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Experiences with
Cystitis
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Constant sore throat with Stills Disease
Other associated AI afflictions such as Lichen Sclerosis and Interstitial
Cystitis
are present. Mild Raynaud's and Sjogrens also suspected. The herald is a very sore red throat with yellow patches and sore tongue extending to ear ache. Any RD sufferers know of a treatment for the throat.
Other associated AI afflictions such as Lichen Sclerosis and Interstitial
Cystitis
are present. Mild Raynaud's and Sjogrens also suspected. The herald is a very sore red throat with yellow patches and sore tongue extending to ear ache. Any RD sufferers know of a treatment for the throat.
Hidden
in
NRAS
2 years ago
Going Private??
I also have PCOS, Interstitial
Cystitis
and Vulvodynia. My endometrial cyst has continued to grow (had it for a year now). The gynae said it wouldn't go away by itself and I would need an operation and the waiting list is a year long.
I also have PCOS, Interstitial
Cystitis
and Vulvodynia. My endometrial cyst has continued to grow (had it for a year now). The gynae said it wouldn't go away by itself and I would need an operation and the waiting list is a year long.
Em0000
in
Endometriosis UK
2 years ago
Bladder pain associated with IBS?
Have also read about interstitial
cystitis
which seems a possibility . Some advice is not to eat/drink citrus, citric acid, alcohol , coffee, drink mostly water, do pelvic floor exercises. Abdominal tensing seems to take away some of the pain and hot water bottle at night helped too.
Have also read about interstitial
cystitis
which seems a possibility . Some advice is not to eat/drink citrus, citric acid, alcohol , coffee, drink mostly water, do pelvic floor exercises. Abdominal tensing seems to take away some of the pain and hot water bottle at night helped too.
Andann
in
IBS Network
2 years ago
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Advice please
The first time I got to 1mg but stopped it because I had experienced constant
cystitis
for the 6 months I had been injecting it. That was in May 2021. She put me back on it last November as I had a VSG (inflammation marker blood test; I live in Spain) of 82.
The first time I got to 1mg but stopped it because I had experienced constant
cystitis
for the 6 months I had been injecting it. That was in May 2021. She put me back on it last November as I had a VSG (inflammation marker blood test; I live in Spain) of 82.
Mahler2
in
PMRGCAuk
2 years ago
Is Rectal and Vaginal pain normal for endo?
I have endo and I've recently been put on the pill as a tri-cycle. This is my first period since and I'm now taking the pill again after the break. Recently I've been experiencing what I can only describe as a dull ache and twinge in my rectum and in my vagina. At the least it's uncomfortable and at
I have endo and I've recently been put on the pill as a tri-cycle. This is my first period since and I'm now taking the pill again after the break. Recently I've been experiencing what I can only describe as a dull ache and twinge in my rectum and in my vagina. At the least it's uncomfortable and at
EternalSunshine87
in
Endometriosis UK
2 years ago
Interstitial Cystitis and endo
Hey everyone Has anyone been diagnosed with IC (via hydrodistention) but only get IC pain/burning symptoms during your periods? Does anyone get pain/burning due to IC near the kidneys? Is that a thing that happens? I haven't had a hydrodistention so not sure but in a recent lap I did have endo on
Hey everyone Has anyone been diagnosed with IC (via hydrodistention) but only get IC pain/burning symptoms during your periods? Does anyone get pain/burning due to IC near the kidneys? Is that a thing that happens? I haven't had a hydrodistention so not sure but in a recent lap I did have endo on
TennisAM
in
Endometriosis UK
2 years ago
AUS experiences
Incontinence when stands/walks, following treatment for radiation
cystitis
caused blockages. This is second time in less than 2 years. It is wearing him down terribly. I'm exploring possibility of AUS for him and would be grateful for any thoughts.
Incontinence when stands/walks, following treatment for radiation
cystitis
caused blockages. This is second time in less than 2 years. It is wearing him down terribly. I'm exploring possibility of AUS for him and would be grateful for any thoughts.
Lyubov
in
Advanced Prostate Cancer
2 years ago
Codeine or ibuprofen
Other symptoms of Stills and associated AI diseases like Interstitial
Cystitis
and Lichen Sclerosis outbreaks are also becoming more regular.
Other symptoms of Stills and associated AI diseases like Interstitial
Cystitis
and Lichen Sclerosis outbreaks are also becoming more regular.
Hidden
in
NRAS
2 years ago
Prostatitis and RLS
Exceptions: britannica.com says: "The cause of RLS is unknown, although it may accompany other conditions, including insufficiency of the blood supply to the legs, [...] and infections such as prostatitis and
cystitis
." And interestingly, there is a statement from an MD from 1946.
Exceptions: britannica.com says: "The cause of RLS is unknown, although it may accompany other conditions, including insufficiency of the blood supply to the legs, [...] and infections such as prostatitis and
cystitis
." And interestingly, there is a statement from an MD from 1946.
Hedgehob_Bob
in
Restless Legs Syndrome
2 years ago
Radiation Cystitis?
I don't recall Radiation
Cystitis
being discussed here. "Objectives: To elucidate the national burden of emergency department (ED) visits for radiation
cystitis
(RC), a known complication of radiation therapy to the pelvic area, among patients with a prostate cancer history ..."
I don't recall Radiation
Cystitis
being discussed here. "Objectives: To elucidate the national burden of emergency department (ED) visits for radiation
cystitis
(RC), a known complication of radiation therapy to the pelvic area, among patients with a prostate cancer history ..."
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Headaches and neck pain
Hi first time posting and looking for some advice. I suffered a SAH (Subarachnoid haemorrhage) in June this year. After 11 days I was allowed to come home. Recovery has been slow and steady but I’m having horrible neck pain to the point where I think I need more pain meds and am using tiger balm for
Hi first time posting and looking for some advice. I suffered a SAH (Subarachnoid haemorrhage) in June this year. After 11 days I was allowed to come home. Recovery has been slow and steady but I’m having horrible neck pain to the point where I think I need more pain meds and am using tiger balm for
AdyW
in
Headway
2 years ago
Nefopam
Has anybody tried nefpam for IBS pain? My GP has just prescribed them but I'm worried about nausea/vomiting. I've tried all kinds, pregagbin, mitazapine, amitriptyline, tramadol(makes me vomit), nothing seems to take away the constant pain
Has anybody tried nefpam for IBS pain? My GP has just prescribed them but I'm worried about nausea/vomiting. I've tried all kinds, pregagbin, mitazapine, amitriptyline, tramadol(makes me vomit), nothing seems to take away the constant pain
edwangy
in
IBS Network
2 years ago
Nodules on palm
I also have Interstitial
Cystitis
and Lichen Sclerosis both associated AI diseases. I’ve developed a ‘nodule’ on my palm, painful if poked, could this be contracture?
I also have Interstitial
Cystitis
and Lichen Sclerosis both associated AI diseases. I’ve developed a ‘nodule’ on my palm, painful if poked, could this be contracture?
Hidden
in
NRAS
2 years ago
Pain after wee
I’ve had bladder trouble for about 12 months starting off with couple of water infections given antibiotics but since then feel like I have permanent
cystitis
the feeling you need a wee but you don’t no burning when having a wee but the unusual thing is when I’ve had a wee after the pain starts for a
I’ve had bladder trouble for about 12 months starting off with couple of water infections given antibiotics but since then feel like I have permanent
cystitis
the feeling you need a wee but you don’t no burning when having a wee but the unusual thing is when I’ve had a wee after the pain starts for a
Von66
in
Bladder Health UK
3 years ago
What is best for nerve pain after surgery to remove a dural fistula from my spinal cord
Amitriptiline. Pregabalin. Aramorph liquid
Amitriptiline. Pregabalin. Aramorph liquid
Myfairl
in
Pelvic Pain Support Network
2 years ago
Was Hyperbaric oxygen for radiation cystitis the cause
I miss him so much
I miss him so much
Madbeach
in
Advanced Prostate Cancer
2 years ago
Bowel prolapse concerns
When I try to do them I get bad stinging like
cystitis
and am constantly feeling tired, a heavy/ stinging feeling and just rubbish .... is this normal? How long does it normally take to see someone? And how do you know what's urgent or not? Thanks
When I try to do them I get bad stinging like
cystitis
and am constantly feeling tired, a heavy/ stinging feeling and just rubbish .... is this normal? How long does it normally take to see someone? And how do you know what's urgent or not? Thanks
Bluebah
in
Pelvic Pain Support Network
2 years ago
I’m new and confused - diagnosed with Mast Cell Activation Syndrome
I suffer from I have multiple health conditions which are mostly related to my bladder (Interstitial
Cystitis
and Fowlers Syndrome) I have a suprapubic catheter in place and suffer from recurring and severe bladder infections.
I suffer from I have multiple health conditions which are mostly related to my bladder (Interstitial
Cystitis
and Fowlers Syndrome) I have a suprapubic catheter in place and suffer from recurring and severe bladder infections.
Jenb01
in
The UK Mastocytosis Support Group
2 years ago
Any bladder effects with enteric pred?
I have a long term condition called interstitial
cystitis
which is basically an inflamed bladder so it is very vulnerable to irritation. (It did not like omeprazole.) Has been fine on ordinary pred. Does anyone know anything about or experienced bladder problems with enteric pred, please?
I have a long term condition called interstitial
cystitis
which is basically an inflamed bladder so it is very vulnerable to irritation. (It did not like omeprazole.) Has been fine on ordinary pred. Does anyone know anything about or experienced bladder problems with enteric pred, please?
Viveka
in
PMRGCAuk
2 years ago
CAR T-Cell Use Possible in Metastatic Castration-Resistant Prostate Cancer
So, with the lower-dose chemotherapy and 100 million CAR T cells, we're not seeing the severe
cystitis
. We have seen still responsiveness against the cancer.
So, with the lower-dose chemotherapy and 100 million CAR T cells, we're not seeing the severe
cystitis
. We have seen still responsiveness against the cancer.
Scout4answers
in
Advanced Prostate Cancer
2 years ago
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