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Diagnosed with Joint Hypermobility Syndrome but I’m not sure.
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
browny52
in
Ehlers-Danlos Support UK
5 years ago
Mammograms
My oncologist doesn’t feel mammograms are necessary since I’m being treated for MBC. I’ve had a partial mastectomy of my right breast, chemo and radiation in 2005. It metastasized to both lungs in 2016. I had massive chemo again. Now I’m on Letrozole and Ibrance and everything is stable. But I wanted
My oncologist doesn’t feel mammograms are necessary since I’m being treated for MBC. I’ve had a partial mastectomy of my right breast, chemo and radiation in 2005. It metastasized to both lungs in 2016. I had massive chemo again. Now I’m on Letrozole and Ibrance and everything is stable. But I wanted
Halfpint2
in
SHARE Metastatic Breast Cancer
5 years ago
Immediate Reconstruction Worries
I was diagnosed with DCIS 2/13/2019. I had a bilateral mastectomy on 03/14/2019 with immediate reconstruction of cohesive silicone implants. My implants are tight, pinching on one side and the other side I can feel the implant in on the side of my rib/chest wall. I need to note I am a obese female.
I was diagnosed with DCIS 2/13/2019. I had a bilateral mastectomy on 03/14/2019 with immediate reconstruction of cohesive silicone implants. My implants are tight, pinching on one side and the other side I can feel the implant in on the side of my rib/chest wall. I need to note I am a obese female.
DCIS-mom
in
SHARE Breast Cancer Support
5 years ago
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Its Back !!!
I was diagnosed with stage 2 breast cancer back in Feb 2015 , I had chemo ,lumpectomy and radiotherapy .Although I had awful side effects I was happy to have made it through it all and hoped that as it . Sadly 4 years to the day I was rediagnosed again . This hit me like a ton of bricks and the past
I was diagnosed with stage 2 breast cancer back in Feb 2015 , I had chemo ,lumpectomy and radiotherapy .Although I had awful side effects I was happy to have made it through it all and hoped that as it . Sadly 4 years to the day I was rediagnosed again . This hit me like a ton of bricks and the past
lozzap50
in
My Breast Cancer Community
5 years ago
BRCA mutation carriers research request
Dear All We have been contacted by a researcher wishing to recruit BRCA mutation carriers who are thinking about having a mastectomy. The information is as follows: ONLINE PARTICIPANT REQUEST Participants needed for a study examining the role of others on BRCA carriers' intentions to undergo
Dear All We have been contacted by a researcher wishing to recruit BRCA mutation carriers who are thinking about having a mastectomy. The information is as follows: ONLINE PARTICIPANT REQUEST Participants needed for a study examining the role of others on BRCA carriers' intentions to undergo
OvacomeSupport
Administrator
in
My Ovacome
5 years ago
Sotalol
I had an ablation in October 2016 which was successful until I had a mastectomy in January 2018 when I went into AF. Since then I have had a few episodes of AF which seem to be getting more frequent and lasting longer. I have recently seen a couple of Consultants privately and both are suggesting
I had an ablation in October 2016 which was successful until I had a mastectomy in January 2018 when I went into AF. Since then I have had a few episodes of AF which seem to be getting more frequent and lasting longer. I have recently seen a couple of Consultants privately and both are suggesting
Tricia239
in
Atrial Fibrillation Support
5 years ago
DIET POST GALL BLADDER REMOVAL
Peeps had his gall bladder removed, very successfully, two weeks ago today. I am having a bit of a struggle to understand what he can/cannot eat. Does anyone out there have any thoughts on a diet he can follow, short term and long term please?
Peeps had his gall bladder removed, very successfully, two weeks ago today. I am having a bit of a struggle to understand what he can/cannot eat. Does anyone out there have any thoughts on a diet he can follow, short term and long term please?
Peeps7
in
British Liver Trust
5 years ago
Hi 👋 everyone.....
I’m Rhonda from Florida. I’m 52 years old until May 10.. DX MBC July 2017 after 3 years of fighting stage 3 breast cancer (ER+ PR+ HER-) to my right breast in May 2014. Went through the motions...chemo, gallbladder surgery, mastectomy on right with 6 of 24 lymphnodes positive with cancer, 32 rounds of
I’m Rhonda from Florida. I’m 52 years old until May 10.. DX MBC July 2017 after 3 years of fighting stage 3 breast cancer (ER+ PR+ HER-) to my right breast in May 2014. Went through the motions...chemo, gallbladder surgery, mastectomy on right with 6 of 24 lymphnodes positive with cancer, 32 rounds of
Pookie510
in
SHARE Metastatic Breast Cancer
5 years ago
Burning pain in back
Hello everyone Been ages since I have written on here and have been doing so well until just before Christmas where I started to get a funny sensation in my back. It feels like a burning feeling deep inside (as if it is an organ) It starts on the right hand side where my bra strap is and then goes down
Hello everyone Been ages since I have written on here and have been doing so well until just before Christmas where I started to get a funny sensation in my back. It feels like a burning feeling deep inside (as if it is an organ) It starts on the right hand side where my bra strap is and then goes down
Gittelarter
in
My Breast Cancer Community
5 years ago
Life after diagnosis, surgery and treatment
Hi All! I was diagnosed in Nov 2017. I had a mastectomy in Dec 2017 followed by chemo from January to May 2018. I had HER2 so continued Herceptin until Dec 2018. Now I'm on an Estrogen blocker for 5 years and getting back to "normal". After losing most of my hair I was brave enough to go without
Hi All! I was diagnosed in Nov 2017. I had a mastectomy in Dec 2017 followed by chemo from January to May 2018. I had HER2 so continued Herceptin until Dec 2018. Now I'm on an Estrogen blocker for 5 years and getting back to "normal". After losing most of my hair I was brave enough to go without
Dancegal
in
SHARE Breast Cancer Support
5 years ago
Life after mastectomy
Hello! I'm looking for this who had a mastectomy and can share best bras, sports bras, swimsuits, and breast forms. I had one breast removed in Dec 2017. I do not care for the silicon prosthetic I was given. Bras do not stay in place. I currently am wearing a cotton filled pocket but that won't
Hello! I'm looking for this who had a mastectomy and can share best bras, sports bras, swimsuits, and breast forms. I had one breast removed in Dec 2017. I do not care for the silicon prosthetic I was given. Bras do not stay in place. I currently am wearing a cotton filled pocket but that won't
Dancegal
in
SHARE Breast Cancer Support
5 years ago
Portal vein thrombosis & gall bladder removal
Back and forth to London Bridge Hospital this week and after recent MRI, CT & MRCP scans, we finally have a verdict and plan of action. Peeps’ portal vein is completely blocked by the thrombosis despite Rivaroxaban, Warfarin and Clexane injections and this in turn has caused varices in his bile ducts
Back and forth to London Bridge Hospital this week and after recent MRI, CT & MRCP scans, we finally have a verdict and plan of action. Peeps’ portal vein is completely blocked by the thrombosis despite Rivaroxaban, Warfarin and Clexane injections and this in turn has caused varices in his bile ducts
Peeps7
in
British Liver Trust
6 years ago
BCS or Mastectomy
My wife is under going Chemo for her breast cancer and surgery is to follow after Chemo 4AC + 12 Taxol, Herceptin . Oncologist is asking us whether we want breast conservative surgery or Mastectomy. They need to fix some metallic marker in case of BCS. I invite suggestions or pros and cons of both!
My wife is under going Chemo for her breast cancer and surgery is to follow after Chemo 4AC + 12 Taxol, Herceptin . Oncologist is asking us whether we want breast conservative surgery or Mastectomy. They need to fix some metallic marker in case of BCS. I invite suggestions or pros and cons of both!
Caring_hubby
in
SHARE Metastatic Breast Cancer
5 years ago
Hospitals
So I have had a few issues health wise. I've had thyroid cancer and many a few minor health concerns. I have 2 kids with type 1 diabetes. I've seen the inside of hospitals more than I like. Thank God I live where I do or I am sure the bills would be horrendous! I grew up with a Mom who had a brain tumour
So I have had a few issues health wise. I've had thyroid cancer and many a few minor health concerns. I have 2 kids with type 1 diabetes. I've seen the inside of hospitals more than I like. Thank God I live where I do or I am sure the bills would be horrendous! I grew up with a Mom who had a brain tumour
1989Bookworm
in
Anxiety and Depression Support
5 years ago
Anastrozole and Turmeric with Pepper
I'm trying to establish if it's OK to take Turmeric/Pepper as I've been diagnosed with inflammatory arthritis and don't wish to take medication suggested by by rheumatologist - sulfasalazine. I had a mastectomy 3 years ago and currently taking Anastrozole.
I'm trying to establish if it's OK to take Turmeric/Pepper as I've been diagnosed with inflammatory arthritis and don't wish to take medication suggested by by rheumatologist - sulfasalazine. I had a mastectomy 3 years ago and currently taking Anastrozole.
Flynn2008
in
SHARE Metastatic Breast Cancer
5 years ago
losing weight...
hello. just had my letter from hospital concerning gall bladder removal the surgeon also found a fatty rigid liver. I am shocked . !!! I eat healthily or try to .I don't eat cakes/biscuits/pastries. like the odd fish and chips. I don't eat pizza/burgers etc.am vegetarian ,and have IBS so I don't eat
hello. just had my letter from hospital concerning gall bladder removal the surgeon also found a fatty rigid liver. I am shocked . !!! I eat healthily or try to .I don't eat cakes/biscuits/pastries. like the odd fish and chips. I don't eat pizza/burgers etc.am vegetarian ,and have IBS so I don't eat
wendymortimer_1957
in
Weight Loss Support
6 years ago
Molly age 22 severe Endometriosis
mum said don’t worry but actually having this endo does worry me a lot I have a 5cm by 5 cm on my left overy and a 10 cm by 10 cm endo on my right they have got rid of what they could reading g my notes I had a laposcropic bilateral Iberian cystecomy treatment was laposcropic and bilateral overian
cystectomy
mum said don’t worry but actually having this endo does worry me a lot I have a 5cm by 5 cm on my left overy and a 10 cm by 10 cm endo on my right they have got rid of what they could reading g my notes I had a laposcropic bilateral Iberian cystecomy treatment was laposcropic and bilateral overian
cystectomy
MollyN224
in
Endometriosis UK
6 years ago
Stage 1a breast cancer
Hi everyone. I was diagnosed with Stage 0-1 DCIS grade 3 Comedo Necron hormone receptor negative breast cancer just before Christmas 2018. My surgeon recommended a lumpectomy and a SNL biopsy with radiation. Jan. 3rd I had my lumpectomy and it was found to actually be Stage 1a breast cancer with no lymph
Hi everyone. I was diagnosed with Stage 0-1 DCIS grade 3 Comedo Necron hormone receptor negative breast cancer just before Christmas 2018. My surgeon recommended a lumpectomy and a SNL biopsy with radiation. Jan. 3rd I had my lumpectomy and it was found to actually be Stage 1a breast cancer with no lymph
jackandbox
in
SHARE Breast Cancer Support
6 years ago
Chemotherapy to start on 14feb and wound didn't heal till now
My mother went through radial mastectomy on 21 jan 2019 doctor advised us to go for 4 EC Chemotherapy cycles, her 1st chemo cycle to start on 14th feb and her wound didn't heal till now. Will doctor delay my mother chemo cycle Or not? Does chemotherapy affect healing
My mother went through radial mastectomy on 21 jan 2019 doctor advised us to go for 4 EC Chemotherapy cycles, her 1st chemo cycle to start on 14th feb and her wound didn't heal till now. Will doctor delay my mother chemo cycle Or not? Does chemotherapy affect healing
Mani8052
in
Breast Cancer India
6 years ago
new to stage IV
Hi guys Thank you, I have benefited a lot by your shared experiences. I was diagnosed with stage 3 breast cancer in 2013, right breast.Had mastectomy, lymph nodes removal, and radiation but declined Letrozol. In 2015 left breast was discovered infected, Had another mastectomy, but again declined
Hi guys Thank you, I have benefited a lot by your shared experiences. I was diagnosed with stage 3 breast cancer in 2013, right breast.Had mastectomy, lymph nodes removal, and radiation but declined Letrozol. In 2015 left breast was discovered infected, Had another mastectomy, but again declined
Arkait
in
SHARE Metastatic Breast Cancer
6 years ago
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