conditions
pdpatient
in
Cure Parkinson's
3 years ago
Lactulose... Ugh! Please help
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
FLgirl0722
in
British Liver Trust
3 years ago
New to the forum
Medication or
DBS
Medication or
DBS
thfc1961
in
Cure Parkinson's
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
More Encouraging Focused Ultrasound News
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
jimcaster
in
Cure Parkinson's
3 years ago
Parkinsons, DBS and Thyroid
I found one medical paper whereby a 61 year old lady had similar issues (thyroid, Parkinson’s,
DBS
) whereby her thyroid generated tremor was “ topping up” and constantly disrupting her
dbs
.
I found one medical paper whereby a 61 year old lady had similar issues (thyroid, Parkinson’s,
DBS
) whereby her thyroid generated tremor was “ topping up” and constantly disrupting her
dbs
.
Lr_defender
in
Thyroid UK
3 years ago
Pros and Cons of Four Different Brain Surgeries For Parkinson’s Diseases
He discusses the following 4 procedures available currently: Deep Brain Stimulation (
DBS
) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https://tmrwedition.com/2021/01/30/pros-and-cons-of-four-different-brain-surgeries-for-parkinsons-disease/amp/?
He discusses the following 4 procedures available currently: Deep Brain Stimulation (
DBS
) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https://tmrwedition.com/2021/01/30/pros-and-cons-of-four-different-brain-surgeries-for-parkinsons-disease/amp/?
Farooqji
in
Cure Parkinson's
3 years ago
Any DBS prep advice?
Mischely's PD School on
DBS
, and have come up with a handful of questions to ask at the meeting (see below!)
Mischely's PD School on
DBS
, and have come up with a handful of questions to ask at the meeting (see below!)
pdkid
in
Cure Parkinson's
3 years ago
Back again with another question about spouse's DBS results
I cannot say it is entirely due to the
DBS
, because he has so many other issues, 1.
I cannot say it is entirely due to the
DBS
, because he has so many other issues, 1.
dhill
in
Cure Parkinson's
3 years ago
Present and future of subthalamotomy in the management of Parkinson´s disease: a systematic review
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Farooqji
in
Cure Parkinson's
3 years ago
Medtronic DBS battery change: opportunity for improved therapy?
Coming in 2021 for me is a Medtronic
DBS
battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Coming in 2021 for me is a Medtronic
DBS
battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Gobbsofjoy
in
Cure Parkinson's
4 years ago
Started on depixol 40mg depot inj fortnightly and now have severe RLS
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Magpie2016
in
Restless Legs Syndrome
3 years ago
ARE YOU NON TREMOR DOMINANT PD PATIENT? DID YOUGET DBS? IF YES, PLEASE SHARE YOUR EXPERIENCE.
please tell me if it is worth it getting
DBS
,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
please tell me if it is worth it getting
DBS
,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
OREOLU
in
Cure Parkinson's
4 years ago
Tremor
I must demonstrate the effectiveness of C/L against tremors when and if I apply for
DBS
. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
I must demonstrate the effectiveness of C/L against tremors when and if I apply for
DBS
. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
Hidden
in
Cure Parkinson's
4 years ago
Horizant Advice Please
I had my first dose last night and had a horrendous night, twitching and little sleep. How many days should I take it, before I give it up completely? I wouldn't say it was an allergic reaction, but just not the one I was hoping to get. The doctor told me to stop the Gabepentin cold turkey, which I did
I had my first dose last night and had a horrendous night, twitching and little sleep. How many days should I take it, before I give it up completely? I wouldn't say it was an allergic reaction, but just not the one I was hoping to get. The doctor told me to stop the Gabepentin cold turkey, which I did
Rwall
in
Restless Legs Syndrome
3 years ago
DBS PLUS MUKUNA P, OR DBS PLUS C/L, OR DBS PLUS HDT PLUS MUKUNA P, OR DBS PLUS MUKUNA PLUS C/L PLUS HDT, DBS PLUS HDT PLUS C/L.
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
OREOLU
in
Cure Parkinson's
4 years ago
Dr. Jeff Elias of U of Virginia Responds to Email Regarding Pallidothalamic Tractotomy
It has never undergone rigorous clinical trial review like STN
DBS
or FUS for tremor/PD. If the Europeans continue to have success with it, then investigators in the US will likely study it. Dr. Jeanmonod is an excellent neurosurgeon who I personally know.
It has never undergone rigorous clinical trial review like STN
DBS
or FUS for tremor/PD. If the Europeans continue to have success with it, then investigators in the US will likely study it. Dr. Jeanmonod is an excellent neurosurgeon who I personally know.
jimcaster
in
Cure Parkinson's
3 years ago
DBS Albuquerque
Looking into getting DBS'd by a surgeon in New Mexico
Looking into getting DBS'd by a surgeon in New Mexico
Hidden
in
Cure Parkinson's
4 years ago
Concerned
Husband had
DBS
, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
Husband had
DBS
, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
dhill
in
Cure Parkinson's
4 years ago
Job with MSA Patients
I have a full driving license with no convictions and a
DBS
check available.I am currently working as bank staff (temp) and in February 2021 I will be looking to follow my career, I would love to be able to help another person/ family who sufferers from this terrible illness as there carer.
I have a full driving license with no convictions and a
DBS
check available.I am currently working as bank staff (temp) and in February 2021 I will be looking to follow my career, I would love to be able to help another person/ family who sufferers from this terrible illness as there carer.
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
3 years ago
1
...
13
14
15
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
795 results
IBS Network
40 results
Restless Legs Syndrome
31 results
View top 10 communities
Sort by
Most Relevant
Newest