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Danazol
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Itching in Myelofibrosis
I'm currently taking Fedratinib and
Danazol
and am having 6 weekly blood transfusions. In the last few months I've noticed increased itching. Last night I woke at 2.30am and the itching made it impossible for me to lie still and go back to sleep.
I'm currently taking Fedratinib and
Danazol
and am having 6 weekly blood transfusions. In the last few months I've noticed increased itching. Last night I woke at 2.30am and the itching made it impossible for me to lie still and go back to sleep.
Bullace
in
MPN Voice
6 months ago
Reducing Prednisolone question
I have had PMR since October 2017 now, and gradually reducing fairly successfully. Twice before I had a problem at 3.5mg , and could not get any lower, having a couple of flares. Now I have just got down to 2.75mg by the slow method at the rate of .25mg over a six week period. So it has taken me a long
I have had PMR since October 2017 now, and gradually reducing fairly successfully. Twice before I had a problem at 3.5mg , and could not get any lower, having a couple of flares. Now I have just got down to 2.75mg by the slow method at the rate of .25mg over a six week period. So it has taken me a long
Purplegloss
in
PMRGCAuk
16 days ago
Momelotinib Found Superior to Danazol for the Treatment of Myelofibrosis
Of the 195 patients, 130 (67%) received momelotinib 200 mg orally once a day and a
danazol
placebo (momelotinib group) and 65 (33%) received
danazol
300 mg twice a day and a momelotinib placebo (
danazol
group). Treatment was for a 24-week period.
Of the 195 patients, 130 (67%) received momelotinib 200 mg orally once a day and a
danazol
placebo (momelotinib group) and 65 (33%) received
danazol
300 mg twice a day and a momelotinib placebo (
danazol
group). Treatment was for a 24-week period.
PhysAssist
in
MPN Voice
1 year ago
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Brainfade
Over the last year i have been getting a heavy thump in my heart which causes me to suddenly suck in. It seems to start suddenly when sitting quietly during the day or at night which wakes me from a shallow sleep. Some days its regularly about 15 mins or so apart.As soon as this happens i have an onset
Over the last year i have been getting a heavy thump in my heart which causes me to suddenly suck in. It seems to start suddenly when sitting quietly during the day or at night which wakes me from a shallow sleep. Some days its regularly about 15 mins or so apart.As soon as this happens i have an onset
Alphakiwi
in
Atrial Fibrillation Support
1 month ago
another week without a shampoo
but i do appreciate it's winter, so showers and shampoos matter less than in summer! often i get round to wondering what's caused the exhaustion, wondering if it's from q fever leftovers from many years ago. there have been theories about viruses, but q fever is bacterial. a very cluey dr i saw
but i do appreciate it's winter, so showers and shampoos matter less than in summer! often i get round to wondering what's caused the exhaustion, wondering if it's from q fever leftovers from many years ago. there have been theories about viruses, but q fever is bacterial. a very cluey dr i saw
MayGodBlessYou
in
Myalgic Encephalomyelitis Community
1 month ago
Decapeptyl and pain
Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 years old,no children.Am on Decapeptyl 3 month injection to shrink my 9 fibroids. At least a year an half ago I had 9 of them,the size of small oranges 6,5cm. They are everywhere. One sits on my bladder. Now not sure as
Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 years old,no children.Am on Decapeptyl 3 month injection to shrink my 9 fibroids. At least a year an half ago I had 9 of them,the size of small oranges 6,5cm. They are everywhere. One sits on my bladder. Now not sure as
Snowwhite2207
in
Endometriosis UK
2 months ago
‘Heavy legs’
In my 6th year of PMR and at 7.5mg after a few flares and hiccups. I had a cataract op five weeks ago. All ok but after three weeks felt pretty rough and chronic tiredness. Upped dose by 5mg for four days then back to previous dose. Now sinusitis symptoms, bridge of nose tender and slight headache on
In my 6th year of PMR and at 7.5mg after a few flares and hiccups. I had a cataract op five weeks ago. All ok but after three weeks felt pretty rough and chronic tiredness. Upped dose by 5mg for four days then back to previous dose. Now sinusitis symptoms, bridge of nose tender and slight headache on
Bachfugue
in
PMRGCAuk
3 months ago
Warfarin and Acetaminophen ? Are there any interaction please ?!
Hello, I'm just wondering which pain medications would not interact with Warfarin please? I know anti-inflammatories are not ok. What about Panadol (Acetaminophen/Paracetamol), is this okay to take while being on Warfarin? Appreciate any information you can provide, Many thanks Rosegardens
Hello, I'm just wondering which pain medications would not interact with Warfarin please? I know anti-inflammatories are not ok. What about Panadol (Acetaminophen/Paracetamol), is this okay to take while being on Warfarin? Appreciate any information you can provide, Many thanks Rosegardens
rosegardens
in
Anticoagulation Support
4 months ago
And ,now another type of pain........
Being diagnosed with PMR in about 2006 and using varying amounts of prednisolone ever since, my legacy is Adrenal Insuffiency plus the usual things like bruising, skin rips of easy etc...... But now some new type of pain.......... Last year my rheumy said you no longer have PMR, and wanted some tests
Being diagnosed with PMR in about 2006 and using varying amounts of prednisolone ever since, my legacy is Adrenal Insuffiency plus the usual things like bruising, skin rips of easy etc...... But now some new type of pain.......... Last year my rheumy said you no longer have PMR, and wanted some tests
billydownunder
in
PMRGCAuk
6 months ago
How to shake off bacterial infection without antibiotics in pregnancy?
Hello, I'm about 18 weeks pregnant. Over the Christmas I got some nasty infection. Started with 4 days of sore throat and terrible sinus headache and 4 nights of only about 2 hours sleep each. While travelling back home (slept in a hotel) I got pus in my eye (conjunctivitis) and a cough. Now, two days
Hello, I'm about 18 weeks pregnant. Over the Christmas I got some nasty infection. Started with 4 days of sore throat and terrible sinus headache and 4 nights of only about 2 hours sleep each. While travelling back home (slept in a hotel) I got pus in my eye (conjunctivitis) and a cough. Now, two days
Hidden
in
Pregnancy and Parenting Support
8 months ago
Advice needed please
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
Fleen
in
Vasculitis UK
9 months ago
sleep meds
hi prior to HF diagnosis I was taking quetiapine and half a zopiclone for sleep plus I have chronic back pain and take a tramadol and two Panadol to help me keep going with my walking now I’m on entresto and avorastatin and Metropol and I’ve continued with the sleep and pain relief meds BUT my GP
hi prior to HF diagnosis I was taking quetiapine and half a zopiclone for sleep plus I have chronic back pain and take a tramadol and two Panadol to help me keep going with my walking now I’m on entresto and avorastatin and Metropol and I’ve continued with the sleep and pain relief meds BUT my GP
Walkswim
in
British Heart Foundation
10 months ago
Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
1 year ago
ARRRGH !
Hi all, I live in Tasmania, Australia and do not have private health cover. I am 60 years old and have had rls since I was 21, that I know of. I have also been on antidepressants since 1980... I realky believe that they have caused the rls as no one in my family had it. Anyway, it became absolutely
Hi all, I live in Tasmania, Australia and do not have private health cover. I am 60 years old and have had rls since I was 21, that I know of. I have also been on antidepressants since 1980... I realky believe that they have caused the rls as no one in my family had it. Anyway, it became absolutely
Oscarcat63
in
Restless Legs Syndrome
1 year ago
Over the counter painkillers
Hi, I’m waiting on scan & further steps to manage my endo & adenomyosis. The pain is getting harder to manage & I’d be grateful for suggestions of pain relief that might work better than current ibuprofen, panadol & hot water bottles:) Have just been reading it’s better to start ibuprofen before day
Hi, I’m waiting on scan & further steps to manage my endo & adenomyosis. The pain is getting harder to manage & I’d be grateful for suggestions of pain relief that might work better than current ibuprofen, panadol & hot water bottles:) Have just been reading it’s better to start ibuprofen before day
Rose244
in
Endometriosis UK
1 year ago
Question about reducing Pred
The last six weeks I have been reducing very slowly by .5mg from 4mg to 3.5mg. I have done this a few times without success ending in a flare. This time I am at the moment totally free in the upper half of my body from pain or stiffness, but have been getting what I think is withdrawal symptoms around
The last six weeks I have been reducing very slowly by .5mg from 4mg to 3.5mg. I have done this a few times without success ending in a flare. This time I am at the moment totally free in the upper half of my body from pain or stiffness, but have been getting what I think is withdrawal symptoms around
Purplegloss
in
PMRGCAuk
1 year ago
constant pain lower abdomen lower back and now mid thigh
I have been given
danazol
for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects.
I have been given
danazol
for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects.
Lovedsibling
in
Endometriosis UK
2 years ago
Post Pred motivation?
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hidden
in
PMRGCAuk
1 year ago
AF with bad ankle and back therefore problems exercising.
I am now almost never in normal Heart rhythm. It is eitherA/F, or supraventricular,or unclassified. I have a permanently swollen outer left ankle (scan says damage and arthritis) often have a pain in the left buttock relating to spinal cavity being reduced with spurs on. This means that I have problems
I am now almost never in normal Heart rhythm. It is eitherA/F, or supraventricular,or unclassified. I have a permanently swollen outer left ankle (scan says damage and arthritis) often have a pain in the left buttock relating to spinal cavity being reduced with spurs on. This means that I have problems
GrannyE
in
British Heart Foundation
2 years ago
prednisone lowering dosage
hi there everyone, so since I wrote here I was on 9 mg of prednisone a day I have managed to get down to 5mgs a day, which right now seems the lowest I can get to, although I will try again in two weeks. I attempted to get to 4:5mgs and boy my body went mad, on the second day at night I was so dizzy
hi there everyone, so since I wrote here I was on 9 mg of prednisone a day I have managed to get down to 5mgs a day, which right now seems the lowest I can get to, although I will try again in two weeks. I attempted to get to 4:5mgs and boy my body went mad, on the second day at night I was so dizzy
Heidiypi1
in
PMRGCAuk
2 years ago
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