I've read on here about several people ha... - Cure Parkinson's

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I've read on here about several people having real time MRI DBS Surgery,

wynn7 profile image
12 Replies

but can find no info on it outside of trials being done. Anyone know anymore?

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wynn7 profile image
wynn7
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Hikoi profile image
Hikoi

In the UK DBS can be done under General Anaesthetic when there is a scanner in the operating room for the surgeon to use to guide in placing of the probs. Not all units have a scanner i guess. The surgeon i heard speak from a central London hospital always uses GA and a scanner and has done for a few years. Is that what you are asking Wynn?

My docs in Boston used an MRI while performing my DBS surgery. Medtronic, mfg. of the unit, says they have done over 85K surgeries.

Jash profile image
Jash

There are a dozen or so hospitals around the globe performing this procedure. I had it performed in June at the Univeristy of Pittsburgh Medical Center. I was nervous about it because it is so new, but my surgeon is excellent and my result has been very good.

Jash profile image
Jash in reply to Jash

The system is called Clear Point and it takes a different set of skills and tools to perform than the traditional DBS. You are under general anesthesia for the entire procedure

ma4PDcure profile image
ma4PDcure in reply to Jash

How long ago did you have this surgery? Who was the neurosurgeon that performed your surgery and is it too early to tell whether you are pleased with your surgery results and if so can you guesstimate your improvement success?

ma4PDcure profile image
ma4PDcure in reply to ma4PDcure

Sorry I see you had it in June, 4 months ago, If I am correct.

Jash profile image
Jash in reply to ma4PDcure

While I still have tremor from time to time during the day, I can do so much more than I could before the surgery. II couldn't button my shirt, zip my jacket, tie my shoes, or eat in public. Those things are once again routine for me. I still have a ways to go with programming, but I would say I'm, conservatively, 70%+ better. they said 50% -- and, at the time, that sounded good. I would not have done the traditional DBS so this was a good option for me. This is real-time MRI surgery--performed in the MRI suite.

jonroberts profile image
jonroberts

I had DBS surgery in May in Albuquerque,NM. The MRI was done about 2 weeks before surgery. The MRI Cted as a roadmap for Dr. Metzger, the surgeon. The results were very good and pin point accuracy fur to the MRI .

etterus profile image
etterus

I'm being evaluated for it at Barrows- Muhammad Ali in Phoenix. The MRI maps out the arteries, veins and ventricles that need to be avoided. During the surgery there is a compact ct-scan, a CereTom that targets and verify the placement of the electrodes. It is performed in 2 hours, half the time.

This procedure was developed by Dr Kim Burchiel at OHSU in Portland OR. It will probably be the standard in the future.

Kadie57 profile image
Kadie57

I had DBS surgery April 10th 2012, it was a hard surgery being awake with a halo atached to my head, I was so blessed and have had a good outcome. The shaking has stopped BUT (ALWAYS A BUT) I m still having med problems wearing is quick and un predictable, this causes a semi freezing where I feel like I moving thru thick muck. I HATE THIS FEELING> plus I have to go to the Clinic 2 1/2 hrs away so problems rarely seem to come about until

I'm home.BUT I m not dying nor do I feel I can't function I just get discouraged and very tired of the struggle. So I just move on to the next project, keep busy, pray that it willl soon get better with that said I have also been going to a program at PT named BIG and Loud, RSVT see clips on U Tube. this is a proven program to help us Parkies( I say Parkies with uttmost respect for our struggle) move. groove and be speak well with loudness !! AWESOME>

TAKE CARE ALL Here's to the best day we can have!upright and moving all the right ways! KADIE

Hikoi profile image
Hikoi

Wynn as others have suggested it is beyond trial, i think GA is mainstream now. A study published in January by Doctors in Birmingham UK reported on a 7 year followup of patients who had DBS by General Anaesthetic.

CONCLUSIONS:

Long-term outcomes confirm that it is both safe and effective to perform DBS under general anesthesia. As part of patient choice, this option should be offered to all DBS candidates with advanced Parkinson disease to enable more of these patients to undergo this beneficial surgery.

wynn7 profile image
wynn7 in reply to Hikoi

Don't know why Medtronic is so slow to market this as having it done outside of the L.A. area is not feasible physically or financially. Clear Point sounds like the best solution out there!

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